Search found 400 matches

by Zyklon
Sat Feb 10, 2024 5:57 am
Forum: General Discussion
Topic: The NERVGEN-291 miracle!
Replies: 10
Views: 2089

Re: The NERVGEN-291 miracle!

Very promising.
by Zyklon
Thu Nov 30, 2023 7:43 am
Forum: Diet
Topic: Sugar 101
Replies: 1
Views: 1394

Re: Sugar 101

An old adage says:

Stay away from the 3 whites. Sugar, salt and refined flour. True evils...
by Zyklon
Fri Nov 17, 2023 12:27 am
Forum: Introductions
Topic: Hello
Replies: 349
Views: 89874

Re: Hello

I'm done with injections. Five years of Rebif is enough :)

Lipoic acid seems promising. I just want to see some phase 3 studies.
by Zyklon
Thu Nov 16, 2023 10:33 am
Forum: Introductions
Topic: Hello
Replies: 349
Views: 89874

Re: Hello

Thank you NHE.
by Zyklon
Thu Nov 16, 2023 8:55 am
Forum: Introductions
Topic: Hello
Replies: 349
Views: 89874

Re: Hello

I got my first Ocrevus infusion today. It was reaction-free. I feel a little bit dizzy after 5 hours. The second half-dose is 15 days later. I want my NEDA back. Let's play the game again ;)
by Zyklon
Sat Oct 21, 2023 3:35 am
Forum: Introductions
Topic: Hello
Replies: 349
Views: 89874

Re: Hello

I have a new silent C6 spine lesion one millimeter in diameter. Since it is a spinal lesion, I will not risk anything and change my DMT to a stronger one. Mavenclad or Ocrevus if my doctors give the green light. Another NEDA journey will start soon :) Don't forget your MRI and other checks. As you s...
by Zyklon
Tue Sep 19, 2023 3:19 am
Forum: General Discussion
Topic: At a cross roads and need advice/opinions.
Replies: 5
Views: 1250

Re: At a cross roads and need advice/opinions.

Scott1 is extremely correct. Take action with evidence from your MRI comparisons. If I were you, I would get a new MRI and ask my doctor for a comparison with the years-old MRI. Lesions are one side of the story. At your age damage mechanism of MS greatly moves toward brain atrophy rather than new l...
by Zyklon
Sun Sep 17, 2023 2:11 pm
Forum: General Discussion
Topic: At a cross roads and need advice/opinions.
Replies: 5
Views: 1250

Re: At a cross roads and need advice/opinions.

Hello, Northern doc is right. You will experience fewer relapses. However, brain atrophy will increase. It must be your primary concern. As I know dimethyl fumarate is not very effective against brain atrophy. Ask your docs for your brain atrophy status. Maybe they change your medicine. Ask them if ...
by Zyklon
Tue May 16, 2023 1:09 am
Forum: General Discussion
Topic: New MRI with 15μm Resolution
Replies: 2
Views: 718

Re: New MRI with 15μm Resolution

Impressive
by Zyklon
Thu May 04, 2023 1:12 am
Forum: Undiagnosed
Topic: Symptoms at 18 years old
Replies: 4
Views: 1362

Re: Symptoms at 18 years old

Even though I am diagnosed with MS, Dr. Google can still trick me and make me feel terrible. Trust real doctors.
by Zyklon
Thu May 04, 2023 1:09 am
Forum: Introductions
Topic: Hello
Replies: 349
Views: 89874

Re: Hello

Well well well. I am very much surprised. From my last message: The last 30 days were a rollercoaster for me. Ups and downs. Fatigue (Liver ALT increase maybe?), vision issues, dizziness, ataxia, and diarrhea. Nothing lasts more than 2 days, mostly some hours. I plan to get an MRI to see if I have a...
by Zyklon
Sun Apr 16, 2023 3:50 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Any more positive from Tecfidera
Replies: 8
Views: 7196

Re: Any more positive from Tecfidera

Does your neurologist think there are better options but not available in Taiwan? If so, any chance that you can get your medicine from somewhere else?

Did you try Vitamin B12 and other Bs lately? Any tests?
by Zyklon
Sat Apr 15, 2023 6:49 am
Forum: Aubagio (Teriflunomide)
Topic: Aubagio and Hair Loss side effect
Replies: 46
Views: 49739

Re: Aubagio and Hair Loss side effect

Time to share my experience after 2 months.

My body hair is weaker and falls much more. Surprisingly my hair is all OK for now. I take 15 mg of zinc picolinate and 5000 mcg of biotin every day.

Not any side effects after the first 10 days. Diarrhea, fatigue, maybe some neuropathy.
by Zyklon
Sat Apr 15, 2023 6:42 am
Forum: Natural Approach
Topic: Gummie supplements
Replies: 5
Views: 2101

Re: Gummie supplements

14 grams of pure inflammation in a cute bear form...
by Zyklon
Sat Apr 15, 2023 6:35 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Any more positive from Tecfidera
Replies: 8
Views: 7196

Re: Any more positive from Tecfidera

Hi Algis,

As I remember you have SPMS. Did you relapse after MSCT? Tecfidera is a somewhat unusual choice. What is the reasoning for it?

Glad to hear you. Take care

Go to advanced search