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Basically, they found "small foci of periventricular white matter signal changes adjacent to the fourth ventricle" that seem like an atypical demelinating process, as well as a well defined old 6mm lesions at the base of the posteria fossa. BUT, since both the signal changes and the lesion...

Thank you so much for the information! Are symptoms of a B12 deficiency more constant?… Symptoms come and go at first. The authors and many experts believe they become irreversible in time – I hope they can eventually return to normal. Huh, I wonder how the symptoms come and go, and what the thresho...

I always ask for my own copy of any test results; if you have yours for B12 and are willing to share personal information, I am curious to know which tests were done (serum B12, homocysteine, or methylmalonic acid test), what your test results were – and what supplements exactly you have been put o...

I'm in diagnosis limbo, so I know what you mean. From what I understand a MS "flare up" lasts at least 24 hours and is a sign that you have new lesions. But, there are also things called "paroxsmal symptoms" which are a lot shorter (seconds, minutes, whatever). These are basicall...

Thank you for the welcome! I haven't seen a dietician at all, but I know from blood tests that before this all started this year my vitamin D and B12 levels were pretty low and was put on supplements. One of the things that I've been told it might be is Periodic Paralysis, which involves an intense ...

It might be useful to consider other sources of demyelinating lesions. Wikipedia's article on Demyelinating disease says: Multiple sclerosis, together with Devic's disease and other disorders with immune system involvement called inflammatory demyelinating diseases. CNS Neuropathies like those produ...

I hope you've managed to see a doctor by now (though some doctors have HUGE waiting lists), but I can give you my two cents (despite not having a diagnosis yet myself). What you are describing doesn't sound normal, there is definitely something wrong. In my own situation, I followed doctor recommend...

I don't have a diagnosis myself, but I can let you know what I do know from my own doctor visits and late nights on google. A "clumsy" gait could be described as "ataxic", that might be something for you to look into. If your muscles are twisted, that could be a sign of "dys...

I'm in this section the same reason you are: because I don't know much about MS and want other people to help me.... That being said, I can offer you some thoughts on the sorts of things I've been tested for and things that your account made me think of. It seems like the inflammation and swelling m...

Question : A February 2014 MRI of my brain (done to diagnose conscious collapsing spells I have) showed a “well defined 6mm lesion just to the right at the base of the nodulus in the posterior fossa”. I was told it was probably nothing and to have it rescanned in latter to make sure no new lesions ...