Search found 7 matches
- Tue Aug 13, 2019 2:49 pm
- Forum: General Discussion
- Topic: Hearing problems
- Replies: 1
- Views: 908
Hearing problems
Hello, has anyone experienced difficulties with central auditory processing?
- Mon Jun 11, 2018 10:35 am
- Forum: General Discussion
- Topic: If have to discontinue Tysabri
- Replies: 5
- Views: 2145
Re: If have to discontinue Tysabri
Thanks to those who have replied. It looks like IRIS seems to be a problem only for those who had to discontinue Tysabri due to problems with PML. I noticed that the quote about IRIS was from 2004, so I wasn't sure if that information was still relevant. Is the "rebound effect" the same as...
- Tue Jun 05, 2018 10:57 am
- Forum: General Discussion
- Topic: If have to discontinue Tysabri
- Replies: 5
- Views: 2145
If have to discontinue Tysabri
Hello, My doctor is concerned about my staying on Tysabri. I have been on it for over nine years, but have been doing well. I am JC positive. Has anyone had ti discontinue Tysabri? If so, what medication did your doctor put you on? Have you had any difficulties?
- Mon Jun 04, 2018 1:19 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Tysabri long-term use anyone?
- Replies: 21
- Views: 29027
Re: Tysabri long-term use anyone?
Thanks everyone who took the time to reply. My doctor recently contacted me to ask if I wanted to continue on the Tysabri. This was after I had some lab work and another test fo the JC virus. She reminded me that since I have been on Tysabri since 2008 my risk is now 1/100 and will continue to incre...
- Fri May 04, 2018 1:42 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Tysabri long-term use anyone?
- Replies: 21
- Views: 29027
Re: Tysabri long-term use anyone?
I have been on Tysabri since 2008. I am JC positive, but have elected to stay on Tysabri since I have been doing well. My neuro suggested I get my infusions every other month to reduce the risk of developing PML, so that's what I have been doing for a a little over a year. I feel the benefits of dev...
- Fri Apr 20, 2018 2:58 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Tysabri long-term use anyone?
- Replies: 21
- Views: 29027
Re: Tysabri long-term use anyone?
I have been on Tysabri since 2008. I have tested JC virus positive. My Neuro suggested I get my infusions very 8 weeks instead of four weeks to reduce my risk of getting PML. I have been doing that for a while now, and I'm doing well. I plan on staying on Tysabri and feel the benefits of being on Ty...
- Wed Dec 31, 2014 2:34 pm
- Forum: Daily Life
- Topic: Tysabri costs vary dramatically.
- Replies: 0
- Views: 2450
Tysabri costs vary dramatically.
Have you found that the costs of Tysabri can vary dramatically , depending on insurance coverage and/or location?