Search found 17 matches
- Mon Feb 16, 2015 1:19 pm
- Forum: Mental & Spiritual Health
- Topic: Your spirituality and MS
- Replies: 2
- Views: 10352
Your spirituality and MS
I know we all have different beliefs on this forum but was wondering if everyone could list off things that helps them cope spiritually/religiously on rough days. I got my official MS diagnosis 11 days ago, im only 23 years old and even though it has been caught early and I'm blessed, I have days wh...
- Mon Feb 16, 2015 12:22 pm
- Forum: Tecfidera (BG-12, Dimethyl fumarate)
- Topic: Starting Tecfidera Soon
- Replies: 2
- Views: 2886
Re: Starting Tecfidera Soon
Okay, after some informative research on top of these links, I've chosen personally to start rebif. Thank you for the insight. My mother was on tysabri and I had no idea the same company made the two. PML is something I'd rather not worry about unless absolutely necessary. I know its rare but I woul...
- Sat Feb 14, 2015 4:44 pm
- Forum: Tecfidera (BG-12, Dimethyl fumarate)
- Topic: Starting Tecfidera Soon
- Replies: 2
- Views: 2886
Starting Tecfidera Soon
Hey everyone I'm a new MS diagnosed 23 year old choosing to have tecfidera ordered as my first medication. Do any of you have any advice for me? Is this a good option for my first medication? I appreciate the support.
- Sat Feb 14, 2015 4:27 pm
- Forum: Under 25 with MS
- Topic: 23 Years Old, Scared
- Replies: 33
- Views: 33152
Re: 23 Years Old, Scared
It definitely is a horrible winter here! And im always open to advice. I recently got my IUD Paraguard inserted for birth control so exercising has hurt the past week...with the cold snap we've been having I haven't really been walking outside or I would go for a nice walk. Does anyone know some eas...
- Sat Feb 14, 2015 1:22 am
- Forum: Under 25 with MS
- Topic: 23 Years Old, Scared
- Replies: 33
- Views: 33152
Re: 23 Years Old, Scared
Update: got my ms diagnosis. They did all the blood work you suggested (the homocysteine, Hcy, and methylmalonic acid, MMA, tests) all looked normal. I don't have a b12 deficiency, thought my PCP did a vitamin D check but they apparently didn't so my neuro did, I'm at a 15 and now will be taking 5,0...
- Sun Jan 18, 2015 10:17 am
- Forum: Under 25 with MS
- Topic: 23 Years Old, Scared
- Replies: 33
- Views: 33152
Re: 23 Years Old, Scared
Messaged my doc personally on the website and requested those two blood panels you guys suggested and simply told her it would be appreciated to ease my mind. I should get a response in a day or so to get that done
THANK YOU THANK YOU for everything I know I keep saying it but I truly mean it
THANK YOU THANK YOU for everything I know I keep saying it but I truly mean it
- Sat Jan 17, 2015 9:28 pm
- Forum: Under 25 with MS
- Topic: 23 Years Old, Scared
- Replies: 33
- Views: 33152
Re: 23 Years Old, Scared
That is a lot of information so thank you both so much again. I didn't know they tested b12 in the spinal fluid but I will be firm but nice to have them test my spinal fluid for my b12 as well saying I would like it double checked this way and that it would ease my mind. I fear that they would think...
- Sat Jan 17, 2015 11:22 am
- Forum: Under 25 with MS
- Topic: 23 Years Old, Scared
- Replies: 33
- Views: 33152
Re: 23 Years Old, Scared
Okay this really interests me. So you both are saying that my b12 is below the recommended level of the author? I prefer to wait for the spinal tap before I jump to the b12 side of things, I do believe supplements are necessary at this point when I do talk to my doctor. Don't mind my foggy mindednes...
- Fri Jan 16, 2015 8:26 pm
- Forum: Under 25 with MS
- Topic: 23 Years Old, Scared
- Replies: 33
- Views: 33152
Re: 23 Years Old, Scared
I think it was pretty basic, because it simply stated I have a 2.0 for a magnesium level. Looked in my metabolic panel. My calcium level is currently a 9.8 I don't know what any of the levels mean, but I will talk to the doctor about vitamin D supplements and a multivitamin. What multivitamin is bes...
- Fri Jan 16, 2015 3:19 pm
- Forum: Under 25 with MS
- Topic: 23 Years Old, Scared
- Replies: 33
- Views: 33152
Re: 23 Years Old, Scared
I am an open book when it comes to my health but I appreciate you making sure first. :-D My MCV count (I looked online where I can log in and see my test results) was a 86.6 here is what it says for what they tested in my bloodwork that included my MCV: CBC + DIFFERENTIAL is what they called it. Leu...
- Fri Jan 16, 2015 9:52 am
- Forum: Under 25 with MS
- Topic: 23 Years Old, Scared
- Replies: 33
- Views: 33152
Re: 23 Years Old, Scared
I just see a lot of the same symptoms that my mother had prior to her diagnosis and I am almost 100% sure I do have it, not to be a downer. When I was younger the neurologist refused to diagnose me at that time in my life because of the one small lesion that was found. I know it possibly could be ot...
- Thu Jan 15, 2015 6:53 pm
- Forum: Under 25 with MS
- Topic: I am 20 years old and Living my life DURRING an exacerbation
- Replies: 19
- Views: 24941
Re: I am 20 years old and Living my life DURRING an exacerba
Matt your post has given me some clarity. It's good to know that my life isn't going to stay like this forever and that I will overcome this. I am 23 and feel less alone knowing there are others around my age going through this. You have came a long ways, keep fighting, and I am so happy to see this...
- Thu Jan 15, 2015 6:46 pm
- Forum: Under 25 with MS
- Topic: 23 Years Old, Scared
- Replies: 33
- Views: 33152
Re: 23 Years Old, Scared
Thank you so much for the information... swimming sounds like the best idea for exercise I've gotten so far and I really think I should get a membership at the YMCA so I can swim there. I was feeling hopeless for exercise because everything feels so overwhelming right now. I'll look into that book a...
- Thu Jan 15, 2015 11:38 am
- Forum: Mental & Spiritual Health
- Topic: MS and Your Pets
- Replies: 18
- Views: 30033
Re: MS and Your Pets
I have a grey maine coon cat named Zombie and he is my world! Love him so much!
- Thu Jan 15, 2015 11:22 am
- Forum: Under 25 with MS
- Topic: Relationships?
- Replies: 10
- Views: 15548
Re: Relationships?
I'm right in the middle of an MS diagnosis, and met a guy who was really kind. When he found out I possibly have MS he stated that he wasn't going to judge me for something I can't control. I hope he will keep his word, because people who are accepting of a person with MS seem to be hard to find. My...