Search found 441 matches
- Sat May 10, 2014 8:15 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: The Driscoll Theory explains all of my health problems
- Replies: 10
- Views: 5911
Re: The Driscoll Theory explains all of my health problems
Hi there! I have not signed in for a long time but I really wanted to say a (very) little bit about Ehlers-Danlos. If you search the forum you will see that we have had some great discussions about this in the past. I believe there is no doubt about the connection between EDS and "MS." Dr....
- Fri Apr 13, 2012 6:30 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: NICE IPG420 - CCSVI Procedure allowed in UK - 28Mar12
- Replies: 40
- Views: 8823
Re: NICE Allows CCSVI Procedure in UK 28Mar12
Great to hear the outcome. First time I've participated with NICE this way. I put my dual citizenship to good use for once.
- Fri Sep 23, 2011 1:00 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Parallel universe: pelvic congestion syndrome
- Replies: 15
- Views: 7761
Parallel universe: pelvic congestion syndrome
In a parallel universe, there is a condition known as Pelvic Congestion Syndrome that bears an eerie resemblance to CCSVI. I just had a strange but interesting appointment in which I learned a thing or two about the pelvis. History: I thought I had an ovarian cyst, or maybe I was just dying of chron...
- Fri Sep 23, 2011 12:47 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2348917
Re: DrSclafani answers some questions
Welcome back! I am going to make a separate post about pelvic congestion because I don't want to clutter up this thread, especially since I have some specific personal stuff that should be separate from that. The more I see of vascular information the more deep respect I have for what an art it is -...
- Fri Sep 09, 2011 2:13 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2348917
Re: DrSclafani answers some questions
Wow, Cece, that's a lot of info packed into that paragraph! I think I may have been checked for MT bbut definitely not for renal. I feel like I'm in nauseating labor with a bonus of chronic appendicitis and cement legs. Yuck. Looking forward to figuring it out, whatever the cause.
- Fri Sep 09, 2011 5:55 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2348917
Re: DrSclafani answers some questions
Ah, I didn't realize about the vacation. I hope he is having a wonderful time. :-) Thanks for the replies. I am horrified by what happened to your father, my dear NHE! And I am baffled by the conflicting issues here -- open up a vein? seal off a vein? stenosed veins? dilated veins? And I'm jittery a...
- Thu Sep 08, 2011 4:12 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2348917
Re: DrSclafani answers some questions
Greetings. I don't know if this is an area that relates or not, but here goes. Without the entire back story, I was told today by a gynecologist that I am being referred to the local IR for enlarged and prominent pelvic veins (detected on an ultrasound done for other reasons). I was surprised -- I'v...
- Sun Aug 28, 2011 4:05 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: The Chinese and MS
- Replies: 26
- Views: 5127
- Wed Aug 24, 2011 4:15 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Restenosis or SUPER Exacerbation or???--Please READ
- Replies: 38
- Views: 8182
Greetings from the epicenter of the earthquake. I am so, so sorry to hear of your troubles. If your flow was decent earlier this year, who knows what is going on now? There is so much to unravel. I also had a dramatic downturn several months after angio, and thought the worst. The good news is that ...
- Tue Aug 23, 2011 4:41 pm
- Forum: General Discussion
- Topic: wheelchairs?
- Replies: 7
- Views: 1994
I cannot stress enough how important it is to have professional advice from a physical therapist familiar with MS when you get a wheelchair. The right fit, angles, wheels, cushions, materials, etc. can make all the difference. Using a chair does not mean you need to become deconditioned. It means yo...
- Fri Aug 19, 2011 4:46 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: do you (or your mom) have records of your head size as baby?
- Replies: 5
- Views: 1839
- Wed Aug 10, 2011 3:01 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Cece's turn
- Replies: 722
- Views: 159194
I absolutely have to weigh in on drinking a glass of water -- I was astounded to have this as an entirely unexpected benefit of venous angioplasty. I could drink a full glass of water, without stopping, for the first time in many years, where before I would just gasp through it. Along with that I co...
- Mon Aug 08, 2011 12:49 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: PRIVATE MESSAGE
- Replies: 20
- Views: 4421
- Fri Aug 05, 2011 4:34 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: one year ago today: very brief note :-)
- Replies: 25
- Views: 5668
Thank you to everyone who has read this and offered such positive energy -- and for taking the time to write to me here, a special thank you to Michelle (an inspiration!), Johnson, 1eye, Trish317, msJen, LR1234, hannakat, coach, Cece, Happy Poet (you are being far too hard on yourself!!), hope410, m...
- Fri Jul 29, 2011 9:27 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: one year ago today: very brief note :-)
- Replies: 25
- Views: 5668
one year ago today: very brief note :-)
Greetings to the CCSVI forum. I last posted in May, during a period in which I was experiencing some scary symptoms. And yet here I am, still, on the one-year anniversary of a very thorough venous angioplasty with an incredible team -- an almost five-hour procedure that changed my life. From first c...