This Is MS Multiple Sclerosis Knowledge & Support Community

I gave up giving up hope and emailed Angela. I am really interested in the improvements in your foot drop. She replied to say that there are no plans to distribute to UK but will let me know. She also said users in the US wear their devices outside the US so it can be used elsewhere. I asked about t...

Hi ElliotB

I checked and the app isn't available in the UK

I am slightly worried that you are wanting to wear more devices.

What is the science for this?

Glad to hear ElliotB

I don't have the app on my iphone so have not emailed the contact you gave here.

Hope it comes over here soon though
J

Hi ElliotB

This is great news.

I emailed them in the week asking when they might ship to the UK but no reply as yet.

J

Thanks for this ElliotB. Please continue to keep us updated

J

This is also good - both move in same direction but at different speeds

I take this one and on closer inspection I think it might be Na- RALA - see the back. https://www.lifeextensioneurope.com/super-r-lipoic-acid-eu DIM, Elliot thanks. I didn't say it was poorly absorbed - that was just my response to the previous post. I have no idea whether it is well-absorbed or not!

Thanks DIM this looks like progress, dare I say

I just read your post David and I am glad that you have had some responses that are much better than anything I could offer. The cold does seem to impact me too, and it is disheartening. But I agree with NHE - keeping up some physical therapy helps. It helps mentally too - and if you can get out to ...

Are these folk experts in MS? There is something in the way our bodies process these supps/foods. We can't assume what works for people without MS would work for us. If they were right then we'd be seeing much more remyelination. Still it is interesting that the R lipoic acid I just paid a fortune f...

Hi DIM

Thanks - that's interesting. Haven't yet tried CDP Choline although I take Omega 3

Remyelination really would be the golden ticket for us

Thanks Petr The June 2020 paper is interesting - on choreographed dance therapy. Multimodal dance therapy - seeing, listening and copying are strongly associated with coordination and vestibular rehab. It improved fatigue, probably due to improved balance/coordination as well as providing some level...

I agree so I'm slightly baffled by the criteria!

Thanks DIM. As usual the trial is for those with relapsing remitting MS

Thanks NHE - she's good!