Search found 41 matches

by EricDrake
Tue Feb 21, 2017 1:00 am
Forum: Regimens
Topic: Just Started Tecfidera
Replies: 13
Views: 5384

Re: Just Started Tecfidera

My girlfriend also takes Tecfidera but she skipped the aspirin (maybe she used it a few times in the first weeks when redness was more serious), what I would also suggest is to drink a lot of water and make sure that you sleep enough, when she can't sleep enough and is tired it is more likely that t...
by EricDrake
Fri Oct 09, 2015 1:18 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Roche drug shows promise for less common form of MS
Replies: 3
Views: 2497

Re: Roche drug shows promise for less common form of MS

Swiss drugmaker Roche has said its experimental treatment for multiple sclerosis performed better in a late-stage clinical trial than a commonly used therapy for the most prevalent form of the condition... Read More - http://www.ms-uk.org/MSnews ...Roche compared ocrelizumab with a placebo ... :lol...
by EricDrake
Thu Oct 01, 2015 10:13 pm
Forum: Ocrevus (Ocrelizumab)
Topic: New drug reduces progression for primary progressive MS....
Replies: 22
Views: 6314

Re: New drug reduces progression for primary progressive MS.

cheerleader wrote: MSBro is absolutely right---12 weeks is nothing.
Just what is acceptable risk for people with MS? Shouldn't they be told the risks?
cheer
Seriously have you even read the artice or what I have written, it was not tested for 12 weeks. Please read before commenting stuff like that....
by EricDrake
Wed Sep 30, 2015 10:36 pm
Forum: Ocrevus (Ocrelizumab)
Topic: New drug reduces progression for primary progressive MS....
Replies: 22
Views: 6314

Re: New drug reduces progression for primary progressive MS.

Isn't this drug similar to the type of drug that Tysabri belongs? And the safety results were taken over a 12 week period which hardly qualifies for anything! I sure hope they do their homework a lot better than what happened with Tysabri before they ever release this medication. If you check the s...
by EricDrake
Mon Sep 07, 2015 4:58 am
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: Progress
Replies: 4
Views: 3347

Re: Progress

If it really helps in repairing myelin then on long term it could even help more, We still have to wait for other results of the study to know this. Probably it justs stops/slows progression so you body has a chance to heal again, that would be a win already for most of the people until they found s...
by EricDrake
Tue Jul 14, 2015 6:11 am
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: VITAMIN B7 FOR PMS
Replies: 13
Views: 4048

Re: VITAMIN B7 FOR PMS

Hi Seeva. I can't open the website. Says page not found. I'm interested in reading it since I will be starting Biotin soon. My neuro didn't object but didn't no anything about the study but then he's not a MS specialist. Thanks. Hi nellie, If you are not a member already I suggest you to join this ...
by EricDrake
Mon Jul 13, 2015 9:09 am
Forum: Rituxan (Rituximab)
Topic: "Inexpensive" B cell depletion. Low dose IT rituxan...
Replies: 2
Views: 3552

Re: "Inexpensive" B cell depletion. Low dose IT rituxan...

Strange that they are still investigating rituximab in PMS, as far as I know they already had a trial for that: http://www.ncbi.nlm.nih.gov/pubmed/19847908 I mean the old one shown some minor results but not such a big breakthrough and this new study does not mention anything about disease progressi...
by EricDrake
Sat Jul 11, 2015 8:04 am
Forum: Daily Life
Topic: MS has changed me
Replies: 10
Views: 3699

Re: MS has changed me

Excersising and avoiding people with negative attitude is really important to keep you in mood I agree. After my diagnosis I want to a psychologist. I was always skeptical about psychology but I wanted to give it a try and so far I think it was a good choice, we talked about my issues and then he to...
by EricDrake
Sat Jul 11, 2015 7:51 am
Forum: General Discussion
Topic: my MRI
Replies: 3
Views: 778

Re: my MRI

EDSS score – 3.5, 2.5 after treatment. By treatment you mean steroids I guess, as far as I know they are not so effective in ppms/spms because there is less inflammation going on there so if it worked for you it might indicate rrms. Do you think it is ppms because you have no brain lesions?, I have...
by EricDrake
Sat Jul 11, 2015 12:07 am
Forum: Rebif
Topic: Should i take Rebif?
Replies: 8
Views: 4488

Re: Should i take Rebif?

My advice as an 'MS veteran' of 25 years is NO don't take any drug. None of them have been proven to have any effect in long term studies. I have never taken any disease modifying drugs and I am symptom free after being treated for CCSVI and cranio-dental & skeletal asymmetries. Physical problems, ...
by EricDrake
Fri Jul 10, 2015 11:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Settings for an Effective Treatment of Multiple Sclerosis
Replies: 13
Views: 2211

Re: Settings for an Effective Treatment of Multiple Sclerosi

"I dont understand it why would it mean that it is not an "auto-immune disease" Autoimmunity in MS is an unproven myth. There is no evidence our immune systems are attacking our nerves. In 2004 Prineas & Barnett proved that the immune cells appeared only AFTER damage occurs in the brain. They are d...
by EricDrake
Fri Jul 10, 2015 7:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Settings for an Effective Treatment of Multiple Sclerosis
Replies: 13
Views: 2211

Re: Settings for an Effective Treatment of Multiple Sclerosi

"I dont understand it why would it mean that it is not an "auto-immune disease" Autoimmunity in MS is an unproven myth. There is no evidence our immune systems are attacking our nerves. In 2004 Prineas & Barnett proved that the immune cells appeared only AFTER damage occurs in the brain. They are d...
by EricDrake
Fri Jul 10, 2015 5:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Settings for an Effective Treatment of Multiple Sclerosis
Replies: 13
Views: 2211

Re: Settings for an Effective Treatment of Multiple Sclerosi

WHY ISN'T ANYONE TALKING ABOUT THIS AND IT'S SIGNIFICANCE TO CCSVI?? New research destroys the auto-immune model of Multiple Sclerosis The Journal of Experimental Medicine said it best in their recent tweet: “Decades of medical theory which considered the brain as different from other organs of the...
by EricDrake
Thu Jul 09, 2015 2:01 am
Forum: Rebif
Topic: Should i take Rebif?
Replies: 8
Views: 4488

Re: Should i take Rebif?

Hi All, I've just registered and want to share my story and concerns. I'm 38 old female married with 3 kids...I have been active working in the development field in the developing countries. Feb 2015 i got my first attack and in the hospital they told me probably you have MS, i've visited more than...