Search found 34 matches

by LizardKing
Sat Feb 25, 2017 10:33 pm
Forum: Undiagnosed
Topic: Still undiagnosed after 2 years of symptoms.
Replies: 20
Views: 2423

Re: Still undiagnosed after 2 years of symptoms.

Two years isn't so bad, I am on year 24 of whatever I have and it's been getting worse and worse and still no answers. At this rate I might get diagnosed on the autopsy table. Lots of studies about MS and vitamin D deficiency but you will be asked about that repeatedly on this forum. Does a deficien...
by LizardKing
Wed Dec 07, 2016 9:06 pm
Forum: General Discussion
Topic: Stop it with steel
Replies: 1
Views: 784

Re: Stop it with steel

Once again I write on the same theme. MS is stopped completely if you wear a layer of steel about the head at night. This can be as simple as steel wirewool under a baseball cap. It may sound crazy but it works. Try it! It has been used by the author with 33 years of MS for more than 2 years. Brain...
by LizardKing
Mon Dec 05, 2016 11:56 am
Forum: Undiagnosed
Topic: Could this be MS?
Replies: 15
Views: 2600

Re: Could this be MS?

BlsdMama wrote:And, apparently NOT MS. MRI came back - white spots consistent with aging but no lesions on spine or brain.
White spots?
What sort of white spots, as FLAIR shows up as white spots on MRIs and indicates lesions.
by LizardKing
Thu Nov 17, 2016 11:41 pm
Forum: Undiagnosed
Topic: Possible MS? 'lhermittes' + blind spots
Replies: 25
Views: 2511

Re: Possible MS? 'lhermittes' + blind spots

But I must say, it gives me great relief to hear someone at least admit that my symptoms point in that direction - and that i'm not just totally hysterical. I have no doubt you are NOT hysterical. Not quite the symptoms someone would make up and certainly symptoms that can be caused by as lot of th...
by LizardKing
Thu Nov 17, 2016 11:31 pm
Forum: Undiagnosed
Topic: Had to Walk Out on Mayo Clinic - Rochester and Need Advice
Replies: 11
Views: 1666

Re: Had to Walk Out on Mayo Clinic - Rochester and Need Advi

The high ANA points towards stuff a rheumatologist should investigate. Now, let's say you do have MS I would think that the fibromyalgia would be a MISdiagnosis and MS would be the correct one. Yet, a high ANA points towards something other than MS or fibro, the optical neuritis points towards fibro...
by LizardKing
Thu Nov 17, 2016 11:21 pm
Forum: Undiagnosed
Topic: Clarification on MRI results
Replies: 7
Views: 1169

Re: Clarification on MRI results

Could someone please help me to better understand my MRI? For the past 2+ yrs I have been suffering with severe fatigue, muscle & joint pains, etc...which has affected my entire life (Holistically).: Severe fatigue is a symptom common to a lot of neurological disorders. Have you had any episodes of...
by LizardKing
Wed Oct 26, 2016 6:28 am
Forum: Undiagnosed
Topic: MRI help
Replies: 5
Views: 889

Re: MRI help

"There are a few minimal non enhancing foci of altered T2 signal intensity within the frontal lobe white matter. This likely reflects minimal small-vessel ischemic change, and may be related to vascular headache. Early demyelinating disease is not entirely excluded." Your symptoms would not be due ...
by LizardKing
Wed Oct 26, 2016 6:15 am
Forum: Undiagnosed
Topic: Possible MS? 'lhermittes' + blind spots
Replies: 25
Views: 2511

Re: Possible MS? 'lhermittes' + blind spots

Ok, considering all the symptoms you have I doubt that you coincidentally have all these issues and that they are totally unrelated. Frankly most doctors will judge women as "hysterical" if they don't have a test verified by common tests. Don't give up. Brain and spine MRIs would be a great next ste...
by LizardKing
Wed Oct 26, 2016 6:06 am
Forum: Undiagnosed
Topic: Almost two decades of symptoms. Exercise triggers.
Replies: 5
Views: 1003

Re: Almost two decades of symptoms. Exercise triggers.

Nothing to forgive, I know get that everyone with MS has different symptoms triggers. I was just really hoping to find someone who had found some kind of magical pill :-D or thingymajig to reduce/prevent flare-ups similar to mine. I feel like I'm a burden on the people in my life way to often. The ...
by LizardKing
Wed Oct 26, 2016 5:45 am
Forum: Undiagnosed
Topic: Numbness, and a lot of questions!
Replies: 8
Views: 1054

Re: Numbness, and a lot of questions!

deficiency. Thanks for the info! My family are quite outdoorsy and so we spend a lot of time in the 'sunshine' (such as it is in Wales!). I don't think I am lacking, but i will try to find out if i am offered another blood test. Thanks! She tells everyone who posts on this forum to get a vitamin D ...
by LizardKing
Tue Sep 27, 2016 7:05 am
Forum: General Discussion
Topic: Half of people with MS ‘accused of being drunk’
Replies: 3
Views: 818

Re: Half of people with MS ‘accused of being drunk’

When I went to the ER with severe pain, spasms and lack of mobility, I was treated quite abusively. They said there was nothing wrong and that I was faking it. They screamed at me to get up and walk! I didn't have a diagnosis and was scared to death at what was happening to my body. They demoralize...
by LizardKing
Fri Aug 19, 2016 7:34 am
Forum: Undiagnosed
Topic: yet another person with lots of issues wondering if it might
Replies: 24
Views: 2660

Re: yet another person with lots of issues wondering if it m

I don't need to read a link regarding MS and sleep apnea...I have both. MS diagnosed for 31 years and sleep apnea diagnosed and treated for 9 years. I was returning the favor. I've been sick for 23 years now and had a bout of cancer that cost me a lot after 5 years of misdiagnosis. The impression s...
by LizardKing
Wed Aug 17, 2016 7:45 pm
Forum: Statins
Topic: Read this before taking statins for MS
Replies: 18
Views: 19294

Re: Read this before taking statins for MS

There is a huge on y'all missed with statins. There is a lot of DATA that strongly suggests it turns many people diabetic. I went on statins and went from per-diabetic to full blown diabetic. Total loss of blood sugar control. Read up on everything I could find and saw the info about statins and dia...
by LizardKing
Wed Aug 17, 2016 7:15 am
Forum: Undiagnosed
Topic: Almost 20 years old and I am losing my mind... DO I HAVE MS?
Replies: 6
Views: 1022

Re: Almost 20 years old and I am losing my mind... DO I HAVE

Apparently, he did not wanted to see me anymore so he found out a person, 45+ woman who studies medicine and she started saying stuff such as " I believe you, but your symptoms are not real, they are only in your mind", "they are plenty of people like you out there, who have these problems but they...
by LizardKing
Wed Aug 17, 2016 7:04 am
Forum: Undiagnosed
Topic: yet another person with lots of issues wondering if it might
Replies: 24
Views: 2660

Re: yet another person with lots of issues wondering if it m

I am not a Dr. and can only give information based on my own experience with MS. The impression section does not sound like the impression section of those with MS. nonspecific white matter changes that are likely due to vaculopathy/vaculitis or chronic white matter microvascular ischemic changes M...

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