Search found 9 matches

by cjtmn
Fri Oct 21, 2016 6:48 pm
Forum: Plegridy
Topic: Anyone on this?
Replies: 5
Views: 23087

Re: Anyone on this?

I am so sorry I haven't checked back in. I am still on Plegridy and my MRIs in August showed absolutely no change, which is awesome! I'm coming up on my 1 year anniversary of being Dx'd. As for my routine, I do the following: 1. LOTS of water for 2 days before and 2 days after injecting. 2. 440mg Al...
by cjtmn
Sat Aug 27, 2016 3:18 pm
Forum: Plegridy
Topic: Anyone on this?
Replies: 5
Views: 23087

Re: Anyone on this?

I am sorry this is so late - you've likely already made your decision. I have been on Plegridy since February (6 months full dose). I've heard that others who have been on interferons transition quite well. For me, this is my first DMD and it's been a rough adjustment. I had 2 great injections 2 and...
by cjtmn
Tue Oct 20, 2015 8:00 pm
Forum: General Discussion
Topic: MS Diagnosis
Replies: 13
Views: 2297

Re: MS Diagnosis

jkang - I must admit that I am panicking a bit. I am a middle-aged professional with 2 grade schoolers and an amazing husband. I am already feeling guilty for putting my family through this, and I'm petrified about my future professional life. I really need to think in shorter time spans, or the &qu...
by cjtmn
Tue Oct 20, 2015 11:57 am
Forum: General Discussion
Topic: MS Diagnosis
Replies: 13
Views: 2297

Re: MS Diagnosis

It's official - I called my doc & learned that the remaining blood tests were normal, so I asked for them to clarify if I am clinically (officially?) Dx'd with MS, and the nurse confirmed it for me. Regardless, you made an excellent point in another post, lyndacarol, that just because I have MS,...
by cjtmn
Sun Oct 18, 2015 3:04 pm
Forum: General Discussion
Topic: MS Diagnosis
Replies: 13
Views: 2297

Re: MS Diagnosis

Wow - I did not expect that anyone would recall my postings from 1 year ago! Both 2008 and 2014 bouts of Abducens completely cleared up, but I was left with dizziness and oscillopsia last fall for about 3 months. Since January, all dizziness and most of the oscillopsia have cleared. MRIs from 2014 s...
by cjtmn
Sun Oct 18, 2015 10:06 am
Forum: General Discussion
Topic: MS Diagnosis
Replies: 13
Views: 2297

Re: MS Diagnosis

For what it's worth, the LP went fine for me - plan on 24 hours lying flat and doing nothing...then another 3-5 days of really taking it easy. I was doing fine until I lifted a crockpot on Day 2...then the headaches began. Lying down alleviated them as did Excederin. Took about a week to be back to ...
by cjtmn
Sun Oct 18, 2015 8:14 am
Forum: General Discussion
Topic: MS Diagnosis
Replies: 13
Views: 2297

Re: MS Diagnosis

I am in a similar situation. LP, MRIs, and clinical presentation are all consistent with MS. I think the general neurologists exact words were "this really looks like MS." I know I still have a few blood tests that got missed and am meeting with an MS Neuro in 2 weeks (feels like an eterni...
by cjtmn
Mon Nov 10, 2014 6:54 am
Forum: Undiagnosed
Topic: More tests or "wait & see"?
Replies: 4
Views: 1609

Re: More tests or "wait & see"?

Thank you both for your responses. I was also worried about the CRP levels, but my neuro did not really seem concerned calling it "slightly elevated". They would like to test for Sarcoid b/c of the ACE levels, but I have almost none of the symptoms, so I will rule it out as a last effort t...
by cjtmn
Mon Nov 03, 2014 11:05 am
Forum: Undiagnosed
Topic: More tests or "wait & see"?
Replies: 4
Views: 1609

More tests or "wait & see"?

Hi - this is my first post to this forum. I'm curious on your opinions regarding continuing to test for possible MS or just taking a wait & see attitude. A little history: I had a first bout of Abducen's Palsy in 2008 lasting about 3 weeks. Brain MRI w & w/o contrast was completely clean. Al...

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