Search found 26 matches

by aetex
Sat May 06, 2017 5:38 pm
Forum: Introductions
Topic: Newly diagnosed with MS in AZ, Hello!
Replies: 9
Views: 3419

Re: Newly diagnosed with MS in AZ, Hello!

I'm sorry. It sounds like you are dealing with a lot. Have you had a steroid treatment? If not, there is a good chance that the MS clinic will get you on high dose steroids for a few days to temper down your symptoms. In the meantime, stay active, stick to the schedule with the copaxone as well as y...
by aetex
Sat May 06, 2017 8:26 am
Forum: Introductions
Topic: Newly diagnosed with MS in AZ, Hello!
Replies: 9
Views: 3419

Re: Newly diagnosed with MS in AZ, Hello!

Hi-- Welcome to the forum and sorry for all that you are going through. I completely understand your frustration as there is rarely a post on this forum that does not get barraged with Vit D or B12 references. Take it one day at a time. It is good that you are going to an MS specialty clinic as they...
by aetex
Sat May 06, 2017 7:36 am
Forum: General Discussion
Topic: work place accomodation
Replies: 3
Views: 1201

Re: work place accomodation

I think you can keep the conversation limited to "I don't drive." The reason behind it is really none of their business. If pressured, you can say that you have vision problems and you feel safer having family drive so you gave up your license. This does not need to be a discussion about y...
by aetex
Wed Apr 05, 2017 7:48 pm
Forum: Copaxone
Topic: New Copaxone user
Replies: 7
Views: 5011

Re: New Copaxone user

I had horrible reactions when I started. I thought that I was going to the right depth, but it turns out I was going too shallow and causing horrible bruising and hematomas. If you call shared solutions, you can request a nurse to come to your house and do a training session and they can evaluate yo...
by aetex
Sun Mar 12, 2017 3:02 pm
Forum: General Discussion
Topic: Pleasant symptoms
Replies: 2
Views: 1001

Re: Pleasant symptoms

I know that exact leg sensation you are talking about!! I told my neurologist that it feels like my legs are drunk. He wasn't sure what to make of that description lol. I actually don't like the sensation at all... it makes me feel out of control of my body and as if my legs only work by muscle memo...
by aetex
Sun Mar 12, 2017 2:49 pm
Forum: General Discussion
Topic: Who here has a Job?
Replies: 17
Views: 3207

Re: Who here has a Job?

I have a job- 40+ hrs/week in a high stress/mentally exhausting but rewarding position. At the end of the week, I am worthless for any activities (this has become the evening where I am left to cuddle on the couch with my dog and watch Hulu- which is OK with me!). I have been on copaxone for over 2 ...
by aetex
Tue Feb 21, 2017 7:59 pm
Forum: Undiagnosed
Topic: MS-like symptoms after shingles
Replies: 3
Views: 2767

Re: MS-like symptoms after shingles

The lingering neurological effects of shingles are called post herpetic neuralgia. Post herpetic neuralgia can result in pain, numbness, and tingling and can last for many years after the herpes zoster infection. Please read about post herpetic neuralgia and ease your mind. Your doctor may prescribe...
by aetex
Mon Jan 30, 2017 7:29 pm
Forum: Copaxone
Topic: Copaxone side effect??
Replies: 17
Views: 14037

Re: Copaxone side effect??

Disneylover- If you don't trust your provider, please find a new one. Trust is of the utmost importance in a patient-provider relationship. This disease is too much of a beast to be facing it with someone that you don't feel has your back. In all honesty, it sounds like your doctor addressed appropr...
by aetex
Wed Jan 11, 2017 6:19 pm
Forum: Drug Pipeline
Topic: 1,250 mls of Prednisone a day
Replies: 5
Views: 4402

Re: 1,250 mls of Prednisone a day

My neurologist also does a short oral steroid burst. He has told me that the research is not showing an actual benefit to IV vs oral. Side effects to watch out for: GI upset- please take something like ranitidine or pantoprazole to protect your stomach both during the 3 days and for at least a few w...
by aetex
Wed Jan 11, 2017 6:01 pm
Forum: Copaxone
Topic: Copaxone side effect??
Replies: 17
Views: 14037

Re: Copaxone side effect??

When I went back to the follow-up appointment with my neurologist he recommended Copaxone. I quickly replied that I wasn't comfortable with Copaxone due to its tendency to be clastogenic I am curious what you thought was a better treatment option. If it matters at all to you, the clastogenic effect...
by aetex
Mon Jan 09, 2017 8:37 am
Forum: Copaxone
Topic: Copaxone side effect??
Replies: 17
Views: 14037

Re: Copaxone side effect??

When I say he has not heard of it, I mean that in his clinic (large university based MS center with research), this is not a side effect that he has heard of patients complaining. I work in medicine, and it is not unheard of for there to be side effects listed that showed up in research but do not a...
by aetex
Sun Jan 08, 2017 10:46 am
Forum: Copaxone
Topic: Copaxone side effect??
Replies: 17
Views: 14037

Re: Copaxone side effect??

I haven't been on the forum for a long time, but came to ask about this and here is a thread from last summer!! I have always had healthy teeth and have obsessively brushed my teeth since I was a kid. After two years on copaxone, I have gone from needing one crown a year ago (which I didn't do--- oo...
by aetex
Sun May 31, 2015 2:45 pm
Forum: General Discussion
Topic: Allergic to copaxone after over a year of injections?
Replies: 37
Views: 7662

Re: Allergic to copaxone after over a year of injections?

I was having some allergic type site reactions for awhile with copaxone. My neurologist prescribed daily singulair, as there is some anecdotal evidence that it can help with injection reactions. It did help, but changing my injection depth actually completely stopped the reactions and I am no longer...
by aetex
Sun May 03, 2015 11:57 am
Forum: Undiagnosed
Topic: remittent relapse?
Replies: 22
Views: 3284

Re: remittent relapse?

I'm just wondering if I should go ahead and ask for a referral to neurologist in the mean time? Yes- definitely get a referral. It will take a lot of time before a specialist will see a new patient, so its best to get that moving now. Also, once you are involved with a neurologist, they may be able...
by aetex
Thu Apr 23, 2015 8:08 pm
Forum: Copaxone
Topic: Copaxone When does the pain end?
Replies: 17
Views: 20634

Re: Copaxone When does the pain end?

I had excruciating pain with bruising and lumps that would last nearly three weeks. I had a shared solutions nurse come out for a follow up visit and she recommended that I inject deeper. I am pretty tiny at 115 lbs and 5" 6" tall but I now inject manually at a 90 degree angle and the lump...

Go to advanced search