Search found 36 matches

by dano
Tue Jan 01, 2019 8:50 am
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

Happy New Year!!! thanks... it leads back to why the high iron / ferritin levels for both of us..... so, we are still planning on looking into that... I just wanted to follow up with manganese results, because again it shows the complicated balance with the minerals... I thought it was going to be h...
by dano
Tue Jan 01, 2019 7:39 am
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

here are manganese results..... Manganese (Plasma) 9.5 nmol/L ----- range --8.0 - 20.7 nmol/L so, this doesn't make any sense being on low side, but at least it isn't above 20 nmol/L ... it doesn't appear that manganese is absorbed very well from higher levels in water..... my first thought when I s...
by dano
Wed Dec 26, 2018 8:08 am
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

Yes, interesting ...
adding manganese on this end doesn't appear to have helped....

Also interesting that there was no difference in cerebrospinal fluid zinc levels, when it appears that serum zinc appears
lower in MS patients.
by dano
Mon Dec 24, 2018 6:00 am
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

no problem... we got off topic here ... I just picked the liver, since no known problems and everyone is working towards it these days... although weight is good and have always eaten well even before going sugar, dairy and gluten free,,, I will see what manganese results tell us... My wife is feeli...
by dano
Sun Dec 23, 2018 7:16 pm
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

supposedly the iron has been removed from the well water for 2 years, so it shouldn't be affecting ferritin levels. so only high levels manganese are left behind... It is harder to remove manganese than iron and since there are no MAC level for manganese we were told its okay at any level by the tes...
by dano
Sun Dec 23, 2018 4:29 pm
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

Saw one study with increases in manganese that increased ferritin, but not much info on it and it was in a manganese mine, so not well water... I had my zinc tested for first time and it was 12.2 and copper was 12.5 and I have been taking 50mg of zinc per day for at least 3 months... Now I have miss...
by dano
Sun Dec 23, 2018 12:09 pm
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

Excess Manganese Increases Inflammation Mn in excess increases the release of several inflammatory molecules, including TNF-α, IL-6, IL-1β, prostaglandins, and nitric oxide. These can cause brain inflammation and neuron loss [R, R]. In addition, Mn can activate the nuclear factor NF-κB, a master co...
by dano
Sat Dec 22, 2018 6:00 pm
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

thanks... will let you know how the 4x25 zinc works out.... and if anything interesting with manganese pops up.... good idea on the iron panel....like you said, they are ignoring it as long as it is < 1000 ug/l It wasn't until I wrote my ferritin dates and numbers out today, that it doesn't appear t...
by dano
Sat Dec 22, 2018 2:24 pm
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

My wife really doesn't have a problem with nausea. She was just taking it with food because, well, I am really not sure.... So taking 4x25mg for a month would be better than 2x50mg as she did for the last 4 days. So good idea, I think she will go with that for a bit and see how it goes.... The ferri...
by dano
Fri Dec 21, 2018 8:35 pm
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

thx...here are some answers 1. are these SERUM or PLASMA zinc? I thought these were serum zinc 2. either way, what is the local lab's given reference range? Zinc 12.7 umol/L Reference Range: =============== Normal/Non-Exposed: 8.7 - 19.1 umol/L 3. also can i inquire re the usual testing process. hav...
by dano
Fri Dec 21, 2018 11:43 am
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

Hey.. Its been a while trying to get everything in order, but here is an update... My wife couldn't tolerate REBIF any longer, so she went off of it in June 2018.... We got zinc levels up over 14 and then 16, but it keeps dropping back to 12.7 area while taking 50 mg/day... Her last test was 2 weeks...
by dano
Wed Mar 21, 2018 6:32 pm
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

wasn't an official fast, but she probably only had a coffee and test was done at 12PM and then ate. so, high normal is a good enough explanation.....That's what I said before, so will repeat. was looking at oral health as well.... the oral spirochetes are an interesting aspect....Was also looking on...
by dano
Wed Mar 21, 2018 4:32 pm
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

okay great..... Thanks for input.... Its going to be difficult to get these tested again in a month....or maybe even two months.... but will see what we can do.... any way to do zinc at the 40mg and then test in a few month? It may be better for me to know a little more to explain why and what we ar...
by dano
Wed Mar 21, 2018 1:46 pm
Forum: General Discussion
Topic: When to go off REBIF - went Gluten Free and Colitis healed
Replies: 73
Views: 10134

Re: When to go off REBIF - went Gluten Free and Colitis heal

got some more results -
she has not taken any zinc or copper supplements yet...

Uric Acid - Mar 2018 - 204 umol/L
Zinc - Mar 2018- 12.1 umol/L
Copper - Mar 2018 - 18.9 umol/L

thx

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