Search found 602 matches

by TwistedHelix
Mon Sep 28, 2009 7:03 am
Forum: General Discussion
Topic: What has happened to Dom/Twisted Helix?
Replies: 19
Views: 4339

Ooh, it's so good to hear your voices again! Just to give you some insight: it took me about 5 hours to write that previous post, so " lurking" isn't a good idea because I'd be so tempted to join in, there wouldn't be time to do the things which normally take up my day, such as yawning, blinking, an...
by TwistedHelix
Sun Sep 27, 2009 7:37 am
Forum: General Discussion
Topic: What has happened to Dom/Twisted Helix?
Replies: 19
Views: 4339

Hello everyone, I'm deeply touched that you're concerned about my well being but honestly I'm really, really fine. The last 12 months have been particularly difficult for me healthwise, with a seemingly endless round of infections, and the result has been to leave me permanently exhausted so that I ...
by TwistedHelix
Thu Jul 23, 2009 6:15 am
Forum: General Discussion
Topic: Rumours of my death ...
Replies: 11
Views: 3084

Great to hear you, too! Loobie, it's amazing to hear of something going from research to treatment so quickly – obviously because it's a preexisting procedure and not a new drug – I can't wait to hear your progress reports! Bob, Facebook is easier because it requires only brief comments and no thoug...
by TwistedHelix
Thu Jul 23, 2009 5:12 am
Forum: General Discussion
Topic: Rumours of my death ...
Replies: 11
Views: 3084

Rumours of my death ...

… Have been greatly exaggerated. I'm OK! Bob tells me he keeps getting enquiries about my health, so I think I'd better explain. Since November of last year I seem to have had one infection after another: they each knocked me for six and no sooner do I begin recovering from one than another one stri...
by TwistedHelix
Thu Dec 04, 2008 6:38 am
Forum: General Discussion
Topic: MerryChristmas
Replies: 4
Views: 1682

That's exactly what my spasms look like! In the new year I hope to go on tour with "Riverdance".
by TwistedHelix
Thu Dec 04, 2008 6:24 am
Forum: General Discussion
Topic: Server Disruption (and we're back!)
Replies: 2
Views: 1672

Seconded – I actually missed the downtime because I was distracted elsewhere, but this site is so important to so many people and it's easy to forget it's not just " there" by magic: there are people working hard to keep it going, and they deserve our thanks,
by TwistedHelix
Wed Nov 26, 2008 5:27 am
Forum: General Discussion
Topic: I am home!!
Replies: 3
Views: 1750

Sometimes it's easier to open up to people you've only just met: if they react badly you don't risk losing anything, and your new friendships can start off from a position of openness and honesty. Old friends can be harder for lots of reasons: they have to change their perception of someone they tho...
by TwistedHelix
Sun Nov 23, 2008 6:48 am
Forum: General Discussion
Topic: sleep
Replies: 6
Views: 2407

I've often wondered if oxygen deprivation caused by sleep apnea is a primary factor in some cases of MS – certainly blood flow and oxygen delivery are different in MS brains, (sorry: can't remember where I read that, but I know I posted an article some time ago). Oreo, I've just got a brand new plas...
by TwistedHelix
Sun Nov 23, 2008 6:32 am
Forum: General Discussion
Topic: Is MS spine related?
Replies: 8
Views: 3498

For most of my adult life I have had a very stiff neck, with very limited rotation, which I think is being made worse by my more general lack of ability to move and flex and loosen up. If it is very quiet and I turn my head I can hear a horrible gritty sound, as if I have coarse sand between my vert...
by TwistedHelix
Fri Nov 14, 2008 6:47 am
Forum: General Discussion
Topic: Does the FDA hinder progress?
Replies: 5
Views: 2026

Does the FDA hinder progress?

There are two sides to this discussion, (I suppose it wouldn't be much of a discussion if there weren't), demonstrated by the comments at the bottom of the page:

short URL
by TwistedHelix
Fri Nov 14, 2008 6:24 am
Forum: General Discussion
Topic: A pill with a chip?
Replies: 2
Views: 1684

Does it run Windows? If so, it's halfway down the toilet already! If other new technologies are anything to go by, I can imagine that this will spawn ever smaller but increasingly powerful offspring… it might get us used to the idea of having machines inside our bodies and thus pave the way for nano...
by TwistedHelix
Thu Nov 13, 2008 6:55 am
Forum: General Discussion
Topic: Myelin and Netrin-1
Replies: 1
Views: 1823

I thought this rang a bell, and a quick search turned up this:

http://www.thisisms.com/ftopic-4725-previous.html

We often hear of discoveries which sound promising but then disappear from view, so it's nice to know they're following up on Netrin-1,
by TwistedHelix
Mon Nov 10, 2008 7:32 am
Forum: General Discussion
Topic: MS hugs - a rare symptom
Replies: 9
Views: 2619

Unfortunately, doctors who don't know much about MS are not rare at all.

I've heard lots of people talk about MS hugs, but I'm not sure I've ever experienced one myself. I do sometimes feel a bit short of breath and unable to reach the " peak" of a really deep breath, is that the same thing?
by TwistedHelix
Mon Nov 10, 2008 7:23 am
Forum: General Discussion
Topic: Personal circuit
Replies: 7
Views: 2379

" … there is no moving forwards… I bang my head repeatedly searching for my happy place… attempting to live normally then feel disappointed" Oh, Miss Feisty, you've summed up what so many of us feel or have felt so often. You are grieving for what you have lost and fearful for what you might lose, a...
by TwistedHelix
Sun Nov 09, 2008 5:59 am
Forum: General Discussion
Topic: How do I?
Replies: 4
Views: 1751

Hi LiquidSkin, What you describe certainly has all the hallmarks of depression, and that's only to be expected after receiving your diagnosis: it's perfectly normal. Financial worries will also add to the mix. Have you stopped doing all the things you used to enjoy, and if you have, is it because yo...

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