Search found 16 matches

by zenhead
Sat Aug 13, 2016 11:04 am
Forum: Natural Approach
Topic: BCM-95 Curcumin
Replies: 19
Views: 24608

Re: BCM-95 Curcumin

there is plenty of information here. is there anyone who has been using tis stuff who can speak about noticeable results?
by zenhead
Sun Jun 05, 2016 11:05 am
Forum: General Discussion
Topic: Chronic pain
Replies: 3
Views: 755

Chronic pain

i live with pain from chronic spasticity. i've had a baclofen pump squirting meds into my spine for 6 months, and i think we've finally got it adjusted right. but if it gets a little hot or a little cold, old jimmy leg comes right back. if i take additional oral baclofen my brain fogs right over. i'...
by zenhead
Sun Jun 05, 2016 10:58 am
Forum: General Discussion
Topic: Diet that mimics fasting may reduce MS symptoms
Replies: 16
Views: 2629

Re: Diet that mimics fasting may reduce MS symptoms

i have been using this diet - the so-called "5-2" diet, reducing calories by half two days each week, off and on for weight management. i admit i have not been strict enough to notice any effect. but the idea that it can also reduce inflammation will further encourage me to give it another shot. the...
by zenhead
Sun Jun 05, 2016 10:48 am
Forum: Medical Devices
Topic: Chronic Pain and pain pump
Replies: 2
Views: 3828

Re: Chronic Pain and pain pump

i have a baclofen pump to deal with severe spasticity. unchecked, it gets excruciating. like for you, i'm sure, in order for the oral meds to work (which they often don't) i have to take so much my brain can't function. after 6 months, i think the pump is adjusted as well as it can be, but when it g...
by zenhead
Sat Dec 26, 2015 4:37 am
Forum: General Discussion
Topic: Trigeminal neuralgia
Replies: 1
Views: 819

Trigeminal neuralgia

i am looking for a general description of ths. i spent a few weeks in the hospital, rehabbing from getting a baclofen pump. while there, i started getting sharp, stabbing headaches. we thought maybe it was from the spinal part of the surgery, or just hospital life in general. we let it go until i go...
by zenhead
Mon Mar 16, 2015 9:32 am
Forum: Stem Cells
Topic: stem cells and spms
Replies: 9
Views: 2593

Re: stem cells and spms

what is TIMS. Never heard that term before.
by zenhead
Fri Feb 27, 2015 8:52 am
Forum: General Discussion
Topic: No Meds
Replies: 6
Views: 1248

No Meds

i am in the process of switching from mycophenolate (Cellcept) to either tecfidera or aubagio. for some reason, my request for cellcept was denied - medicare rules change, no longer approved for ms treatment - hence the switch. researching the available info online has me very discouraged. i have of...
by zenhead
Sat Sep 13, 2014 9:14 am
Forum: Medical Devices
Topic: Terry Wahls and using a neuromusular Aide: The 300 PV EMP
Replies: 23
Views: 26577

Re: Terry Wahls and using a neuromusular Aide: The 300 PV EM

i started right in removing dairy, sugar and gluten, daily shakes of kale, mixed veggies/fruits (a full blender every morning), meats and fish as close as i could get to organic, wild-caught, grass fed. i stuck to the lists of accepted foods in her book. i ate that way, or as close as i could (there...
by zenhead
Sat Sep 13, 2014 8:45 am
Forum: Medical Devices
Topic: Terry Wahls and using a neuromusular Aide: The 300 PV EMP
Replies: 23
Views: 26577

Re: Terry Wahls and using a neuromusular Aide: The 300 PV EM

i never tried the emp machine, but after 9 months on her diet (not as strictly as she did it) i found absolutely no change in my overall health. no weight loss, no change in symptoms, etc. no sugar, no gluten, and no dairy is tough to pull off in family life, and getting all those greens into me got...
by zenhead
Fri May 23, 2014 12:38 pm
Forum: Diet
Topic: Wahls diet discussion
Replies: 372
Views: 95940

Re: Wahls diet discussion

i've been on the protocol for about 10 weeks, and tho i have not been completely strict (i don't drive, so keeping ALL THAT FOOD in the house is a problem, i don't notice much change at all. i'll stick with it, if only because it is a healthier way to eat. i agree with another poster here that if th...
by zenhead
Sun Sep 08, 2013 5:48 am
Forum: Medical Devices
Topic: Baclofen pump
Replies: 4
Views: 4244

Re: Baclofen pump

so sad to see this man lose his struggle, but so beautifully explained. an eloquent final message. and another check mark on the "No," side of the ledger.
by zenhead
Tue Aug 13, 2013 6:20 am
Forum: Medical Devices
Topic: Baclofen pump
Replies: 4
Views: 4244

Baclofen pump

This device has been suggested to me a few times by my neuro. I find baclofen very effective for leg cramps/spasms, but it does bring with it some sedating effect. With the pump, the baclofen goes right into the bloodstream, without the sedating part. I am very hesitant, for a few reasons. I'm not c...
by zenhead
Tue Jul 30, 2013 5:50 am
Forum: General Discussion
Topic: Scooting
Replies: 1
Views: 678

Scooting

i'm looking for suggestions for, or user reviews of, portable mobility scooters. i use a manual wheelchair, but due to lack of upper body strength/stamina, there are places i really can't go. right now, i'm looking at the "lite rider gl 140," from golden, and the "spitfire ex" from activecare. i nee...
by zenhead
Mon Jul 29, 2013 9:48 am
Forum: Introductions
Topic: Back again
Replies: 1
Views: 815

Back again

I was a member of this forum a while ago, but lost track of it. So, I'm back, and hope to be a more active participant. I am SPMS, currently using Cellcept (mycophenolate), Ampyra, tizanadine, Baclophen and Clonazepam (as well as a few suppliments.) I'm interested to chat about most anything - my bi...
by zenhead
Mon Oct 24, 2011 6:38 am
Forum: Low Dose Naltrexone
Topic: RE LDN AND AMPYRA
Replies: 4
Views: 2406

Re: RE LDN AND AMPYRA

that's odd that your neuro would not like LDN. well, i guess not odd, a lot of neuro's don't. i'm about the start it. (i have SPMS), after reading extensively, LDN is the ONLY treatment that even suggests that it might help things get better. i also take ampyra. the only change i think i will need t...