Search found 8 matches

by mia72797
Sun Nov 20, 2016 10:20 am
Forum: Introductions
Topic: I'm new here
Replies: 2
Views: 1268

Re: I'm new here

Well when I was diagnosed I ended up in the mri machine for about 45 mins. The Lumbar puncture was very painful. I ended up with a lp headache. I couldn't keep my head up without having a massive headache... I ended up in the ER and they did a blood patch. There isn't much to know...it changes your ...
by mia72797
Sun Nov 20, 2016 6:36 am
Forum: Introductions
Topic: Hey Everyone
Replies: 6
Views: 1432

Re: Hey Everyone

thanks for the quick response, I will try to have more patience...
by mia72797
Sun Nov 20, 2016 4:22 am
Forum: Humor
Topic: I sometimes just laugh at myself :)
Replies: 5
Views: 3922

Re: I sometimes just laugh at myself :)

This ever happen to anyone else?? Sometimes, I tell someone something at happened to me on any given day and then I forget I already told them and end up telling them again??? Its so embarrassing but I really just don't remember. They sent me to OT/PT and when I get there the lady does a battery of ...
by mia72797
Sun Nov 20, 2016 3:47 am
Forum: Introductions
Topic: Hey Everyone
Replies: 6
Views: 1432

Re: Hey Everyone

Hi Family Elder I wish there was a quick way to deal with this and stay as mobile and as functional as I have. I feel like I'm quickly going down hill. I never felt so helpless before. Then they throw all of this medical info at you and expect you to pick and make a decision. I definitely didn't wan...
by mia72797
Sun Nov 20, 2016 3:41 am
Forum: Rituxan (Rituximab)
Topic: Anyone getting Rituximab for PPMS?
Replies: 4
Views: 4606

Re: Anyone getting Rituximab for PPMS?

I was on Tysabri first and that threw my liver enzymes out of wack, so now she has me on Solumedrol until the Retuximab is approved for me next month. I am a little concerned because of all of the pre-medication stuff. First they gotta give you Tylenol, benedryl, solumedrol and then the rituximab. I...
by mia72797
Sun Nov 20, 2016 3:28 am
Forum: Undiagnosed
Topic: Feeling confused.
Replies: 8
Views: 919

Re: Feeling confused.

Hi Mellyjoe, I gotta admit that the symptoms you are describing are on point with the experiences that I had when I was first diagnosed. At first I thought they were just migraines. I have suffered from them all of my life but then all of a sudden they would be getting worse. I started to experience...
by mia72797
Sun Nov 20, 2016 3:06 am
Forum: Drug Pipeline
Topic: RE: MS DRUGS-WHO IS USING WHAT?
Replies: 1
Views: 2502

Re: RE: MS DRUGS-WHO IS USING WHAT?

I started out on the Solumedrol for 3 days straight; then I was put on Tysabri and now I'm on Solumedrol again until I get approved for the Retuximab.
by mia72797
Sun Nov 20, 2016 3:03 am
Forum: Introductions
Topic: Hey Everyone
Replies: 6
Views: 1432

Hey Everyone

I am 34 and I was diagnosed with MS in April. I have already tried Solumedrol and intravenous treatments for three days straight which was tough. The first day was horrible they dripped the steroid for a full hour and the side effects hit me like a pile of bricks. The disgusting metallic taste in my...