Search found 30 matches

by siren
Tue Aug 28, 2012 5:02 am
Forum: General Discussion
Topic: Cellcept
Replies: 1
Views: 939

Cellcept

My neuro has recommend me to try Cellcept for my treatment for MS as other treatment like Tysabri is not working for me :0( . Anyone has experience with Cellcept.Care to share? Can't find much info on it in Singapore for MS treatment as MS is not really well known here :0(........
by siren
Sat Mar 12, 2011 6:52 pm
Forum: Betaseron
Topic: Double vision
Replies: 0
Views: 4523

Double vision

I'm now experiencing a relaps of double vision . I'm not so sure of which eye alignment had gone off..the right or left. The MS attack has hit me quite frequently lately, just a week after I finish my course of oral predisolone for an earlier attack on my speech :( . I'm at loss now (its the weekend...
by siren
Thu Nov 04, 2010 7:56 pm
Forum: Betaseron
Topic: Just switch to betaseron after 7 yrs o rebif
Replies: 2
Views: 5220

Hi NHE, His reasons is that Rebif is not proofing to be able to control my relapzes since upto this year I been experiencing 4 relapzes already. After rechecking my records again found out that I have been on Rebif for 5 yrs instead of 7 as mentioned previously. Been on it since 2005.It's difficult ...
by siren
Wed Nov 03, 2010 6:52 am
Forum: Betaseron
Topic: Just switch to betaseron after 7 yrs o rebif
Replies: 2
Views: 5220

Just switch to betaseron after 7 yrs o rebif

I just switch treatment after advice frm my neuro frm rebif to betaseron since rebif is not reducing the relapz tat I am experiencing nowadays.

It takes a while to get to use to the mixing of the powder in Betaseron. It's much more easier with rebif. hope I am doing the mixing correctly!!![/list]
by siren
Mon Oct 18, 2010 5:42 am
Forum: Daily Life
Topic: Down...sad... and confuse
Replies: 3
Views: 1939

Down...sad... and confuse

MS at work again :( . Just got result from my latest MRI today ....new lesions are found and now my neuro wants me to change my treament. I am currently on Rebif for the last 6 years and I'm getting more then 3 relapz each year. My latest relapse weakens my left side of my body making me difficult t...
by siren
Sat Nov 07, 2009 3:01 am
Forum: Rebif
Topic: ODM
Replies: 1
Views: 1975

'He did not explain in detail yet on the phone what is ODM. He just told me ODM mostly attach the eyes and the spine.'

Sorry, typo erro. Suppose to be attack :oops:
by siren
Sat Nov 07, 2009 2:58 am
Forum: Rebif
Topic: ODM
Replies: 1
Views: 1975

ODM

Hi All, I just had MRI yesterday and the result was out today. There are 2-3 small new lesions :( and the previous lesions were getting smaller. My neuro informed me that now he suspected that I might have ODM instead of MS since most of my relapzes that I am experiencing is Optic Neuritis. He did n...
by siren
Thu Oct 15, 2009 7:15 am
Forum: Rebif
Topic: Injection Schedule????
Replies: 8
Views: 5932

I tried injecting twice a week earlier in Jan this year in a bid to save cost. It was a bad decision for me as the relapzs come in fast and furious after that. I experienced 6 relapz up today with shorter time in between relapzs. I had a good year last year with only 1 minor relapz. Now I'm back to ...
by siren
Fri Jul 10, 2009 6:16 pm
Forum: Rebif
Topic: Numbness
Replies: 13
Views: 4987

Yup, I'm paying it out of my own pocket.... all S$2,100 of it or approx US$1,435.83 every month. :( ...can't fault me for trying to cut the cost of Rebif expenses. Had been trying to get susbsidy wif all avenues here but no success...it's like trying to squeeze water out of a rock ! I have resign to...
by siren
Fri Jul 10, 2009 6:48 am
Forum: Natural Approach
Topic: herbals
Replies: 578
Views: 69555

Nigella Sativa Oil

Hi All,

Does anyone has any comments on Nigella Sativa Oil or I think it is commonly known as Black Seed Oil ? I have people both encouraging and discouraging me to take them as supplement. You think will it do any good to MS ?
by siren
Fri Jul 10, 2009 6:40 am
Forum: Rebif
Topic: Numbness
Replies: 13
Views: 4987

the posting replies abv made me smile :) ! FYI, I'm gonna start taking start taking predisolone (60mg) tomorrow as the numbness has started affecting my movement :( ...I'm not able to write properly now. It has been a week now since this episode begins and it's not getting better. I think it's time ...
by siren
Wed Jul 08, 2009 7:40 am
Forum: Rebif
Topic: Numbness
Replies: 13
Views: 4987

Thanks Dignan! It does help! I'm more assured now that this tingling feeling should go away after sometime. I'm gonna observed it for awhile. If it does not get any better, then I'm gonna need the steroid.
by siren
Wed Jul 08, 2009 7:15 am
Forum: Rebif
Topic: Numbness
Replies: 13
Views: 4987

Numbness

Hi all, Just wondering if any of you have experienced a 'numbness' or 'pins/needles' sensation on parts of your body? I'm experiencing these at the moment on the right side of my body...the face, legs and arms. I've asked for advise from my neuro abt this and his reply was that if it doesn't restric...
by siren
Tue Apr 21, 2009 6:30 am
Forum: Rebif
Topic: Controlling flu-like symptoms-beginning Rebif this week
Replies: 14
Views: 6459

I have been on Rebif 44 mcg for 4 years now. I always take the injection at night and then take two tablets of Panadol afterwards (500mg of paracetamol per tablet). It kinda helps me with the flu like symptoms
by siren
Thu Mar 12, 2009 9:08 am
Forum: Rebif
Topic: Eye Issue
Replies: 5
Views: 2777

I managed to talk to another doctor who advise me to start the predisolone so I'm on that now. So just waiting now for my weight to balloon up :( . I've also decide to stop Rebif for the time being till I finish my course of predisolone. The eye sight is not recovering as fast as I expected :?. Mayb...