Search found 41 matches

by amberfer
Sat Jan 11, 2014 9:44 pm
Forum: General Discussion
Topic: Any one know why this is?
Replies: 8
Views: 1828

Re: Any one know why this is?

jam wrote:I know most people's walking and balance fade with the day if they have used too much energy.

I am best in the morning regardless of how much I do. By lunch time I have great difficulty in walking.

Anyone have ideas please.


Jam

ppmer
Maybe it's your MS...? Same for me.
by amberfer
Wed Jan 08, 2014 2:34 pm
Forum: General Discussion
Topic: Facial Numbness - Terrified it could be MS
Replies: 11
Views: 1781

Re: Facial Numbness - Terrified it could be MS

My heart fell at the word "terrified." My friend, this isn't cancer. Many people who have MS, you can't even tell they have it. Many aren't disabled. Even those who are disabled, like me - I am not miserable or scared. Even if it is MS, you are going to be okay. Meet it with a plan. This i...
by amberfer
Thu Dec 26, 2013 7:52 pm
Forum: Undiagnosed
Topic: Is MS painful?
Replies: 8
Views: 1818

Re: Is MS painful?

Hi Jamrh, like others said, I believe pain is very common for many MS patients! I am thankful to have pain that is not severe like many do. I do hope you switch neuros, and to save time, you might write out your own "answers" before you see the neuro. You know, just a profile of what you t...
by amberfer
Thu Dec 26, 2013 7:41 pm
Forum: General Discussion
Topic: Question: MS Affecting Husband/Wife/Significant Other
Replies: 10
Views: 2310

Re: Question: MS Affecting Husband/Wife/Significant Other

Really glad to hear that you've got the sort of emotional support that you need. If he's the introvert, then he may not have the support you have. Or he relies on you as his support. It's not good for you to hear all his fears related to MS. Some of that can be hurtful and unnecessary to share. For...
by amberfer
Thu Dec 26, 2013 7:32 pm
Forum: General Discussion
Topic: Question: MS Affecting Husband/Wife/Significant Other
Replies: 10
Views: 2310

Re: Question: MS Affecting Husband/Wife/Significant Other

I'm the husband of a woman with a mild case of PPMS. We always had a great relationship, and since her dx 7 years ago, if anything we are even closer. We've had to forgo things like hikes and skiing (we still enjoy bike rides and snowshoeing), but we still have a good life, , good friends and great...
by amberfer
Thu Dec 26, 2013 2:13 pm
Forum: Regimens
Topic: My "regimen"
Replies: 21
Views: 11787

Re: My "regimen"

actually at my last neuro appt. the doc said ms drugs do NOT slow progression, but they can potentially reduce the frequency of relapses. apparently this finding is debatable: http://www.webmd.com/multiple-sclerosis/news/20120717/multiple-sclerosis-drugs-may-not-delay-disability would be interestin...
by amberfer
Thu Dec 26, 2013 2:10 pm
Forum: General Discussion
Topic: Question: MS Affecting Husband/Wife/Significant Other
Replies: 10
Views: 2310

Re: Question: MS Affecting Husband/Wife/Significant Other

My wife had MS for 35 years before she passed away in 2007. I knew she had the disease when we got married and she went about 20 years without any progression after her initial attack.(about 3 years before we got married and I had not met her at that time.) The level level of care required increase...
by amberfer
Wed Dec 25, 2013 11:37 pm
Forum: Introductions
Topic: A Warm Hello
Replies: 3
Views: 1462

Re: A Warm Hello

A warm hello to the group! http://www.thisisms.com/forum/posting.php?mode=quote&f=20&p=219542 I wanted to introduce myself and officially join the community. I came here as a visitor searching for information and found a lot of great advice for people at all stages of diagnosis and treatmen...
by amberfer
Wed Dec 25, 2013 11:07 pm
Forum: General Discussion
Topic: Question: MS Affecting Husband/Wife/Significant Other
Replies: 10
Views: 2310

Re: Question: MS Affecting Husband/Wife/Significant Other

So he's annoyed, makes fun, doesn't want to spend time with you and doesn't want to have sex? There are different ways of dealing with the same situation but he might well need therapy on his own or antidepressants. Not helping you with the door could be a way of denying that you're having problems...
by amberfer
Wed Dec 25, 2013 11:04 pm
Forum: General Discussion
Topic: Brain lesions - why didn't they care?
Replies: 2
Views: 1426

Re: Brain lesions - why didn't they care?

I guess the migraines masked the underlying MS, because migraines can cause white spots too. It can take awhile to get an MS diagnosis even when it seems clearer in retrospect. A spinal spot is more serious because there is less plasticity in the spine, and a spinal spot can cause mobility issues t...
by amberfer
Wed Dec 25, 2013 11:01 pm
Forum: Regimens
Topic: My "regimen"
Replies: 21
Views: 11787

Re: My "regimen"

Disease modifying medications only are proven to slow the disease if you believe the FDA, drug companies and your doctor. Have you thought about the drugs which the FDA has approved and then pulled them from the market because they were killing too many people? Have you ever wondered how a lawyer c...
by amberfer
Wed Dec 25, 2013 10:46 pm
Forum: General Discussion
Topic: MS relapses
Replies: 19
Views: 3400

Re: MS relapses

Take a look at Dr. Bergman recommendation for treating autoimmune disease. The key to treating all disease is the diet. http://www.youtube.com/watch?v=zGmyUppmt-g This is a pretty bold statement...I just want to say to the OP, remember that everyone has different opinions about this. Not all diseas...
by amberfer
Tue Dec 24, 2013 5:14 pm
Forum: Introductions
Topic: Diagnosis MS
Replies: 4
Views: 1878

Re: Diagnosis MS

I feel like I've been blessed with minor symptoms. I went to the ER because I woke up and couldn't walk...but ever since then I can walk short distances without a cane. Long distances I need a wheelchair, but I still feel like my symptoms are minor compared to what they could be - no cognitive probl...
by amberfer
Tue Dec 24, 2013 5:06 pm
Forum: General Discussion
Topic: MS relapses
Replies: 19
Views: 3400

Re: MS relapses

hi, I've had 5 different nuerologists, insurance companies and them leaving to other areas but anyways they all have said the same thing, my MS is so minute, so small, I've been Blessed, I just have a few problems but nothing to major. I'm not on any shots anymore. I do have to make an appt. with m...
by amberfer
Sat Dec 21, 2013 12:43 pm
Forum: General Discussion
Topic: Looking to move to the USA - UK Rebif User
Replies: 3
Views: 1255

Re: Looking to move to the USA - UK Rebif User

As long as you check with the health insurance company first to make sure it's a preferred drug! My first choice of drug was "covered" - they paid $2000/month and wanted us to pay $4500/month. Obviously we picked a different drug with a $100 copay. I just wouldn't want that to happen to you!

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