Search found 36 matches

by Dahlia
Wed Feb 06, 2019 5:36 pm
Forum: General Discussion
Topic: gnawing, boring, itching sensation
Replies: 7
Views: 1245

Re: gnawing, boring, itching sensation

Up date on this, went to see neuro pre XMAS - does not think it is trigeminal neuralgia - have to have follow up brain and spine mri. Neuro thinks possibly a new lesion on the spinal cord. As I hate the mri machine, this could take some time to follow up.
by Dahlia
Sun Mar 11, 2018 5:01 pm
Forum: General Discussion
Topic: gnawing, boring, itching sensation
Replies: 7
Views: 1245

Re: gnawing, boring, itching sensation

thanks koneall - I see from google search that trigeminal neuralgia can be 'itch' - caused by the trigeminal or 5th cranial nerve in the face. As I was diagnosed with a cranial nerve palsy - this would probably fit. If it gets really bad 'again' I will go back to the pot. ...jimmylegs- glad you have...
by Dahlia
Sun Mar 11, 2018 1:37 pm
Forum: General Discussion
Topic: gnawing, boring, itching sensation
Replies: 7
Views: 1245

Re: gnawing, boring, itching sensation

Hi Jimmylegs, :-D Gluten-Free-Dairy/Egg-Free Pescatarian - no dietician. Before diagnosis I was Pescatarian for approx. 20yrs - post, removed the dairy, eggs and gluten. I keep track of my symptoms - this one appeared middle of 2017. Very obvious for a few days, then eventually disappeared - but ret...
by Dahlia
Sat Mar 10, 2018 5:45 pm
Forum: General Discussion
Topic: gnawing, boring, itching sensation
Replies: 7
Views: 1245

gnawing, boring, itching sensation

I'm coming up to 14yrs since diagnosis - no meds - gluten free vegan and eat fish. I can still walk 5kms without having to sit down, but can't run very well. About 1yr ago I developed this horrible annoying itching, boring, gnawing sensation on the right side of my head - just by ear - it comes and ...
by Dahlia
Tue Aug 28, 2012 3:04 am
Forum: General Discussion
Topic: The problem lies deep inside us!!!
Replies: 11
Views: 1695

Re: The problem lies deep inside us!!!

having suffered stomach problems myself and also a perforated duodenal ulcer (caused by the helicobacter pylori virus) - I would like to suggest that anyone with stomach problems take them very seriously ....... and make sure your doctor takes you seriously ... if not change doctors. 8O
by Dahlia
Tue Jul 17, 2012 2:58 pm
Forum: General Discussion
Topic: Multiple Sclerosis Drugs May Not Delay Disability
Replies: 14
Views: 2032

Re: Multiple Sclerosis Drugs May Not Delay Disability

This article reveals the lunacy of 'most' doctors ways of thinking about this disease - the drugs don't seem to be working - but, we're just going to keep prescribing them anyway ........ I really hate this disease. When I was diagnosed 7.5yrs ago the neurologist handed me a pile of pamphlets on the...
by Dahlia
Sat Jun 02, 2012 11:47 pm
Forum: Daily Life
Topic: Why doesn't the pain 'remit' completely?
Replies: 3
Views: 1786

Re: Why doesn't the pain 'remit' completely?

I had terrible burning pain in my back close to when I was diagnosed just over 7yrs ago, it seemed it would go on indefinitely - and then one day it just stopped. I tried meditation and MJ. These worked better than codeine and tramadol which did nothing - my doctors at the time were very much agains...
by Dahlia
Thu Mar 08, 2012 1:44 pm
Forum: General Discussion
Topic: Overwhelmed- WARNING- VENT POST
Replies: 7
Views: 1078

Re: Overwhelmed- WARNING- VENT POST

........ a holiday, what a fabulous idea ! I was diagnosed nearly seven yrs. ago. And, I am still asking myself the same questions. Though, it does seem I've decided not to go on the meds, and have chosen diet instead - for now anyway. But, that's only because my disease activity so far has 'not' be...
by Dahlia
Wed Jul 20, 2011 2:14 pm
Forum: General Discussion
Topic: Long-term international travel with MS
Replies: 8
Views: 1834

I had to pay extra for insurance as well - but the total was only about $330 AUD, and Australia also has a reciprocal Medicare agreement with a few countries including Italy. The process of obtaining medical insurance was made a little more complicated for me because I'd been in hospital - ironicall...
by Dahlia
Wed Jul 20, 2011 4:38 am
Forum: General Discussion
Topic: Long-term international travel with MS
Replies: 8
Views: 1834

yes, definately go !
I was in Italy recently for 2 months. I am not on meds and had no problem getting travel insurance. I managed to lift my heavy baggage onto trains and walk just about all day long. Go for it ! Have a great trip
by Dahlia
Thu May 26, 2011 11:33 pm
Forum: General Discussion
Topic: Travel
Replies: 2
Views: 1215

Travel

I finally made it overseas, I was diagnosed 6yrs ago and allowed my diagnosis to smother me. The diagnosis frightened me so much - that I thought that if I travelled I wouldn't be able to manage. But, 'stuff you MS!' I am finally here - I've been in Europe for 6 weeks. I've been walking for hrs and ...
by Dahlia
Sat Dec 11, 2010 11:13 am
Forum: General Discussion
Topic: Odd Question Perhaps......
Replies: 11
Views: 2108

thanks for the 'positive' comment 'Happy' Poet,

only an MRI could prove that........

however, I feel and am absolutely fine. No flare up of old symptoms, no new symptoms !

I'm doing really well !
by Dahlia
Fri Dec 10, 2010 1:55 pm
Forum: General Discussion
Topic: Odd Question Perhaps......
Replies: 11
Views: 2108

I had emergency surgery 2 1/2 months ago. I was cut open and had intense post op pain, and as you can imagine I was also under a lot of stress.

NO RELAPSE !

If you want a tattoo, get one !
by Dahlia
Thu Jul 29, 2010 2:00 pm
Forum: General Discussion
Topic: Had to give up Masters degree to MS..
Replies: 9
Views: 1932

If you don't feel you can manage right now - then this is the right decision to have made. But, there is always the possibility that you may feel up to it at another time. There might be an option to study part time. I completed a Masters by research degree during the time of MS diagnosis - and afte...
by Dahlia
Mon Jul 19, 2010 11:22 pm
Forum: General Discussion
Topic: Scientists link gut bacteria to EAE (and call it MS)
Replies: 4
Views: 1772

I just found this article on my usual look through MS news on google - and just thought 'wonders will never cease' .......... here I am - have been throwing up for 3/4 days and someone starts talking about the gut and MS. Fortunately it seems to have calmed a little. I started on a probiotic 2 days ...