Search found 89 matches

by OneEyeBlind
Tue Jan 13, 2015 6:07 am
Forum: Gilenya
Topic: Best decision I ever made!
Replies: 3
Views: 4951

Re: Best decision I ever made!

I have also been on Gilenya for 4 years and like you I have had a very positive experience with this medication. I had had enough with the injections (Copaxone) and went on Gilenya about 6 months after it was approved. I have not had any side effects and agree that it is one of the best decisions I ...
by OneEyeBlind
Fri Jun 22, 2007 10:45 am
Forum: General Discussion
Topic: Betaseron v Copaxone
Replies: 6
Views: 3308

I participated in this study

Hey All,

I participated in this study. You had to be newly diagnosed and had never been on any medications for ms before.
by OneEyeBlind
Tue Jan 09, 2007 6:33 pm
Forum: General Discussion
Topic: Vaccine to Reverse the Effects of MS?
Replies: 11
Views: 3559

Thanks for responding. Has anyone heard when the studies will conclude and when it is estimated to be available to the general public? Is there anyone out there considering trying it when it is made available? I mean they are obviously trying to market it already by sending the clip out via email. H...
by OneEyeBlind
Mon Jan 08, 2007 5:14 pm
Forum: General Discussion
Topic: Vaccine to Reverse the Effects of MS?
Replies: 11
Views: 3559

Vaccine to Reverse the Effects of MS?

Hey all,

Has anyone seen this clip I received from WebMD? It talks about a new vacine called Neuro Vax. Has anyone heard of it or tried it?

http://www.webmd.com/content/pages/26/1 ... mls_010807
by OneEyeBlind
Thu Jul 13, 2006 6:26 pm
Forum: General Discussion
Topic: Pictures
Replies: 599
Views: 83844

Hey Nice dog!!
by OneEyeBlind
Mon May 01, 2006 6:20 am
Forum: General Discussion
Topic: MS and Heat, Why?
Replies: 32
Views: 8037

Niko, Heat AND Humidity definitely effects me more too.
by OneEyeBlind
Fri Mar 31, 2006 9:41 am
Forum: General Discussion
Topic: Mononucleosis increases risk of multiple sclerosis
Replies: 11
Views: 3916

Staiko,

Sounds logical to me but at age 16 I don't think he is very concerned with all of that stuff. I try my best to do what is right for all my kids.

I will however, pass your advise onto him.

Thanks,
by OneEyeBlind
Thu Mar 30, 2006 10:51 am
Forum: General Discussion
Topic: Balls
Replies: 15
Views: 4543

Hey you guys,

Thanks for the entertainment!! I sure needed the laugh today! :P
by OneEyeBlind
Thu Mar 30, 2006 10:43 am
Forum: General Discussion
Topic: Mononucleosis increases risk of multiple sclerosis
Replies: 11
Views: 3916

Hey Staiko Big LOL! I had mono when I was 15. (got it from a boyfriend). What scares me is that my son had it when he was 14. Think I should be concerned? One better, I am concerned! but... Maybe this will help establish a foundation for MS. I feel if they find the cause, they will find a cure. Make...
by OneEyeBlind
Tue Mar 21, 2006 11:25 am
Forum: General Discussion
Topic: homocysteine - i'll show u mine....
Replies: 2
Views: 1992

Hi Jimmylegs, I looked on the web and the website I read says your level is good. According to hsfighters http://www.hsfighters.com/hcy_level.htm normal is 6.3. The average person is 10. Higher levels can lead to heart disease, dimentia and alzheimers. I have emailed my Neuro's office to see what my...
by OneEyeBlind
Fri Dec 23, 2005 8:50 am
Forum: General Discussion
Topic: Meery Xmas and Happy New Year
Replies: 4
Views: 1892

Here is to a better year, Filled with good health, wealth and cheer!

Merry Christmas and Happy New Year to everyone!
by OneEyeBlind
Thu Dec 22, 2005 6:50 am
Forum: General Discussion
Topic: pins & needles
Replies: 6
Views: 11017

Hi Linda, I have had the pins, needles & numbness, first in one hand and then a year later in the other. To me it was more annoying than anything and after 6 months give or take it went away. My pins, needles & numbness were a little weird though, affecting my middle, ring and pinky fingers, up and ...
by OneEyeBlind
Thu Dec 08, 2005 7:09 am
Forum: General Discussion
Topic: hibernation and ms
Replies: 2
Views: 2052

Hi. Fatigue is very common with MS. Heat seems to make it worse and relapses also seem to bring fatigue on for me. I have been feeling great for about 6 months and have been feeling so good (and active) that I actually lost 8 lbs. For me it comes and goes with my relapses. Is it like that for everyo...
by OneEyeBlind
Wed Nov 30, 2005 11:36 am
Forum: Mental & Spiritual Health
Topic: Going to the doctor is bad for your (mental) health
Replies: 15
Views: 7678

I think they always give you the worst case senario because they just don't know how each individual is going to progress and are trying to prepare us for it even if it does not come. I mean the brain is a very complex thing (so I am told) and MS is very different for each and every one of us. Think...
by OneEyeBlind
Wed Nov 23, 2005 9:08 am
Forum: General Discussion
Topic: Moving the treatment goalposts
Replies: 13
Views: 3681

Carolw, Axion, you mentionned that lesions in optic nerve and spinal cord mean something in terms of prognosis, I didn't know that, Can you explain please, thanks Carole[/b ] This is what I found. Initial MS symptoms of visual loss or sensory problems, such as numbness or tingling, are markers for a...

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