Search found 34 matches
- Sat Feb 25, 2017 10:33 pm
- Forum: Undiagnosed
- Topic: Still undiagnosed after 2 years of symptoms.
- Replies: 20
- Views: 3945
Re: Still undiagnosed after 2 years of symptoms.
Two years isn't so bad, I am on year 24 of whatever I have and it's been getting worse and worse and still no answers. At this rate I might get diagnosed on the autopsy table. Lots of studies about MS and vitamin D deficiency but you will be asked about that repeatedly on this forum. Does a deficien...
- Wed Dec 07, 2016 9:06 pm
- Forum: General Discussion
- Topic: Stop it with steel
- Replies: 1
- Views: 1060
Re: Stop it with steel
Once again I write on the same theme. MS is stopped completely if you wear a layer of steel about the head at night. This can be as simple as steel wirewool under a baseball cap. It may sound crazy but it works. Try it! It has been used by the author with 33 years of MS for more than 2 years. Brain...
- Mon Dec 05, 2016 11:56 am
- Forum: Undiagnosed
- Topic: Could this be MS?
- Replies: 15
- Views: 3558
Re: Could this be MS?
White spots?BlsdMama wrote:And, apparently NOT MS. MRI came back - white spots consistent with aging but no lesions on spine or brain.
What sort of white spots, as FLAIR shows up as white spots on MRIs and indicates lesions.
- Thu Nov 17, 2016 11:41 pm
- Forum: Undiagnosed
- Topic: Possible MS? 'lhermittes' + blind spots
- Replies: 25
- Views: 3785
Re: Possible MS? 'lhermittes' + blind spots
But I must say, it gives me great relief to hear someone at least admit that my symptoms point in that direction - and that i'm not just totally hysterical. I have no doubt you are NOT hysterical. Not quite the symptoms someone would make up and certainly symptoms that can be caused by as lot of th...
- Thu Nov 17, 2016 11:31 pm
- Forum: Undiagnosed
- Topic: Had to Walk Out on Mayo Clinic - Rochester and Need Advice
- Replies: 11
- Views: 2176
Re: Had to Walk Out on Mayo Clinic - Rochester and Need Advi
The high ANA points towards stuff a rheumatologist should investigate. Now, let's say you do have MS I would think that the fibromyalgia would be a MISdiagnosis and MS would be the correct one. Yet, a high ANA points towards something other than MS or fibro, the optical neuritis points towards fibro...
- Thu Nov 17, 2016 11:21 pm
- Forum: Undiagnosed
- Topic: Clarification on MRI results
- Replies: 7
- Views: 1569
Re: Clarification on MRI results
Could someone please help me to better understand my MRI? For the past 2+ yrs I have been suffering with severe fatigue, muscle & joint pains, etc...which has affected my entire life (Holistically).: Severe fatigue is a symptom common to a lot of neurological disorders. Have you had any episode...
- Wed Oct 26, 2016 6:28 am
- Forum: Undiagnosed
- Topic: MRI help
- Replies: 5
- Views: 1210
Re: MRI help
"There are a few minimal non enhancing foci of altered T2 signal intensity within the frontal lobe white matter. This likely reflects minimal small-vessel ischemic change, and may be related to vascular headache. Early demyelinating disease is not entirely excluded." Your symptoms would n...
- Wed Oct 26, 2016 6:15 am
- Forum: Undiagnosed
- Topic: Possible MS? 'lhermittes' + blind spots
- Replies: 25
- Views: 3785
Re: Possible MS? 'lhermittes' + blind spots
Ok, considering all the symptoms you have I doubt that you coincidentally have all these issues and that they are totally unrelated. Frankly most doctors will judge women as "hysterical" if they don't have a test verified by common tests. Don't give up. Brain and spine MRIs would be a grea...
- Wed Oct 26, 2016 6:06 am
- Forum: Undiagnosed
- Topic: Almost two decades of symptoms. Exercise triggers.
- Replies: 5
- Views: 1406
Re: Almost two decades of symptoms. Exercise triggers.
Nothing to forgive, I know get that everyone with MS has different symptoms triggers. I was just really hoping to find someone who had found some kind of magical pill :-D or thingymajig to reduce/prevent flare-ups similar to mine. I feel like I'm a burden on the people in my life way to often. The ...
- Wed Oct 26, 2016 5:45 am
- Forum: Undiagnosed
- Topic: Numbness, and a lot of questions!
- Replies: 8
- Views: 1518
Re: Numbness, and a lot of questions!
deficiency. Thanks for the info! My family are quite outdoorsy and so we spend a lot of time in the 'sunshine' (such as it is in Wales!). I don't think I am lacking, but i will try to find out if i am offered another blood test. Thanks! She tells everyone who posts on this forum to get a vitamin D ...
- Tue Sep 27, 2016 7:05 am
- Forum: General Discussion
- Topic: Half of people with MS ‘accused of being drunk’
- Replies: 3
- Views: 1204
Re: Half of people with MS ‘accused of being drunk’
When I went to the ER with severe pain, spasms and lack of mobility, I was treated quite abusively. They said there was nothing wrong and that I was faking it. They screamed at me to get up and walk! I didn't have a diagnosis and was scared to death at what was happening to my body. They demoralize...
- Fri Aug 19, 2016 7:34 am
- Forum: Undiagnosed
- Topic: yet another person with lots of issues wondering if it might
- Replies: 24
- Views: 3774
Re: yet another person with lots of issues wondering if it m
I don't need to read a link regarding MS and sleep apnea...I have both. MS diagnosed for 31 years and sleep apnea diagnosed and treated for 9 years. I was returning the favor. I've been sick for 23 years now and had a bout of cancer that cost me a lot after 5 years of misdiagnosis. The impression s...
- Wed Aug 17, 2016 7:45 pm
- Forum: Statins
- Topic: Read this before taking statins for MS
- Replies: 18
- Views: 22676
Re: Read this before taking statins for MS
There is a huge on y'all missed with statins. There is a lot of DATA that strongly suggests it turns many people diabetic. I went on statins and went from per-diabetic to full blown diabetic. Total loss of blood sugar control. Read up on everything I could find and saw the info about statins and dia...
- Wed Aug 17, 2016 7:15 am
- Forum: Undiagnosed
- Topic: Almost 20 years old and I am losing my mind... DO I HAVE MS?
- Replies: 6
- Views: 1375
Re: Almost 20 years old and I am losing my mind... DO I HAVE
Apparently, he did not wanted to see me anymore so he found out a person, 45+ woman who studies medicine and she started saying stuff such as " I believe you, but your symptoms are not real, they are only in your mind", "they are plenty of people like you out there, who have these pr...
- Wed Aug 17, 2016 7:04 am
- Forum: Undiagnosed
- Topic: yet another person with lots of issues wondering if it might
- Replies: 24
- Views: 3774
Re: yet another person with lots of issues wondering if it m
I am not a Dr. and can only give information based on my own experience with MS. The impression section does not sound like the impression section of those with MS. nonspecific white matter changes that are likely due to vaculopathy/vaculitis or chronic white matter microvascular ischemic changes M...