Search found 10 matches

by KLM
Thu Dec 18, 2014 5:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment for Primary Progressive MS?
Replies: 22
Views: 4838

Re: CCSVI Treatment for Primary Progressive MS?

Thanks again Cece it really means a lot to read this and have some positive news to tell her , all the best to you to x
by KLM
Wed Dec 17, 2014 2:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment for Primary Progressive MS?
Replies: 22
Views: 4838

Re: CCSVI Treatment for Primary Progressive MS?

There were 30 patients with primary progressive MS in this prospective nonrandomized study. Everyone was treated for CCSVI. Physical health improvement was seen in 77% of the PPMSers and mental health improvement was seen in 70% of PPMSers. Both RRMS and PPMS fared better than SPMS. Thank you Cece,...
by KLM
Tue Dec 16, 2014 7:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 200027

Re: Post if CCSVI treatment did NOT work for you

Wow, just read the cerebrospinal fluid entry in Wikepedia! The veins and cerebrospinal fluid are intimately linked. Thanking everyone for their posts, have just spent a couple hours on here just reading this one thread, and have found everyones contributons really useful, I still have a lot to read...
by KLM
Tue Dec 16, 2014 5:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 200027

Re:

Hi Willm, I havent read to the end of this discussion as it is long and I thought i might loose the place where your comment is.. so im replying without being full informed about what the rest of people are saying about CCSVI not helping, Im very interested in wether CCSVI will help those with prima...
by KLM
Tue Dec 16, 2014 7:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment for Primary Progressive MS?
Replies: 22
Views: 4838

Re: CCSVI Treatment for Primary Progressive MS?

Robnl wrote:If you live in the us, near NY, dr sclafani is the most experienced ccsvi-doc...
Thanks Robnl, but my sis lives way over in Ireland! :-)
by KLM
Mon Dec 15, 2014 11:54 am
Forum: General Discussion
Topic: Progressive MS and the Spine
Replies: 4
Views: 1983

Re: Progressive MS and the Spine

This was very interesting read and really resounded with my sisters personal history (as I said in my thread she has primary progressive MS "CCSVI treatment for primary progressive MS"). My sister also rode horses but I don't think ever had a severe fall, what she did have and never fully ...
by KLM
Mon Dec 15, 2014 11:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment for Primary Progressive MS?
Replies: 22
Views: 4838

Re: CCSVI Treatment for Primary Progressive MS?

Well, my angioplasty in 2010 did help...cognitive and mentally. But not physically. So, in my opinion; angio could help, but only partly....there is more! And thank you Robnl, that is also useful to know as my sister says her memory is now being affected. So any improvements in her condition who be...
by KLM
Mon Dec 15, 2014 11:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment for Primary Progressive MS?
Replies: 22
Views: 4838

Re: CCSVI Treatment for Primary Progressive MS?

Greetings: I think PPMS originates primarily in degeneration of the spine, not a "reflux"of veinous blood into the CNS, and angioplasty would be a mistake. See my Thisisms.com post "Progressive MS and the Spine". Dec 2, 2014 under General discussion. upright doc discusses the is...
by KLM
Mon Dec 15, 2014 9:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment for Primary Progressive MS?
Replies: 22
Views: 4838

CCSVI Treatment for Primary Progressive MS?

Hi sorry if Im replicating (I did do a search and go to the newbie section first). My sister has Primary Progressive MS, I have just been to see a consultant who does CCSVI, however he said he had little experience of doing CCSVI on primary progressive MS, although they have had some positive result...

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