Search found 3 matches

by Deedle
Fri Mar 20, 2015 10:15 am
Forum: General Discussion
Topic: Is this uhthoff's phenomenon?
Replies: 2
Views: 1446

Re: Is this uhthoff's phenomenon?

This is what happens to me as well. I was told it is Uhtoff's and that the smallest increase in body temperature can bring it on. It gets so bad at times, I can't gather my thoughts to speak and explain what's going on. Like you said, the only thing that helps is bringing the body temp down ASAP. My...
by Deedle
Tue Jan 13, 2015 9:33 am
Forum: Gilenya
Topic: Best decision I ever made!
Replies: 3
Views: 6179

Re: Best decision I ever made!

It's still going well for me and this April will be 7 years on G with only one very small relapse. Are you a member of the Gilenya group on Facebook? A great bunch of people on there. New Gilenya users and some from the original trials with lots of experience. I hope you continue to do well!
by Deedle
Sat Dec 21, 2013 8:31 am
Forum: Gilenya
Topic: Best decision I ever made!
Replies: 3
Views: 6179

Best decision I ever made!

I've been on Gilenya for 4 years now (reluctantly started in the clinical trial because I ran out of DMD options) and I've never felt better. I've had improvements in some of my MS symptoms and can't say enough about this drug. No more shots is a big plus but I've also had few side effects. I did ha...

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