Search found 116 matches

by kc
Thu Jan 20, 2011 8:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 194581

1 yr out on IBT

I am one yr out from ibt and 6 months out angio. I continue to sleep inclined and will for the rest of my life. Oh oh oh are things so much better. In every way fatigue is 95percent gone, spasms 85% gone. I am working on my muscles to improve them. It is happening slowly. Last summer after angio I w...
by kc
Sun Jan 02, 2011 4:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Help
Replies: 8
Views: 1707

Make sure you are still sleeping inclined. kc
by kc
Sun Jan 02, 2011 4:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: hypovolemia and CCSVI
Replies: 52
Views: 8235

After giving birth in 1999 and during the birth I felt like my legs were being ripped from the inside out. I remember asking the nurse if this was normal and she said "No". I went down fast after birthing. I have always had to drink water every hour or so. Also when I have blood taken, I feel very w...
by kc
Mon Oct 18, 2010 4:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does anyone take a supplement to improve circulation? Did ..
Replies: 51
Views: 11214

I have taken krill oil (thins blood) before the procedure and still do. I have recently added nattokinase after hearing Irishbear76's video on youtube. I am post procedure 3mos and improving weekly.

Ps DONT FORGET THE VITAMIN D!
by kc
Sat Sep 04, 2010 7:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Beets widen blood vessels
Replies: 10
Views: 2740

I take a supplement everyday called blood builder which contains beetroot. I would be without it, even after being liberated. No diets do not guarantee anything as far as ms progression. I did not eat any sugar (any)for 3 yrs or anyjunk food or gluten or dairy. No go I still got worse. Although I st...
by kc
Sat Aug 28, 2010 8:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Significant: not just hyoxemic but hypoglycemic brain cells
Replies: 26
Views: 3343

When I was first dx'd in 96 my blood sugar kept crashing thru the floor. It has been much much much better since my procedure. I only need to eat like 3 times a day and I used to have to eat 6 or so times a day. It has been 7 weeks for me and my friend commented on how much more confident I seem whi...
by kc
Fri Aug 20, 2010 12:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post with no blood thinner rut ro
Replies: 0
Views: 1319

Post with no blood thinner rut ro

I am 6 wks post and have been taking 4000mg of krill a day. I was taking this before the procedure as well. I ran out and ordered some online, which takes about 1 to 1.5 weeks to arrive at my door. So, I went to my local store and bought 500mg caps (all they had) Long story longer I then began takin...
by kc
Mon Aug 16, 2010 5:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post-procedure changes in blood flow in legs - anyone else?!
Replies: 10
Views: 2079

I am 6 weeks post op and am feeling the same things in both my legs. I say to myself "ah my left food just opened up, my right calf just opened up". I get happy when this happens , I think healing is taking place in the tissues. After it happens, I can feel more and more better. It is all lovely kc
by kc
Wed Aug 11, 2010 4:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and Spasticity
Replies: 10
Views: 2743

Ned, I was liberated 5 weeks ago. I used to get terrible spasms that would throw me around. Started slee[ping inclined 12/10/09 that helped. And now the spams are about 75% better. Sometimes I will just be sitting there and think "OMG my body is relaxed". It is a wonderful thing. I am spms dx 1996. ...
by kc
Wed Jul 28, 2010 8:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 162726

I was also treated in Albany but did not want to post here for fear of them being shut down. They were great out there, nurses, pre op people everyone. Immediately, after being ballooned, I opened my eyes and all the colors were soo vivid. Especially the blues and reds. I was emotional for a few day...
by kc
Wed Jul 14, 2010 3:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sweating decreases iron in body! ms with ms cannot sweat.
Replies: 15
Views: 8186

Sweating decreases iron in body! ms with ms cannot sweat.

From The June 2000 Issue of Nutrition Science News Feature Too Much of a Good Thing by Bill Sardi Recent studies reveal that blood donors exhibit lower rates of many diseases and experience better than average health. Additionally, the centuries-old practice of bloodletting is being revived as a tre...
by kc
Wed Jun 30, 2010 10:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Rapid Pulse after Procedure
Replies: 8
Views: 1871

Dania, Now I don't know if this will help but... on 12/10/09 I started sleeping inclined. While I felt better I did notice that my heart was racing. It almost felt like I had too much blood in my chest. I was very concerned but continued sleeping inclined. It went away after a couple of weeks. It wa...
by kc
Mon Jun 28, 2010 4:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: OMG go straight to the er!
Replies: 4
Views: 1525

OMG go straight to the er!

I was scanned last week and have 30-40% stenosis in my left jug. I called my gp just to let him know. He has given me referrals to vascular surgeons without hesitation. Well I just got a call back from a frantic triage nurse telling me if I "have any problems go to the nearest er". Since they are un...
by kc
Sun Jun 27, 2010 4:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Something of interest....
Replies: 4
Views: 1932

I just listened to this in it's entirety. I think this is why ccsvi has gotten zero percent coverage in the USA. But I have noticed the new ms drug amprya has gotten decent press. This is quite depressing, but changeable. I have an ms friend who I have gone on many protocols with to help our ms. I c...
by kc
Tue Jun 22, 2010 11:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1638290

OMG I think I am going to be sick! WTF is wrong with people? WE ARE SUFFERING PEOPLE!!! I am a strong believer in karma and those who made this assisine decision better watch out. Hell I am even perturbed when I see the words "Experimental new procedure". In my mind the experiment is over and let's ...