Search found 7 matches

by kujaw
Tue Dec 14, 2021 8:17 am
Forum: Aubagio (Teriflunomide)
Topic: Aubagio and Hair Loss side effect
Replies: 46
Views: 49222

Re: Aubagio and Hair Loss side effect

Update: My hair has stopped falling out!!! To recap: I started taking aubagio in December 2012. Hair loss noticeably began by middle of April 2013. It is now middle of September and it has stopped. The worst months were April thru June (May was scary!). I have a lot of new hair growth too now - so ...
by kujaw
Wed Apr 05, 2017 6:33 am
Forum: Drug Pipeline
Topic: Fecal microbiota transplantation
Replies: 5
Views: 5939

Re: Fecal microbiota transplantation

I'm wondering if there have been any members of the forum who sought out FMT procedures and what the results have been? I tried to do a google search of the forums but was unable to find any member stories only this thread and the one about the 3 cases in Australia http://www.thisisms.com/forum/gen...
by kujaw
Mon Oct 17, 2016 11:08 am
Forum: Stem Cells
Topic: My Two Year Follow Up HSCT
Replies: 7
Views: 6196

Re: My Two Year Follow Up HSCT

@reallyreally it's almost been a year since your HSCT. How are you feeling now? Anything changed? I'm really curious cause I'll start chemo in January and I'm totally scared.
by kujaw
Wed Oct 12, 2016 1:12 am
Forum: Diet
Topic: HELP me with MS water fasting
Replies: 8
Views: 16265

Re: HELP me with MS water fasting

I was on dr Dąbrowska diet for 6 weeks. It's almost like fasting because you eat ~500 kkcal a day. It relievem many of my symptoms (maybe yes or no MS related, how could I know). My sinuses were healthy for 6 months after, my knee pains were gone, even my flaky skin on right hand was gone. Also many...
by kujaw
Thu Nov 26, 2015 1:47 pm
Forum: Stem Cells
Topic: Unethical for neurologists not to offer patents with MS HSCT
Replies: 2
Views: 2228

Re: Unethical for neurologists not to offer patents with MS

Change topic subject from "MSC" to HSCT! :) Interesting article. I've seen three neuros last time and every one of them just stopped me when I started to talk about stem cells. So unfair.
by kujaw
Thu Oct 29, 2015 1:22 am
Forum: Stem Cells
Topic: My Two Year Follow Up HSCT
Replies: 7
Views: 6196

Re: My Two Year Follow Up HSCT

Great news! I'll have mine next year, hopefully it will halt the disease. Can you compare briefly your symptoms before/after HSCT? And what about fatigue or brain fog? How was it before, how is it now? This is my worst symptom, unability to concentrate more than 5 mins on anything, forgetting many t...
by kujaw
Sun Mar 22, 2015 3:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who are the BIG names in CCSVI ?
Replies: 138
Views: 148832

Re: Who are the BIG names in CCSVI ?

zjac020 wrote:No reply to this? Which centre in Poland has the most experience?
Try there, in my opinion it's the best CCSVI place to go in Poland.

http://www.medicover.pl/hospital/344,ccsvi.htm

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