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Hi Scott1, I have done some reading about NMO before and looked through my labs and never saw any specific testing for that. I have been told that my optic nerves looked good, and my VEP’s from a couple years ago were normal. It seems that my vision issues are pointing more towards 6th nerve or mayb...

So, went to neuro appointment today to follow up on LP, and he said it looked good. Zero o-bands, slightly elevated myelin basic protein. He actually does think I could be a mild or early case of MS based on my symptoms and the many things he feels we have ruled out. It’s like my symptoms are very i...

Wow, super interesting about the folic acid. I haven’t taken that since I was preggo. Just got a call from neuro office. My follow up wasn’t until November and now he wants to see me this Monday. Hmm, trying not to over speculate, but thinking it ain’t great news. Never know though. Have a great wee...

Hi, yes I have been able to drive, thankfully! Drives me nuts not being able to get myself where I need to be. You had an LP before right? I’ve been experiencing severe itching the last 3 days, no rash, and it’s not localized to any one part of the body. It will be quiet for hours and then it’s very...

Sorry to hear your vision being hasn’t been great. A little of that PT and I’m sure you will be right back to where you need to be! My vision has been great, even at a distance everything seems to be single. Hard gaze to the right still leaves a bit to be desired so I’m going to jump back into the P...

Hi Jimmy! Yep, I’m horizontal for sure. It wasn’t bad at all, uncomfortable for a few minutes, now just laying around drinking lots of fluids. I really tried to keep calm in the days leading up to it so I wouldn’t get worked up. Glad I didn’t, wasn’t bad at all. Eyes are pretty much back to normal n...

Hi! So I’ve done the PT stuff the last two days and I can’t believe the difference! Could be coincidence but I really think it has helped. Yesterday was the first day I saw significant improvement, and today I feel like my vision is almost fully back to normal! I kind of played around with the angle...

Hi Jimmylegs, so there was no surgical procedures involved in my case, luckily. I remember them telling my dad they may need to fly me to Boston for surgery, because I remember the look on his face lol. But ultimately they said it wasn’t necessary. I just had to take it very easy for what seemed lik...

Yes, anything that will help at this point I’m willing to try, really want to get back to normal activities that this double vision is disrupting. As far as MG, I know my doctor specializes in MG, and it was one of the first things he ruled out from what I understand. The diabetic nerve palsy is def...

Yes, definitely happy it’s not that either haha! I will check out that physio stuff for sure, I’ve been couch surfing a little too much last couple of days and need something to do! I do sometimes feel tension around the eye, sometimes in the eyebrow, and jaw. Even the space between the inner corner...

Hi there, so I took your advice and went to the ophthalmologist today, they were able to squeeze me in. They didn’t see anything that they could pinpoint would be causing my double vision. He said by the way that I was moving my eyes when he would have me focus on object and he would cover each eye ...

Well it’s great that you have a personal interest like this, I’m sure it is a huge benefit to your personal well being. And I really appreciate all this input so much :-D . Definitely gonna have the hubs check out my eyes when he gets home tonight. I’ve had brief episodes of nystagmus randomly from ...

Thanks so much for all these suggestions! I will definitely try adjusting the times on supplements, as well as up my veggie intake. I live in New England. As far as the vision, the first time in 2011 it was much more severe, it took months to slowly go back to normal. It was so gradual I remember wo...

Yes, I will have to see what I can dig up from 2011, all I have is the mri from the ER on disc, but maybe my current neuro got notes or reports from that time. I would say most days the fruit to veg ratio is about equal. Some days the fruit may be more, but on average they probably balance out. With...

Wow, thanks for the reply! So I really don’t remember if they used the term opthalmolpolgia or not. I have read about INO before and remember thinking it seemed an awful lot like what I had. I don’t really have much on file from back then unfortunately, but my current neuro never talked about that. ...