Search found 441 matches

by bluesky63
Sat May 10, 2014 8:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The Driscoll Theory explains all of my health problems
Replies: 10
Views: 4640

Re: The Driscoll Theory explains all of my health problems

Hi there! I have not signed in for a long time but I really wanted to say a (very) little bit about Ehlers-Danlos. If you search the forum you will see that we have had some great discussions about this in the past. I believe there is no doubt about the connection between EDS and "MS." Dr. Diana has...
by bluesky63
Fri Apr 13, 2012 6:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NICE IPG420 - CCSVI Procedure allowed in UK - 28Mar12
Replies: 40
Views: 6577

Re: NICE Allows CCSVI Procedure in UK 28Mar12

Great to hear the outcome. First time I've participated with NICE this way. I put my dual citizenship to good use for once. :-)
by bluesky63
Fri Sep 23, 2011 1:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Parallel universe: pelvic congestion syndrome
Replies: 15
Views: 6145

Parallel universe: pelvic congestion syndrome

In a parallel universe, there is a condition known as Pelvic Congestion Syndrome that bears an eerie resemblance to CCSVI. I just had a strange but interesting appointment in which I learned a thing or two about the pelvis. History: I thought I had an ovarian cyst, or maybe I was just dying of chron...
by bluesky63
Fri Sep 23, 2011 12:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1638875

Re: DrSclafani answers some questions

Welcome back! I am going to make a separate post about pelvic congestion because I don't want to clutter up this thread, especially since I have some specific personal stuff that should be separate from that. The more I see of vascular information the more deep respect I have for what an art it is -...
by bluesky63
Fri Sep 09, 2011 2:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1638875

Re: DrSclafani answers some questions

Wow, Cece, that's a lot of info packed into that paragraph! :-) I think I may have been checked for MT bbut definitely not for renal. I feel like I'm in nauseating labor with a bonus of chronic appendicitis and cement legs. Yuck. Looking forward to figuring it out, whatever the cause.
by bluesky63
Fri Sep 09, 2011 5:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1638875

Re: DrSclafani answers some questions

Ah, I didn't realize about the vacation. I hope he is having a wonderful time. :-) Thanks for the replies. I am horrified by what happened to your father, my dear NHE! And I am baffled by the conflicting issues here -- open up a vein? seal off a vein? stenosed veins? dilated veins? And I'm jittery a...
by bluesky63
Thu Sep 08, 2011 4:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1638875

Re: DrSclafani answers some questions

Greetings. I don't know if this is an area that relates or not, but here goes. Without the entire back story, I was told today by a gynecologist that I am being referred to the local IR for enlarged and prominent pelvic veins (detected on an ultrasound done for other reasons). I was surprised -- I'v...
by bluesky63
Sun Aug 28, 2011 4:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The Chinese and MS
Replies: 26
Views: 3679

I wonder if you could find statistics on say, Canadian people who live in China and eat a traditional Chinese diet. The two sets of data together would be interesting. T. Colin Campbell has a great point in his interview that food needs to be considered "whole," as part of a whole diet, not as speci...
by bluesky63
Wed Aug 24, 2011 4:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Restenosis or SUPER Exacerbation or???--Please READ
Replies: 38
Views: 5546

Greetings from the epicenter of the earthquake. I am so, so sorry to hear of your troubles. If your flow was decent earlier this year, who knows what is going on now? There is so much to unravel. I also had a dramatic downturn several months after angio, and thought the worst. The good news is that ...
by bluesky63
Tue Aug 23, 2011 4:41 pm
Forum: General Discussion
Topic: wheelchairs?
Replies: 7
Views: 1333

I cannot stress enough how important it is to have professional advice from a physical therapist familiar with MS when you get a wheelchair. The right fit, angles, wheels, cushions, materials, etc. can make all the difference. Using a chair does not mean you need to become deconditioned. It means yo...
by bluesky63
Fri Aug 19, 2011 4:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: do you (or your mom) have records of your head size as baby?
Replies: 5
Views: 1355

Actually, this is fascinating -- how all of these wide-ranging factors might come together from so many different streams to create the one awful thing called "multiple sclerosis," with each of them being, as Dr. Dake termed it, a promoter. And yes, Cece, as you indicated earlier, any individual's e...
by bluesky63
Wed Aug 10, 2011 3:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 120677

I absolutely have to weigh in on drinking a glass of water -- I was astounded to have this as an entirely unexpected benefit of venous angioplasty. I could drink a full glass of water, without stopping, for the first time in many years, where before I would just gasp through it. Along with that I co...
by bluesky63
Mon Aug 08, 2011 12:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PRIVATE MESSAGE
Replies: 20
Views: 3214

Fee, I also have a son called Con. :-)

There wasn't that helpful now. :-)
by bluesky63
Fri Aug 05, 2011 4:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: one year ago today: very brief note :-)
Replies: 25
Views: 3845

Thank you to everyone who has read this and offered such positive energy -- and for taking the time to write to me here, a special thank you to Michelle (an inspiration!), Johnson, 1eye, Trish317, msJen, LR1234, hannakat, coach, Cece, Happy Poet (you are being far too hard on yourself!!), hope410, m...
by bluesky63
Fri Jul 29, 2011 9:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: one year ago today: very brief note :-)
Replies: 25
Views: 3845

one year ago today: very brief note :-)

Greetings to the CCSVI forum. I last posted in May, during a period in which I was experiencing some scary symptoms. And yet here I am, still, on the one-year anniversary of a very thorough venous angioplasty with an incredible team -- an almost five-hour procedure that changed my life. From first c...