Search found 9 matches

by Nenebird54
Fri Nov 16, 2018 5:33 pm
Forum: Regimens
Topic: PPMS and diet
Replies: 4
Views: 3148

Re: PPMS and diet

I sympathsize with the difficulty issue, but I am trying to transition. Getting down 9 cups of veggie a day is close to impossible for me.
by Nenebird54
Fri Nov 16, 2018 5:29 pm
Forum: Regimens
Topic: Low dose benadryl: An unknown treatment for MS
Replies: 6
Views: 6578

Re: Low dose benadryl: An unknown treatment for MS

Search for MS and Tavist - you will see some research showing the active ingredient in Tavist seems to support re-mylineation.
by Nenebird54
Fri Nov 16, 2018 5:26 pm
Forum: Regimens
Topic: I'm making myself a lab rat for n-acetylglucosamine
Replies: 30
Views: 13990

Re: I'm making myself a lab rat for n-acetylglucosamine

I have been taking this for about 8 years. I take capsule form, bought on Amazon. Quit taking for about 4 months, my ataxia, spasticity and walking were all negatively affected. So back on.
by Nenebird54
Wed Sep 19, 2018 6:12 pm
Forum: MS in the Golden Years
Topic: Retired and unable to enjoy it! Are you driving?
Replies: 20
Views: 13540

Re: Retired and unable to enjoy it! Are you driving?

Use provigil and keep driving. I know not to drive when I am too tired, but I don't want to give it up
by Nenebird54
Wed Sep 19, 2018 6:10 pm
Forum: MS in the Golden Years
Topic: Gait, walking problem - New
Replies: 5
Views: 5417

Re: Gait, walking problem - New

In June I broke 3 bones in my right foot. Wore a caste for 3 weeks. A boot for 3 more, but still have pain in right foot due to the boot at my ankle. I have noticed that my 20 min walk has been cut to 10 and not i am having that creepy back lock up which forces me to sit down and rest before I can w...
by Nenebird54
Sun Oct 29, 2017 7:46 am
Forum: Regimens
Topic: I'm making myself a lab rat for n-acetylglucosamine
Replies: 30
Views: 13990

Re: I'm making myself a lab rat for n-acetylglucosamine

I have been taking NAG since 2009. Dx in 2008. I have PPMS and have not progressed much. Granted my walking is limited to about 10-15 in sub 70 degree heat. Fatigue is my worst syptom. No diet or supplement has changed that. I think that has gotten worse over the years. I swim for exercise 3 x a wee...
by Nenebird54
Thu Mar 09, 2017 9:19 pm
Forum: General Discussion
Topic: Who has had a mobility scooter provided by their insurance?
Replies: 2
Views: 543

Who has had a mobility scooter provided by their insurance?

I have been going through hell trying to get a mobility scooter. I feel like I must be a dolt. HMO's in CA are concerned for cost first. My request has been in since December. I have gotten the run around since then. I will keep trying but my Neurologist has warned me that my HMO will likely find a ...
by Nenebird54
Sat Nov 19, 2016 4:02 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrelizumab Conference in November
Replies: 1
Views: 2115

Re: Ocrelizumab Conference in November

turns out i developed a bug and didn't make the trip.
by Nenebird54
Sat Oct 22, 2016 12:35 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrelizumab Conference in November
Replies: 1
Views: 2115

Ocrelizumab Conference in November

I have been asked to attend as a Patient Advisor. Would be happy to bring questions from all you fine folks. This drug is being targeted for both RRMS and PPMS. Go Google and you will read all about it. Getting pretty positive reviews so far. I already intend to ask if they will provide financial su...