Search found 79 matches

by Anunymouse
Tue Feb 11, 2020 1:42 pm
Forum: Regimens
Topic: Ocrevus
Replies: 5
Views: 2821

Re: Ocrevus

I've been on it 3 or 4 years now, the only actual MS drug I've taken. In general I've never had relapses even though I'm dx'd RR. My secret suspicion is I'm actually Ppms. No MRI drain bramage but fatigue and a f'd up leg, lesions in my spine. But a PpMS dx shuts me out of certain insurance routes s...
by Anunymouse
Tue Feb 11, 2020 1:32 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Why Ocrevus is a new favorite drug by doctors?
Replies: 7
Views: 3053

Re: Why Ocrevus is a new favorite drug by doctors?

Placebo in MS is a big problem (to me) in most of the studies. A while back the Dr. recommended aubagio for me (after prescribing and then telling me not to take tecfidera). I was talking to one of the nurses at an appointment and she asked me what I was on. At that time, nothing. I told her I tried...
by Anunymouse
Mon Dec 23, 2019 4:10 am
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: Has this treatment been abandoned?
Replies: 4
Views: 1434

Re: Has this treatment been abandoned?

I believe medday fishing. They thought they had a moneymaker and it turned out to be a dud.
by Anunymouse
Mon Dec 23, 2019 4:07 am
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: High dose biotin causes lab test interference
Replies: 3
Views: 2322

Re: High dose biotin causes lab test interference

It definitely throws tsh for thyroid waaaaay off.
by Anunymouse
Sun Jun 16, 2019 7:19 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Why Ocrevus is a new favorite drug by doctors?
Replies: 7
Views: 3053

Re: Why Ocrevus is a new favorite drug by doctors?

The main side effects are during and post infusion. I'm one of the lucky ones that gets a rash. I also feel run down for about a week afterwards but there's a reasonable chance it's psychosomatic. I get the infusion done at the local cancer center and I find the whole thing even more depressing than...
by Anunymouse
Sun May 12, 2019 9:03 am
Forum: Coimbra High-Dose Vitamin D Protocol
Topic: Hashimoto's Thyroiditis Testimonials
Replies: 6
Views: 2423

Re: Hashimoto's Thyroiditis Testimonials

So update on thyroid. 2 months ago endo asked me to reduce thyroid needs again. Dosage stayed the same but 6 days a week instead of 7. I did that for about 10 weeks, drew blood on Thursday and haven't taken meds since. Im back on them Monday but felt line i need a break. Test results in today. Tsh 3...
by Anunymouse
Wed Mar 06, 2019 12:19 pm
Forum: General Discussion
Topic: mouse model of PPMS with REAL MS
Replies: 3
Views: 596

Re: mouse model of PPMS

It must be amazing to be a mouse. Pretty MUCH EVERYTHING cures you.
by Anunymouse
Wed Mar 06, 2019 12:06 pm
Forum: General Discussion
Topic: RE; MS STUDY SUPPORTS HITTING MS FAST AND HARD
Replies: 11
Views: 1168

Re: RE; MS STUDY SUPPORTS HITTING MS FAST AND HARD

Because statistically mild drugs ARE NOT effective? At all? Over time the same percentage of people on them as not taking anything, reach the same end point. The way the drugs 'work' is unverifiable. You can't prove that you took x so you only had 3 relapses instead of 4. All you can say is you onl...
by Anunymouse
Tue Feb 05, 2019 6:43 pm
Forum: General Discussion
Topic: RE; MS STUDY SUPPORTS HITTING MS FAST AND HARD
Replies: 11
Views: 1168

Re: RE; MS STUDY SUPPORTS HITTING MS FAST AND HARD

Because statistically mild drugs ARE NOT effective? At all? Over time the same percentage of people on them as not taking anything, reach the same end point. The way the drugs 'work' is unverifiable. You can't prove that you took x so you only had 3 relapses instead of 4. All you can say is you only...
by Anunymouse
Thu Dec 20, 2018 6:00 am
Forum: Medical Marijuana
Topic: Cannabis extracts and cannabidiol are as efficient as Copax
Replies: 1
Views: 1689

Re: Cannabis extracts and cannabidiol are as efficient as Co

Covering yourself with post it notes works as well as copax, so not really surprised.
by Anunymouse
Fri Nov 23, 2018 12:28 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Second Infusion two weeks away, I feel like death? Any other
Replies: 11
Views: 2846

Re: Second Infusion two weeks away, I feel like death? Any o

Infused again last week. Fairly uneventful. Neuro put me on meds for a week before and after. Im one of the lucky few that had gotten a rash with every infusion, originating around my testicles and ears. Lots of fun to be had. Supposedly the rashes lessen with each infusion. In any case either pretr...
by Anunymouse
Wed Nov 21, 2018 4:56 am
Forum: Coimbra High-Dose Vitamin D Protocol
Topic: Hashimoto's Thyroiditis Testimonials
Replies: 6
Views: 2423

Re: Hashimoto's Thyroiditis Testimonials

I'm on calcium restricted, otherwise the same diet I've been in for 30-40 years. Calcium restriction sucks, most of what I like eating has cheese in its name somewhere :laugh: I'll have to pull up my supplement list, off the top of my head there are several b, zinc, potassium. If I had more free mon...
by Anunymouse
Tue Nov 20, 2018 6:20 am
Forum: Coimbra High-Dose Vitamin D Protocol
Topic: Hashimoto's Thyroiditis Testimonials
Replies: 6
Views: 2423

Re: Hashimoto's Thyroiditis Testimonials

Back again, feeling fatigued (normal) weak for quite a while now, which isn't. Thyroid tested again on the 15th of november after a week of 0 supplements and I'm still hyperthyroid at the reduced dosage. So I'm reducing again. My original dose was 2.5g per day, did that for years, now I'm on 2, star...
by Anunymouse
Wed Oct 17, 2018 6:28 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Second Infusion two weeks away, I feel like death? Any other
Replies: 11
Views: 2846

Re: Second Infusion two weeks away, I feel like death? Any o

Round 1 is split into 2, 1/2 dose each time 2 at 6 months. Round 3 would be at 12 months, so 4 yaken at 18mo will take me through the 2nd year. My mris have been unremarkable since the beginning and have stayed that way regardless of medicated or not. I'm due for another but I'm not too concerned. N...
by Anunymouse
Wed Oct 17, 2018 6:11 pm
Forum: Ocrevus (Ocrelizumab)
Topic: After first infusion no change in progression
Replies: 4
Views: 1823

Re: After first infusion no change in progression

My neuro said to hold judgement until after at least a year. I'm up for round 4 next month.