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Well, by the time I saw my ms specialist my b12 had been boosted to around 730 with no appreciable help with symptoms. Personally I don't think that's what it is, on balance. My specialists recommended tysabri because of how active my ms was with this first outbreak and my already accumulated spinal...

Well, thank you all for your answers.

I've decided to go with Tysabri.

Best to you all.

I’m still not thrilled abt the whole deal but I’m becoming more accepting, mostly bc i don’t really have a choice but also bc i’m pretty confident that i can perpetually kick my MS’s ass for the rest of my life. at my next appt my dr is going to give me a chart listing the types of vitamins & s...

I wish I had listened to that gut feeling, even after several ER doctors told me repeatedly that there was nothing they could do but send me home with some anti-inflammatory medication and advise me to see a chiropractor and wait it out. Obviously something was wrong, and it still feels like someth...

The reason for the decline in B12 from the initial B12 test result of 228 pg/mL to 192 may be the IV Solu-Medrol, if this was taken between the two test occasions. Corticosteroids deplete B12 levels. Ah, that's a good point. At that time actually I had not been put on the solumedrol, but rather a r...

I am curious… How did you obtain your initial 400,000 IU dose of vitamin D3? I assume you are being monitored by your doctor. Where did you find a doctor in the US who would prescribe or administer 400,000 IU? I didn't, really. Part of it is my own orneriness, part is help from a doctor. It certain...

Hello, I won't repeat a lot of my story, which you can read in all of its turn-of-the-screw (updated! new!) glory here: http://www.thisisms.com/forum/introductions-f20/topic27058.html I got some labs back today. I am JCV negative, which is a relief since I'm consideing Tysabri. I haven't seen the ac...

caveat: note the 6 month duration "Forty patients were randomized to receive 10,000 IU or 400 IU of cholecalciferol (Continental Vitamin Company, Vernon, CA) daily for 6 months. In addition, all study participants received a daily multivitamin (LuckyVitamin, Conshohocken, PA) including 400 IU ...

My vitamin D, after two rounds of megadosing in different ways, is now up to 58 ng/ml, which is much closer to where I want to be - but still not quite there yet. I will probably do another megadose after I let my body settle out from the steroids I've just been on a bit. So my first method was to t...

Couple things to update. Today was my last day of IV solumedrol and I'm feeling so much better in terms of the numbness in my legs and balance issues. I haven't had much of a chance to try out any distance walking but I feel relatively little disturbance in terms of numbness or strangeness in my leg...

Hi Lindsay, I see some parallels between us. I first started being evaluated for symptom that would lead to a MS diagnosis (1/4/06 - still fresh) around mid-November. I finally saw an MS specialist last Monday and am on my last bag of IV solumedrol as I type in fact. It's helped tremendously, I feel...

I've read in a few places that bartonella can cause MS mimics, including some pubmed studies. Shouldn't this be at least as widely included in the battery of MS exclusion tests as, say, Lyme? Considering that bartonella can be contracted from household pets -- it would seem just as likely, if not mo...

Safety and immunologic effects of high- vs low-dose cholecalciferol in multiple sclerosis Elias S. Sotirchos, MD*, Pavan Bhargava, MD*, Christopher Eckstein, MD, Keith Van Haren, MD, Moira Baynes, RN, Achilles Ntranos, MD, Anne Gocke, PhD, Lawrence Steinman, MD, Ellen M. Mowry, MD, MCR and Peter A. ...

Hi Lynda, thanks for getting back to me. I actually found I have insufficient vitamin d- I have 26 (forgot units) with optimal reference range 30-80, 20-29 insufficient, <20 deficient. All other electrolytes measured on the complete metabolic panel were within normal limits. When I read about vitam...

I just had one done and didn't notice any change in my symptoms. I had the beginnings of what I thought might be a headache (didn't end up getting one though) and some very light nausea briefly when I was driving home, but that's it. Nothing that touched my MS symptoms.