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Hi there! I have not signed in for a long time but I really wanted to say a (very) little bit about Ehlers-Danlos. If you search the forum you will see that we have had some great discussions about this in the past. I believe there is no doubt about the connection between EDS and "MS." Dr....

Great to hear the outcome. First time I've participated with NICE this way. I put my dual citizenship to good use for once.

In a parallel universe, there is a condition known as Pelvic Congestion Syndrome that bears an eerie resemblance to CCSVI. I just had a strange but interesting appointment in which I learned a thing or two about the pelvis. History: I thought I had an ovarian cyst, or maybe I was just dying of chron...

Welcome back! I am going to make a separate post about pelvic congestion because I don't want to clutter up this thread, especially since I have some specific personal stuff that should be separate from that. The more I see of vascular information the more deep respect I have for what an art it is -...

Wow, Cece, that's a lot of info packed into that paragraph! I think I may have been checked for MT bbut definitely not for renal. I feel like I'm in nauseating labor with a bonus of chronic appendicitis and cement legs. Yuck. Looking forward to figuring it out, whatever the cause.

Ah, I didn't realize about the vacation. I hope he is having a wonderful time. :-) Thanks for the replies. I am horrified by what happened to your father, my dear NHE! And I am baffled by the conflicting issues here -- open up a vein? seal off a vein? stenosed veins? dilated veins? And I'm jittery a...

Greetings. I don't know if this is an area that relates or not, but here goes. Without the entire back story, I was told today by a gynecologist that I am being referred to the local IR for enlarged and prominent pelvic veins (detected on an ultrasound done for other reasons). I was surprised -- I'v...

I wonder if you could find statistics on say, Canadian people who live in China and eat a traditional Chinese diet. The two sets of data together would be interesting. T. Colin Campbell has a great point in his interview that food needs to be considered "whole," as part of a whole diet, no...

Greetings from the epicenter of the earthquake. I am so, so sorry to hear of your troubles. If your flow was decent earlier this year, who knows what is going on now? There is so much to unravel. I also had a dramatic downturn several months after angio, and thought the worst. The good news is that ...

I cannot stress enough how important it is to have professional advice from a physical therapist familiar with MS when you get a wheelchair. The right fit, angles, wheels, cushions, materials, etc. can make all the difference. Using a chair does not mean you need to become deconditioned. It means yo...

Actually, this is fascinating -- how all of these wide-ranging factors might come together from so many different streams to create the one awful thing called "multiple sclerosis," with each of them being, as Dr. Dake termed it, a promoter. And yes, Cece, as you indicated earlier, any indi...

I absolutely have to weigh in on drinking a glass of water -- I was astounded to have this as an entirely unexpected benefit of venous angioplasty. I could drink a full glass of water, without stopping, for the first time in many years, where before I would just gasp through it. Along with that I co...

Fee, I also have a son called Con.

There wasn't that helpful now.

Thank you to everyone who has read this and offered such positive energy -- and for taking the time to write to me here, a special thank you to Michelle (an inspiration!), Johnson, 1eye, Trish317, msJen, LR1234, hannakat, coach, Cece, Happy Poet (you are being far too hard on yourself!!), hope410, m...

Greetings to the CCSVI forum. I last posted in May, during a period in which I was experiencing some scary symptoms. And yet here I am, still, on the one-year anniversary of a very thorough venous angioplasty with an incredible team -- an almost five-hour procedure that changed my life. From first c...