Search found 26 matches
- Sat May 06, 2017 5:38 pm
- Forum: Introductions
- Topic: Newly diagnosed with MS in AZ, Hello!
- Replies: 9
- Views: 3419
Re: Newly diagnosed with MS in AZ, Hello!
I'm sorry. It sounds like you are dealing with a lot. Have you had a steroid treatment? If not, there is a good chance that the MS clinic will get you on high dose steroids for a few days to temper down your symptoms. In the meantime, stay active, stick to the schedule with the copaxone as well as y...
- Sat May 06, 2017 8:26 am
- Forum: Introductions
- Topic: Newly diagnosed with MS in AZ, Hello!
- Replies: 9
- Views: 3419
Re: Newly diagnosed with MS in AZ, Hello!
Hi-- Welcome to the forum and sorry for all that you are going through. I completely understand your frustration as there is rarely a post on this forum that does not get barraged with Vit D or B12 references. Take it one day at a time. It is good that you are going to an MS specialty clinic as they...
- Sat May 06, 2017 7:36 am
- Forum: General Discussion
- Topic: work place accomodation
- Replies: 3
- Views: 1201
Re: work place accomodation
I think you can keep the conversation limited to "I don't drive." The reason behind it is really none of their business. If pressured, you can say that you have vision problems and you feel safer having family drive so you gave up your license. This does not need to be a discussion about y...
- Wed Apr 05, 2017 7:48 pm
- Forum: Copaxone
- Topic: New Copaxone user
- Replies: 7
- Views: 5011
Re: New Copaxone user
I had horrible reactions when I started. I thought that I was going to the right depth, but it turns out I was going too shallow and causing horrible bruising and hematomas. If you call shared solutions, you can request a nurse to come to your house and do a training session and they can evaluate yo...
- Sun Mar 12, 2017 3:02 pm
- Forum: General Discussion
- Topic: Pleasant symptoms
- Replies: 2
- Views: 1001
Re: Pleasant symptoms
I know that exact leg sensation you are talking about!! I told my neurologist that it feels like my legs are drunk. He wasn't sure what to make of that description lol. I actually don't like the sensation at all... it makes me feel out of control of my body and as if my legs only work by muscle memo...
- Sun Mar 12, 2017 2:49 pm
- Forum: General Discussion
- Topic: Who here has a Job?
- Replies: 17
- Views: 3207
Re: Who here has a Job?
I have a job- 40+ hrs/week in a high stress/mentally exhausting but rewarding position. At the end of the week, I am worthless for any activities (this has become the evening where I am left to cuddle on the couch with my dog and watch Hulu- which is OK with me!). I have been on copaxone for over 2 ...
- Tue Feb 21, 2017 7:59 pm
- Forum: Undiagnosed
- Topic: MS-like symptoms after shingles
- Replies: 3
- Views: 2767
Re: MS-like symptoms after shingles
The lingering neurological effects of shingles are called post herpetic neuralgia. Post herpetic neuralgia can result in pain, numbness, and tingling and can last for many years after the herpes zoster infection. Please read about post herpetic neuralgia and ease your mind. Your doctor may prescribe...
- Mon Jan 30, 2017 7:29 pm
- Forum: Copaxone
- Topic: Copaxone side effect??
- Replies: 17
- Views: 14037
Re: Copaxone side effect??
Disneylover- If you don't trust your provider, please find a new one. Trust is of the utmost importance in a patient-provider relationship. This disease is too much of a beast to be facing it with someone that you don't feel has your back. In all honesty, it sounds like your doctor addressed appropr...
- Wed Jan 11, 2017 6:19 pm
- Forum: Drug Pipeline
- Topic: 1,250 mls of Prednisone a day
- Replies: 5
- Views: 4402
Re: 1,250 mls of Prednisone a day
My neurologist also does a short oral steroid burst. He has told me that the research is not showing an actual benefit to IV vs oral. Side effects to watch out for: GI upset- please take something like ranitidine or pantoprazole to protect your stomach both during the 3 days and for at least a few w...
- Wed Jan 11, 2017 6:01 pm
- Forum: Copaxone
- Topic: Copaxone side effect??
- Replies: 17
- Views: 14037
Re: Copaxone side effect??
When I went back to the follow-up appointment with my neurologist he recommended Copaxone. I quickly replied that I wasn't comfortable with Copaxone due to its tendency to be clastogenic I am curious what you thought was a better treatment option. If it matters at all to you, the clastogenic effect...
- Mon Jan 09, 2017 8:37 am
- Forum: Copaxone
- Topic: Copaxone side effect??
- Replies: 17
- Views: 14037
Re: Copaxone side effect??
When I say he has not heard of it, I mean that in his clinic (large university based MS center with research), this is not a side effect that he has heard of patients complaining. I work in medicine, and it is not unheard of for there to be side effects listed that showed up in research but do not a...
- Sun Jan 08, 2017 10:46 am
- Forum: Copaxone
- Topic: Copaxone side effect??
- Replies: 17
- Views: 14037
Re: Copaxone side effect??
I haven't been on the forum for a long time, but came to ask about this and here is a thread from last summer!! I have always had healthy teeth and have obsessively brushed my teeth since I was a kid. After two years on copaxone, I have gone from needing one crown a year ago (which I didn't do--- oo...
- Sun May 31, 2015 2:45 pm
- Forum: General Discussion
- Topic: Allergic to copaxone after over a year of injections?
- Replies: 37
- Views: 7662
Re: Allergic to copaxone after over a year of injections?
I was having some allergic type site reactions for awhile with copaxone. My neurologist prescribed daily singulair, as there is some anecdotal evidence that it can help with injection reactions. It did help, but changing my injection depth actually completely stopped the reactions and I am no longer...
- Sun May 03, 2015 11:57 am
- Forum: Undiagnosed
- Topic: remittent relapse?
- Replies: 22
- Views: 3284
Re: remittent relapse?
I'm just wondering if I should go ahead and ask for a referral to neurologist in the mean time? Yes- definitely get a referral. It will take a lot of time before a specialist will see a new patient, so its best to get that moving now. Also, once you are involved with a neurologist, they may be able...
- Thu Apr 23, 2015 8:08 pm
- Forum: Copaxone
- Topic: Copaxone When does the pain end?
- Replies: 17
- Views: 20634
Re: Copaxone When does the pain end?
I had excruciating pain with bruising and lumps that would last nearly three weeks. I had a shared solutions nurse come out for a follow up visit and she recommended that I inject deeper. I am pretty tiny at 115 lbs and 5" 6" tall but I now inject manually at a 90 degree angle and the lump...