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Hello   ewerebody it has been long time Since my last post. I start  cap antibiotics 06june 2004   17 years completed First 10 years outside of spinal cord was effected following 7 years, The activity moved inside the spinal cord. Especially pressure of Nervous system my eyes and ears were effected....

Hi all, This is my 10th year on Cap. I am still taking Doxy,Roxy and metronidazole continuously. The lesions in my spinal cord still have activities such as burning,itching and tingling. These feelings are happening for the last five years but they are getting less and smaller in time. They were fee...

Hi Machintosh Hi Sarah It's been a long time I missed you guys.. :) but I can't get on line so often. I am spending my days mostly relaxing and watching Tv. I have someone doing phsical teraphy for the last six months for keeping my muscles strong. It's so good hearing you recovered more than 90%. M...

Hi Macintosh and Rica; I know it’s been long time since my last update but I didn’t want to update till I have any phsical improvement where as I had so many changes in activities that I had in my spinal cord. Fortunetly the activity gets smaller in size. I would say it is a cylindiric shape and the...

Thanks Daisy, happy new year to you too. I am still on continuous cap and doing very well, my spinal cord feels better for sure, there is almost no activity left inside it except tail bone and hip joints area. I usually stay in bed and watch tv lately because i am tired of playing pc games on intern...

Thanks Sarah

Hi everybody, Ýt has been a long time since my last update because my condition/edss is about the same as in my last update but the activity in my spinal cord has turned in to a something like storm or hurricane which now feels just like northwest wind. Ýt is hard to explain by words but i felt movi...

Hi Daisy,

The good thing is those hard won improvements continue to increase day by day..

Guner

Thanks

Hi all, It has been a long time since my last update, i am still taking doxy/roxy/flagyl continuously and i feel better , all the spasms/pain/burning sensation have left my body. The activity in my spinal cord became mild and it is very soft when i bend over. It feels like a brand new spinal cord bu...

Thanks Sarah, and yes ıt does really help when people around you start to notice the differences.

Hı Joyce, My overall condition has been gettıng better ,people around me are observıng and realısıng thıs changes ın my body too. All my spasms are gone except the one on my feet whıch gets weaker and mılder everyday, there are huge actıvıtıes ın my spınal cord ,ı thınk my ınfected axons and nerves ...

Thanks Rıca, you are my hero too and would you please tell me about your other heroes...

Hı everybody, Interestıngly 5 days after ı stopped takıng flagyl ,the leg spasms and the lower back paın came back .They were gettıng harder to tolerate day after day, but ı decıded to waıt and see ıf they would ease. On the 10th day my lymph nodes ın the groin area were aching too, and the leg spas...

Hı Gıbbledygook,

Today ıs the second day wıthout the flagyl and ı don't feel any dıfferent than when ı was on ıt last week. I guess as the cpn load lessens ,takıng the flagyl gets better and easier. I am so glad you are feelıng better and walkıng much longer ,all my best...