Search found 9 matches
- Thu Apr 23, 2015 8:32 pm
- Forum: Tecfidera (BG-12, Dimethyl fumarate)
- Topic: Biogen announces latest Tecfidera data
- Replies: 2
- Views: 2527
Re: Biogen announces latest Tecfidera data
I have been on it for over a year and just recently got my first MRI to check up on it - NO NEW lesions at all, no activity of any kind. I usually have side effects to everything, but not this. i had flushing of the face for one hour the first day and that was absolutely all. go figure. but lucky me...
- Thu Apr 23, 2015 4:50 pm
- Forum: Gilenya
- Topic: may have to start Gilenya
- Replies: 1
- Views: 4405
may have to start Gilenya
I registered on this forum largely to find people taking Gilenya and ask about how likely side effects to it are. And WHAT they are most likely to be. personally I am the side effects queen - to almost all pharmaceuticals. my entire ms history is one with a wide trail of discarded meds I could not t...
- Thu Apr 23, 2015 4:39 pm
- Forum: General Discussion
- Topic: HELP with posting + what is subscribing?
- Replies: 3
- Views: 1054
Re: HELP with posting + what is subscribing?
well, as that DID work, and with your tips, I think I 'll see if I can't just muddle thru. if I get stuck again, i'll get back to you. it sounds like you will be able to un-muddle my gray matter if need be!
many thank yous!
many thank yous!
- Thu Apr 23, 2015 4:35 pm
- Forum: Introductions
- Topic: new to this is my ms but i wish it weren't
- Replies: 4
- Views: 2047
Re: new to this is my ms but i wish it weren't
that is encouraging. after reading all the side effects they post, it is particularly so.
thank you for taking the time to ask for me!!!!!
thank you for taking the time to ask for me!!!!!
- Thu Apr 23, 2015 6:57 am
- Forum: General Discussion
- Topic: Leg spasticity?
- Replies: 3
- Views: 992
Re: Leg spasticity?
that is just exactly the way my legs are all the time. and my feet are one cold one hot and they switch. I think it is due to the spasticity fooling with the blood vessels, but even at the big ms clinic at UW in Washington State, they never could really explained it. in the case of my feet it is als...
- Thu Apr 23, 2015 6:37 am
- Forum: General Discussion
- Topic: HELP with posting + what is subscribing?
- Replies: 3
- Views: 1054
HELP with posting + what is subscribing?
when I look at my posts, there are 3. one I initiated in introductions. but when I look at the thread I posted on, pktpkt it isn't there. i see "subscription", but have no clue what that is. (I have not been on a forum in quite a few years.) I posted on another thread, and that post IS THE...
- Wed Apr 22, 2015 9:12 pm
- Forum: Gilenya
- Topic: A severe side effect response to gilenya
- Replies: 13
- Views: 13175
Re: A severe side effect response to gilenya
I registered on this forum to find people taking Gilenya and ask about how likely side effects to it are. personally I am the side effects queen - to almost all pharmaceuticals. my entire ms history is one with a wide trail of discarded meds I could not tolerate. when I can finally manage to find on...
- Wed Apr 22, 2015 6:40 am
- Forum: Introductions
- Topic: new to this is my ms but i wish it weren't
- Replies: 4
- Views: 2047
new to this is my ms but i wish it weren't
hi, I am curious to find people on Gilenya and find out how likely side effects to it are. personally I am the side effects queen - to almost all pharmaceuticals. my entire ms history is one with a wide trail of discarded meds I could not tolerate. fortunately I was on Novantrone and Copaxone which ...
- Wed Apr 22, 2015 6:00 am
- Forum: Introductions
- Topic: Dx rrms but very scared its ppms. Opinions needed.
- Replies: 33
- Views: 7582
Re: Dx rrms but very scared its ppms. Opinions needed.
Youarethecure is sure right on aut that. I'm sorry - I haven't introduced my new-to-here-self yet, but got caught up in this thread. I have to say that the very worst enemy of ms , even more so than heat or poor health is anxiety and/or STRESS. it will go STRAIGHT to your weakest ms point, ie. legs ...