This Is MS Multiple Sclerosis Knowledge & Support Community

These forums USE TO be a great place to see what was going on in the world of ccsvi. Now its completely filled with childish bickering. Each and every thread I look at seems to end up the same way. I think some serious moderation is in need. Facebook has become a much much better place to avoid all ...

OK...two negative studies, the same two studies we've been discussing on here for three months. Nothing new, nothing has changed...they're just getting regurgitated in the press now. What are you talking about? What two studies? German and Amsterdam? Here we are talking about Swedish study, and Ams...

NormB wrote:Very good news indeed. Maybe we should start a pool on which province will follow next.

Take heart everyone.


Norm

LOL, i'll bet that the maritimes are the last

Theres billions of dollars at stake with the MS drugs. Much less then that amount of money brings out the worst in people. All i can say is that if the companies felt at risk to lose this source of income. They will do anything in their power to stop it. What scares me is the amount of power billion...

I've always had pain in my left leg as well as being slightly purple. Recently when wearing socks I can notice it being swollen compared to the right. When I take off my socks at night I see I deep ridge where the elastic part of the sock was digging in. I guess I should push my GP a little bit to g...

When I first started injecting I would flush for about 5-10 mins after the injection. My face would go beat red and I would be sweating. This went away after a month or so. I would recommend not using the auto injector. I was on rebif for 2 years prior to copaxone and I got used to injecting manuall...

The ms society is not in our general interest. First off how many members of their board have a direct link with ms? such as family members. How many are members on pharmaceutical company boards? There is a definite conflict of interest there. They are looking for a drug that will help everyone. Not...

Just posted to my blog late last night. This post may cause some angst, as it's not blindly pro-CCSVI, but it's my honest assessment of where we've been, where we are now, and the best way to move forward with Dr. Zamboni's theory. http://www.wheelchairkamikaze.com/2010/06/some-thoughts-on-current-...

Just posted to my blog late last night. This post may cause some angst, as it's not blindly pro-CCSVI, but it's my honest assessment of where we've been, where we are now, and the best way to move forward with Dr. Zamboni's theory. http://www.wheelchairkamikaze.com/2010/06/some-thoughts-on-current-...

I'm at 6" I wonder if 7" would help anymore. I had some minor improvements within the first few months of IBT. I'm 5 months in now. But all those improvements have disappeared over the last couple months. I was dreaming again, but I've lost that now. I wasn't having night sweats but they'v...

Why is this terrible news? Others have had relapses and have gotten worse after the procedure. But seriously all have had some benefit. Maybe they had a re-stenosis. Maybe more veins are involved. Maybe we need to be on drugs for life. Who knows, but to lose faith because one person got slightly wor...

mmcc You have a different view them most of us, mainly because you have a neurologist that is willing to help you. That's not the case for most of us. Try walking in our shoes when ever door you try to open is shut by neurologists. My neurologist tells me that blocked neck veins are perfectly safe. ...

As a person who has lost someone to MS, I am fighting for the others that would benefit from this procedure, which is all that it is, that has been done for many years for people with ciculation problems. I do agree with Dr. Zamboni that more investigation needs to be done to learn where CCSVI real...

this board has gone from no relapses after liberation to several. Its important to rule out restenosis because otherwise the logic is broken? I agree, when did it go from completely stopping relapses to this?? I guess this is truly why we need rigorous trials. We cannot solely go off of what people...

I have #1 and #2 and also as long as I can remember very strong heartbeat-I can feel it,I can hear it, I even can see it 8O like when I have long necklace or something like that on my chest I can see it hopping along with my pulse-I'm a real weirdo :wink: it all happens when I'm calm and relaxed, d...