Search found 13 matches

by EllieB
Wed May 03, 2017 6:50 pm
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 2694

Re: Crazy symptoms, scared to death

Unfortunately only a metabolic panel was done not what I requested. I'm being more specific this time and ent the actual code for the test hahaha interestingly enough I'm still showing mild metabolic acidosis but not life threatening. My spinal fluid came back negative for MS so that's good. At this...
by EllieB
Fri Apr 14, 2017 4:20 am
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 2694

Re: Crazy symptoms, scared to death

Lyme test was negative. MD is expediting the lumbar puncture. Hope to be scheduled soon. PCP wouldn't order the mag or zinc said she didn't want to overstep the neuros territory. I asked the neuro and he will have that run when they do my labs for the spinal. In the meantime I've dissected what I am...
by EllieB
Mon Apr 10, 2017 5:40 am
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 2694

Re: Crazy symptoms, scared to death

Thank you I appreciate the advice. I eat a lot of cooked and uncooked dark greens like chard, spinach, beet tops etc. I probably only eat legumes and pumpkin seeds once a week though. Not a fan of cashews but I eat other nuts, will look those up. Will add more beans too :) I will ask for those labs ...
by EllieB
Sun Apr 09, 2017 7:25 pm
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 2694

Re: Crazy symptoms, scared to death

So, an interesting thing occurred this afternoon. I had taken a nap and when I woke almost all of my symptoms had gone. No tremors, very few twitches, the only thing remaining was some lack of coordination in my thumb and stinging sensation when things pressed on my skin (like the bridge of my sungl...
by EllieB
Sun Apr 09, 2017 11:38 am
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 2694

Re: Crazy symptoms, scared to death

It says "Magnesium (as magnesium oxide, magnesium aspartate hydrochloride) I do take the magnesium before bed as I remember reading somewhere a long time ago it can help with sleep. I just read now though that taking calcium can reduce magnesium absorption. Figures Spent a fortune on these supplemen...
by EllieB
Sun Apr 09, 2017 6:24 am
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 2694

Re: Crazy symptoms, scared to death

Sorry for late reply. I saw an RD not nutritionist. I misspoke above (thought they were the same but maybe not?) There is no certain timing of the supplements and they were "suggested" not actually prescribed. The report was sent to my doctor to make the actual decision what I should do. I was told ...
by EllieB
Fri Apr 07, 2017 5:07 pm
Forum: Undiagnosed
Topic: Not diagnosed but wonderin
Replies: 3
Views: 903

Re: Not diagnosed but wonderin

Consider looking into Lyme disease, too. I'm currently undiagnosed with weird stuff too and their investigating this possibility. If you are in the US you can look at this site to see Lyme prevalence in your area, just put in your zip code. These are national surveillance on dogs as part of CDC I be...
by EllieB
Fri Apr 07, 2017 5:00 pm
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 2694

Re: Crazy symptoms, scared to death

Well, it's the end of week two, but actually closer to three weeks since original symptoms began and three months since trigeminal neuralgia diagnosis. I saw a nutritionist the day after my last post and she started me on magnesium, calcium, b complex, vitamin D (she was familiar with the grassroots...
by EllieB
Fri Mar 31, 2017 11:58 am
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 2694

Re: Crazy symptoms, scared to death

Results of D hydroxy in- 34.7 ng/ml so I will start supplementing with this and magnesium and prob b complex for good measure hahaha
by EllieB
Fri Mar 31, 2017 5:28 am
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 2694

Re: Crazy symptoms, scared to death

Neurologist thinks Lyme or MS. Drew the D level (hydroxy 25 ) at my request and also a Lyme titre. Lyme takes 7 business days for results. If those are negative then I will have a lumbar puncture. I went for a massage last night which was horrifically painful but I felt good after, looser etc. today...
by EllieB
Thu Mar 30, 2017 4:13 am
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 2694

Re: Crazy symptoms, scared to death

It's possible they are incidental? My WBC is good. No fevers or swollen glands. Neurologist today. My symptoms are greatly reduced today but not gone. I'm really hoping that he figures it out fast. Thankful for the reprieve, though, it's nice to have reduction in pain and ability to walk easier! Wil...
by EllieB
Wed Mar 29, 2017 8:33 am
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 2694

Re: Crazy symptoms, scared to death

Thank you both. No I hadn't been tested for D in several years but my last test was 30 ng/ml which I can see was co sideted normal but probably not. I will ask for that test tomorrow. I am taking some vitamins today (D3 red krill and barroca)
by EllieB
Wed Mar 29, 2017 5:11 am
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 2694

Crazy symptoms, scared to death

I'm a 47 year old female with no real health issues. In December I got what I thought was a sore throat. Pain when I swallowed. It went away but then my cheek and teeth hurt so I went to a dentist. He didn't find anything. It didn't go away so I went to my doc. The soft palate on one side was slight...