Search found 16 matches

by TonyNZ
Fri Nov 28, 2014 4:12 pm
Forum: General Discussion
Topic: Best Treatment?
Replies: 0
Views: 1116

Best Treatment?

Hi there,

Which country in the World has the most advanced/best treatment for MS? Canada? I would guess at Japan or Singapore but others experience is probably more relevant. By advanced I mean the country that is trying experimental regimens and protocols to try and cure MS.

Rgds

Tony
by TonyNZ
Wed Nov 26, 2014 10:30 pm
Forum: Daily Life
Topic: Flu and then??
Replies: 2
Views: 2314

Flu and then??

Hi There, PPMS sufferer I recently got the winter flu bug that was doing its rounds here in NZ. Boy did it work a number on me! Literally took my legs out from under me for a few days and my vision became seriously messed up - (double vision and out of focus), plus both my arms became numb. 3 weeks ...
by TonyNZ
Fri Nov 21, 2014 12:15 pm
Forum: Daily Life
Topic: Weather the storm..
Replies: 0
Views: 2042

Weather the storm..

Hi There, Going through these pages it is a relief to see that other people have the same curious problem as do I. Namely, that whenever the weather changes so too do my MS symptoms. I was doing exceptionally fine until 16:00 yesterday when a low-pressure cell moved in over Wellington. All hell brok...
by TonyNZ
Wed Nov 19, 2014 3:47 pm
Forum: Regimens
Topic: PPMS and diet
Replies: 4
Views: 6123

PPMS and diet

Hi There, I would like to ask people suffering from PPMS what diet they are following. I am following the Swank diet at present and it seems to be OK. I have tried the Wahls and Jelinek diets in the past, neither of which suited me particularly well. The Wahls diet is too restrictive and also expens...
by TonyNZ
Sun Nov 09, 2014 2:38 pm
Forum: General Discussion
Topic: Diet cure anyone?
Replies: 29
Views: 4841

Re: Diet cure anyone?

It is refreshing to read the varying experiences/philosophies of fellow ms travellers. I am somewhat disillusioned with the results of my adhering to a specific diet. I notice a deterioration in my general condition since following the Jelinek and then Wahls diets. The comeback from many adherents w...
by TonyNZ
Sun Nov 02, 2014 11:06 am
Forum: General Discussion
Topic: Diet cure anyone?
Replies: 29
Views: 4841

Re: Diet cure anyone?

Thanks for that very thoughtful and intuitive response! I wondered if there were people out there who did nothing, yet also recovered. By adapted diet I mean that I have taken various aspects of both protocols and use them in my own diet as this seems to benefit me more so than following a specific ...
by TonyNZ
Sat Nov 01, 2014 3:04 pm
Forum: General Discussion
Topic: Diet cure anyone?
Replies: 29
Views: 4841

Diet cure anyone?

Hi There, I am relatively new to MS - 1 year diagnosed with PPMS, 3 years suffering from symptoms. I have tried a vast number of 'cures' over the past 2 years costing thousands of $ all to no avail. I now try a mixture of supplements, low dose naltraxone, exercise and an adapted Jelinek/Wahls diet (...
by TonyNZ
Sun Sep 28, 2014 5:25 pm
Forum: General Discussion
Topic: Is this a relapse?
Replies: 3
Views: 1210

I guess it was...

After another troubled day and night, I am finally able to get out of the house today. I have come to the conclusion that it WAS a relapse after all. There was also an almighty headache attached to it that no amount of ibuprofen was able to fix. Today I am grateful to have my faculties back to norma...
by TonyNZ
Sat Sep 27, 2014 2:01 pm
Forum: General Discussion
Topic: Is this a relapse?
Replies: 3
Views: 1210

Is this a relapse?

Hi There, I was sort-of ok (by MS standards) up to a week ago; then suddenly out-of-the-blue I REALLY battle to walk (I need a stick normally but now can't manage 100m), have morning nausea and am immensely tired all the time. So tired that if I lie down flat on the floor I will sleep; this has neve...
by TonyNZ
Wed Aug 27, 2014 1:41 pm
Forum: General Discussion
Topic: Symtoms and change
Replies: 2
Views: 1300

Symtoms and change

Hi there, I have actively suffered from MS symptoms for the past 3 years. My diagnosis finally came in Feb of this year - Primary Progressive. I had gone into a steep decline over the past year - barely able to walk, balance problems, bladder, vision...., all the usual suspects. Then from February u...
by TonyNZ
Fri Aug 22, 2014 9:05 pm
Forum: General Discussion
Topic: NZ ms study
Replies: 12
Views: 3056

Existing drugs

I am quite excited about the following link: http://www.bizjournals.com/sanfrancisco/blog/biotech/2014/07/multiple-sclerosis-ms-tavist-clemastine-genentech.html?page=all For a while now, I have noticed that whenever I get a cold or flu and take med-lemon (lemsip in some countries) a soluble, cheap a...
by TonyNZ
Thu Aug 14, 2014 3:36 pm
Forum: General Discussion
Topic: NZ ms study
Replies: 12
Views: 3056

NZ ms study

Some positive news from my neck of the woods. (New Zealand)

http://tvnz.co.nz/national-news/anti-ps ... dy-6057457
by TonyNZ
Mon Jun 09, 2014 1:44 pm
Forum: General Discussion
Topic: If cold weather bothers you…
Replies: 4
Views: 2052

Re: If cold weather bothers you…

I now live in New Zealand after having lived in Qatar for 3 years. We are now experiencing our first NZ winter and my mobility has decreased by 30%. the moment it gets slightly warmer I am instantly much better! 3 years in Qatar were not easy in the extreme heat but i definitely notice that warm wea...
by TonyNZ
Sat Apr 05, 2014 1:12 pm
Forum: Introductions
Topic: The start of an adventure...
Replies: 6
Views: 1920

The start of an adventure...

Hi There! I am a 48 year-old male recently diagnosed (last Monday) with relapsing/remitting MS. This comes after 3 years of confusion created by doctors in various countries (in the Middle East) without the necessary experience of MS to make the correct diagnosis. Now I am in New Zealand and it took...
by TonyNZ
Sun Mar 09, 2014 2:13 am
Forum: Undiagnosed
Topic: Getting closer to a diagnosis...
Replies: 3
Views: 1461

Re: Getting closer to a diagnosis...

hi jimmylegs. I just looked at your incredible 'post'!! I will study it at length. I do not have all the results of the blood-work that has been done for me. I miss the results from Qatar and Italy; however they were very thorough here in NZ when I went initially (a month ago) I will have to pursue ...

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