Search found 14 matches
- Fri Apr 22, 2011 3:50 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: IRIS and Tysabri
- Replies: 21
- Views: 12072
Tysabri holiday and IRIS
My daughter hit the 2yr mark on Tysabri and was asked to take a 6mo break. The plan was no treatment for the first 3 months, then an alternative MS treatment for the next 3 months. We were told that something like 2/3 of holiday patients relapse in month 4, hence the reason for some alternative trea...
- Thu Aug 05, 2010 6:57 am
- Forum: Low Dose Naltrexone
- Topic: Experiences with Low Dose Naltrexone
- Replies: 70
- Views: 75457
Daughter's LDN experience
Daughter (diagnosed at age 15) tried LDN after giving up on Beta and Copaxone. Difficult start-up. She had an anti-fungal treatment, worked her way up to 4,5. Her energy improved, as did her resistance to heat. But at the end of 8 months, she felt that a relapse was on its way. We did before and aft...
- Thu Dec 03, 2009 11:52 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Please call Biogen & complain about Tysabri PML Reportin
- Replies: 23
- Views: 6472
- Thu Dec 03, 2009 11:46 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: JC VIRUS TEST - HOW DO YOU GET IT?
- Replies: 21
- Views: 16576
What is CD4? Is it in the blood? The TOUCH program does not monitor this as far as I know.The TOUCH protocol does not require blood work. It simply keeps track of who is infused where. The TOUCH protocol requires the infusion centers to ask 3 questions of the patient at every infusion; these answers...
- Wed Apr 23, 2008 3:27 am
- Forum: Low Dose Naltrexone
- Topic: AAN-Chicago
- Replies: 4
- Views: 4796
AAN-Chicago
Has anybody heard anything about the results of the Italian Clinical Trial that were supposed to have been presented at the AAN mid-April?
I can't find anything on the internet.
thanks.
I can't find anything on the internet.
thanks.
- Fri Aug 11, 2006 8:58 pm
- Forum: Antibiotics
- Topic: antibiotic treatment for teen with mild RRMS
- Replies: 3
- Views: 3281
antibiotic treatment for teen with mild RRMS
Thank you Sarah, I went to see our GP who just happens to be English, young and cool! (we are a franco-american family living in Tokyo.) I printed out the cover page to your husband's MS-treatment site and asked her if she would be willing to study the site. I mentioned also that she could email wit...
- Thu Aug 10, 2006 4:03 pm
- Forum: Antibiotics
- Topic: antibiotic treatment for teen with mild RRMS
- Replies: 3
- Views: 3281
antibiotic treatment for teen with mild RRMS
My 17-yr-old daughter was diagnosed with RRMS 18 months ago. She is on Copaxone now and doing alright. However, I'm much more interested in the CPn ideas relating to MS, as she has asthma too. Is Wheldon's antibiotic regimen a possibility for early RRMS with few symptoms? She takes 100mg of minocycl...
- Wed Jun 15, 2005 5:57 am
- Forum: General Discussion
- Topic: what exactly constitutes an exacerbation?
- Replies: 4
- Views: 3232
exacerbation?
Thanks everyone for your imput.
I will be taking my daughter to see an MS specialist tomorrow... the only one in the Tokyo area, maybe even in all of Japan. Your comments have helped me compose my list of questions.
Laura
I will be taking my daughter to see an MS specialist tomorrow... the only one in the Tokyo area, maybe even in all of Japan. Your comments have helped me compose my list of questions.
Laura
- Fri Jun 03, 2005 10:29 pm
- Forum: General Discussion
- Topic: what exactly constitutes an exacerbation?
- Replies: 4
- Views: 3232
what exactly constitutes an exacerbation?
Our neurologist has lead us to believe that only muscle weakness (leading to temporary parallysis) means exacerbation. Numbness, tingling, and other sensory problems--even if they are progressive--don't count for him.
Is this the generally accepted attitude?
thanks,
mother of 16-year-old with MS
Is this the generally accepted attitude?
thanks,
mother of 16-year-old with MS
- Fri Jun 03, 2005 5:08 pm
- Forum: Betaseron
- Topic: Tips and Tricks please
- Replies: 5
- Views: 6124
John, My 15-year old daughter has been on betaFeron (we're in Japan) for 6 weeks. Her routine: numb injection area with small ice pack while preparing injection. Auto inject does not exist in Japan. At injection time she takes 100-200 mg of ibuprophen and homeopathic granules of Arnica for bruising....
- Thu May 05, 2005 5:41 am
- Forum: Betaseron
- Topic: MS symptoms or betaferon side effects?
- Replies: 2
- Views: 5721
MS symptoms or betaferon side effects?
Hello everyone, My 15-yr old daughter was dx this past Jan and recently started Beta injections (she's only at 1/2 dose). She says that "everything hurts more" like when she gets knocked or pushed or scrapes herself. She also says that her arms and legs feel like they have just had an inte...
- Mon Apr 25, 2005 3:35 pm
- Forum: Parenting Kids With MS
- Topic: Welcome!
- Replies: 3
- Views: 8987
"the truth"
I know my mum would have appreciated someone elses imput, cause i never told her the truth... (I still dont cause she worries too much!) My 15-year old daughter was recently diagnosed. I want to help her bear this heavy load, but at the same time, it breaks my heart to see her dealing with MS. She ...
- Mon Apr 25, 2005 3:32 pm
- Forum: Low Dose Naltrexone
- Topic: .
- Replies: 6
- Views: 6851
Et si on en parlait en français ?
Bonjour batpere,
MS en francais ca donne SEP pour les francais, SP pour nos amis canadiens.
La France, le Canada, la Belgique et la Suisse ont tous des sites SEP...mais nettement moins informatives que ThisIsMS et autres site anglophones.
Laura
MS en francais ca donne SEP pour les francais, SP pour nos amis canadiens.
La France, le Canada, la Belgique et la Suisse ont tous des sites SEP...mais nettement moins informatives que ThisIsMS et autres site anglophones.
Laura
- Thu Apr 21, 2005 2:34 am
- Forum: Introductions
- Topic: Greetings from Tokyo
- Replies: 2
- Views: 2576
Greetings from Tokyo
My 15-year-old daughter was recently diagnosed with MS. This was understandably heartbreaking for our family. She has started on Betaferon at the suggestion of our neurologist. Let me point out that a) we are American and don't speak Japanese b) Betaferon is the only disease modifying drug on the ma...