Search found 214 matches

by IHaveMS-com
Mon Sep 29, 2008 6:48 pm
Forum: Tcelna (Tovaxin)
Topic: A big coincidence?
Replies: 19
Views: 6040

Hi to all, I retired from posting several months ago. I have answered numerous email, but I would need to visit and read the posting daily to keep up with all of the different theories. The people in the IIb trial are now in a one year extension study. I assume it will be renewed after that as long ...
by IHaveMS-com
Mon Jul 07, 2008 5:09 pm
Forum: Tcelna (Tovaxin)
Topic: Loobie's 100 day club thread
Replies: 66
Views: 13641

Hi Lew, I am also very sorry to hear that your situation is not improving. I was surprised to read the latest data from my study that 75% of the patients had an epitope shift. Even with that, the overall results were that 73% of patients remained relapse-free at two years. http://tinyurl.com/6r92z4 ...
by IHaveMS-com
Fri Jun 27, 2008 5:39 pm
Forum: Tcelna (Tovaxin)
Topic: Questions and responses to the 100 plus days club members
Replies: 72
Views: 14615

Hi Bob, Every time when my series of treatments have ended and I am tested again for MRTCs, I always have had some MRTCs and new vaccine is made. Before I am tested for MRTCs and before giving a bag of blood for making vaccine, I avoid anything that might suppress my MRTCs. I think after 20 plus tre...
by IHaveMS-com
Fri Jun 27, 2008 5:25 pm
Forum: Tcelna (Tovaxin)
Topic: Something my neuro said about Tovaxin
Replies: 20
Views: 6227

Hi Bob, I don't like to disagree with my buddies but I think an equally good/better argument can be made that the biggest handicap neurologists have had in opening their minds/finding the right answers in MS research has been their education. I assume you believe that ontogeny recapitulates phylogen...
by IHaveMS-com
Fri Jun 27, 2008 4:59 pm
Forum: Tcelna (Tovaxin)
Topic: Questions and responses to the 100 plus days club members
Replies: 72
Views: 14615

Hi Bob, On the day of the appointment we were told that my wife was still producing mrtc's and they would make an appointment for the blood procurement, but the next day she got a call that Opexa hadn't been able to isolate mrtc's (I got the info second hand, so take it with a grain of salt) and tha...
by IHaveMS-com
Fri Jun 27, 2008 7:31 am
Forum: Tcelna (Tovaxin)
Topic: Something my neuro said about Tovaxin
Replies: 20
Views: 6227

A round of applause for Jane. http://i237.photobucket.com/albums/ff40/46marvel/applause4.gif We should not look for a neurologist that always agree with us, because we may be wrong. I would like to think that 4 years of college, 4 years of medical school, and 3 years of residency gives the neurologi...
by IHaveMS-com
Fri Jun 13, 2008 5:21 pm
Forum: Tcelna (Tovaxin)
Topic: MRTCs, Masking/Suppressing, and Some Thoughts
Replies: 24
Views: 10267

I did not know what a TARDIS is, but Wikipedia knows everything. It even knows about Tovaxin http://en.wikipedia.org/wiki/Tovaxin and has a link to my site. The TARDIS (Time and Relative Dimension(s) in Space) is a time machine and spacecraft in the British science fiction television program Doctor ...
by IHaveMS-com
Fri Jun 13, 2008 11:24 am
Forum: Tcelna (Tovaxin)
Topic: MRTCs, Masking/Suppressing, and Some Thoughts
Replies: 24
Views: 10267

Hi to all, There were 2 interesting facts, at least to me, which were in the latest press release about my study. http://tinyurl.com/6f7f36 The first one was a break down of the study participants into RRMS and SPMS. I could tell from previous data that Tovaxin must work for SPMS, but this report sh...
by IHaveMS-com
Tue Jun 10, 2008 10:46 am
Forum: Tcelna (Tovaxin)
Topic: Questions and responses to the 100 plus days club members
Replies: 72
Views: 14615

Hi to all, I hope everyone has great disease reversal, but the bottom line is, if going forward, you are never worse than your worst day in the past, Tovaxin is working. From what I can tell, the people in the extension study wake up each morning looking for what function they have regained today. I...
by IHaveMS-com
Sun Jun 08, 2008 5:46 pm
Forum: Tcelna (Tovaxin)
Topic: Questions and responses to the 100 plus days club members
Replies: 72
Views: 14615

Hi to all and congratulations to Lew, It is super to see Lew moving in a positive direction. Reading about his decline and his commitment to hang in there so that he could get the “real stuff”, was gut wrenching. You can see that it took 3 treatments before the level of immunization was sufficient t...
by IHaveMS-com
Wed Jun 04, 2008 6:41 pm
Forum: Tcelna (Tovaxin)
Topic: Injection site reaction to Tovaxin
Replies: 72
Views: 19851

Hi to all, Last week, I received injection number 22, and two months ago, I received injection number 21. Since I receive an injection in each arm, you could say that I have had 44 injections of Tovaxin and have never had an injection site reaction. You might wish to reread my first post on this thr...
by IHaveMS-com
Sat May 31, 2008 5:57 pm
Forum: Tcelna (Tovaxin)
Topic: Questions and responses to the 100 plus days club members
Replies: 72
Views: 14615

Hi Rumblebee, In the thread for the 100 plus days club, question number 3 -- "How have you felt from the end of the study until reaching the 100 plus days mark?" is pointed directly at your experience. You felt much better, saw improvement as you continued getting injections, and saw a reoccurrence ...
by IHaveMS-com
Wed May 28, 2008 7:58 am
Forum: Tcelna (Tovaxin)
Topic: Questions and responses to the 100 plus days club members
Replies: 72
Views: 14615

Hi Lew, On the 100th day, don't expect your EDSS to start plummeting. It took more than 2 years for mine to decrease 2 points. I was 25 years old with lots of ogliodendrocytes still floating around ready to repair some of the myelin damage. It is known that people have active ogliodendrocytes well i...
by IHaveMS-com
Sun May 25, 2008 6:37 pm
Forum: Tcelna (Tovaxin)
Topic: RESULTS WILL VARY!
Replies: 144
Views: 32244

Hi Marie 1 he told me only 10% of patients were testing out positive for MRTC's-but this was early on. What is that number known to be now? Unless he is on the scientific advisory board, he would not have that information. If you think he is correct, you should ask him for the specific source of his...
by IHaveMS-com
Sun May 25, 2008 1:23 pm
Forum: Tcelna (Tovaxin)
Topic: Questions and responses to the 100 plus days club members
Replies: 72
Views: 14615

Questions and responses to the 100 plus days club members

Hi to all, This is where to ask your questions of the people in the study. I hope Bob will keep an updated list of all questions asked as the second post on this thread. Go Bob http://i237.photobucket.com/albums/ff40/46marvel/cheeringsmiley.gif Some points to review. There will be a quiz later. I ne...

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