Search found 8 matches

by mariacallous
Thu Apr 14, 2016 7:49 am
Forum: Low Dose Naltrexone
Topic: Len. If on beta interferon -atoned
Replies: 2
Views: 4606

Re: Len. If on beta interferon -atoned

I do. According to the 2009 LDN conference, beta interferon and LDN work in a similar way. I'm not a scientist, but I have been on both drug treatments both individually and together. If you want to try both together then it is quite safe to do so. My Bladder works properly when on LDN. Without, I s...
by mariacallous
Sun Apr 03, 2016 11:03 am
Forum: General Discussion
Topic: Why should I take DMDs? Not being rhetorical (x-post MSWorld
Replies: 16
Views: 2051

Re: Why should I take DMDs? Not being rhetorical (x-post MSW

The new drugs and beta interferons can work. There is no need to be snitty about them. I'd have to think long and hard about Tysabri, but that would depend on my state of MS. If aggressive, stronger drugs can really help. I have done very well on interferon beta 1a. 15 years with few relapses. You n...
by mariacallous
Sun Apr 03, 2016 10:46 am
Forum: General Discussion
Topic: Blown off by doctors
Replies: 10
Views: 1254

Re: Blown off by doctors

If you have a clean MRI, then that's a good thing. Something to celebrate even. God,I'd love not to have those damn lesions. Your symptoms read like anxiety, largely. You should see an MS brain. Your doctors are NOT killing you. I live with malignant hypertension. It's already scarred my brain and a...
by mariacallous
Sat Mar 19, 2016 1:19 pm
Forum: Rebif
Topic: Should i take Rebif?
Replies: 8
Views: 5123

Re: Should i take Rebif?

My advice as an 'MS veteran' of 25 years is NO don't take any drug. None of them have been proven to have any effect in long term studies. I have never taken any disease modifying drugs and I am symptom free after being treated for CCSVI and cranio-dental & skeletal asymmetries. Physical problems, ...
by mariacallous
Sat Mar 19, 2016 11:58 am
Forum: Rebif
Topic: Should i take Rebif?
Replies: 8
Views: 5123

Re: Should i take Rebif?

Rebif has worked well for me. I've been injecting it since 2000. My MS was galloping and I was having continuous relapses. Now I have an attack every 4 years. Success story. It is covered by the local health system, so I don't have to pay. I also take LDN which has had a magic effect on my bladder s...
by mariacallous
Sat Mar 19, 2016 11:15 am
Forum: General Discussion
Topic: X-Post Has anyone done therapeutic riding?
Replies: 1
Views: 725

Re: X-Post Has anyone done therapeutic riding?

I'm going to try it. I've always wanted to learn to ride. My core strength isn't very good. I know that riding will help. I just had my right knee replaced and my recovery has been brilliant. I have excellent physio(physical) therapy. I have loads more energy now that I'm not in continuous chronic p...
by mariacallous
Sat Mar 19, 2016 11:07 am
Forum: Low Dose Naltrexone
Topic: Spanish LDN - some info that may help others...
Replies: 3
Views: 6082

Re: Spanish LDN - some info that may help others...

How to make LDN. Buy a packet of 50mg naltrexone and break or split into half (25mg). Dissolve 25 mg in 250ml water. Take a teaspoon (5ml), or less. You can get a prescription from the UK and buy LDN from Dickson the chemist in Glasgow. In pill or liquid form. Ask at the MS society in the UK. MSS.or...
by mariacallous
Sat Mar 19, 2016 10:50 am
Forum: General Discussion
Topic: I think I have MS like crazy
Replies: 10
Views: 1131

Re: I think I have MS like crazy

Guillain barre disease is very similar. Hughes disease too. B12 deficiency shares many symptoms. You could have a somatic disorder. MS is not a disease that you want to even think about. Let the medics investigate and please try not to worry yourself ill.

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