Search found 7 matches

by odin1243
Tue Aug 13, 2019 2:49 pm
Forum: General Discussion
Topic: Hearing problems
Replies: 1
Views: 378

Hearing problems

Hello, has anyone experienced difficulties with central auditory processing?
by odin1243
Mon Jun 11, 2018 10:35 am
Forum: General Discussion
Topic: If have to discontinue Tysabri
Replies: 5
Views: 1400

Re: If have to discontinue Tysabri

Thanks to those who have replied. It looks like IRIS seems to be a problem only for those who had to discontinue Tysabri due to problems with PML. I noticed that the quote about IRIS was from 2004, so I wasn't sure if that information was still relevant. Is the "rebound effect" the same as IRIS?
by odin1243
Tue Jun 05, 2018 10:57 am
Forum: General Discussion
Topic: If have to discontinue Tysabri
Replies: 5
Views: 1400

If have to discontinue Tysabri

Hello, My doctor is concerned about my staying on Tysabri. I have been on it for over nine years, but have been doing well. I am JC positive. Has anyone had ti discontinue Tysabri? If so, what medication did your doctor put you on? Have you had any difficulties?
by odin1243
Mon Jun 04, 2018 1:19 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Tysabri long-term use anyone?
Replies: 20
Views: 20054

Re: Tysabri long-term use anyone?

Thanks everyone who took the time to reply. My doctor recently contacted me to ask if I wanted to continue on the Tysabri. This was after I had some lab work and another test fo the JC virus. She reminded me that since I have been on Tysabri since 2008 my risk is now 1/100 and will continue to incre...
by odin1243
Fri May 04, 2018 1:42 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Tysabri long-term use anyone?
Replies: 20
Views: 20054

Re: Tysabri long-term use anyone?

I have been on Tysabri since 2008. I am JC positive, but have elected to stay on Tysabri since I have been doing well. My neuro suggested I get my infusions every other month to reduce the risk of developing PML, so that's what I have been doing for a a little over a year. I feel the benefits of dev...
by odin1243
Fri Apr 20, 2018 2:58 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Tysabri long-term use anyone?
Replies: 20
Views: 20054

Re: Tysabri long-term use anyone?

I have been on Tysabri since 2008. I have tested JC virus positive. My Neuro suggested I get my infusions very 8 weeks instead of four weeks to reduce my risk of getting PML. I have been doing that for a while now, and I'm doing well. I plan on staying on Tysabri and feel the benefits of being on Ty...
by odin1243
Wed Dec 31, 2014 2:34 pm
Forum: Daily Life
Topic: Tysabri costs vary dramatically.
Replies: 0
Views: 2072

Tysabri costs vary dramatically.

Have you found that the costs of Tysabri can vary dramatically , depending on insurance coverage and/or location?

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