This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Cece! Thanks for your helpful response! :) Nice to have a fellow Minnesotan here. I am grateful for the registry map. I certainly would appreciate being able to have this tested/treated locally...Especially since I really don't travel well anymore. In lightweight wheelchair and transferring mysel...

I am on waiting list for ccsvi testing/treatment.[Albany] Was told it would be "well into 2011". argh... Have spent many hours researching. Today I found a link to a page that describes in great detail the parameters of the studies in the U.S. They only accept patients with certain types o...

Seeing as nearly 5 months have passed since I began the abx protocol for ms, I figured it was high time for an update. Also for those who may be interested, I have suspected a chronic infection etiology for my ms since the dx 4 yrs ago, and welcomed the chance to try the protocol empirically. I migh...

Welcome, Vicky! Sorry to hear of your health situation, but you've come to the right place, my dear! I was dx'd with rrms 4 yrs ago, and until recently when I began an antibiotic regimen, I was steadily developing more ms symptoms. I am very hopeful so far with this treatment protocol[see it under &...

Marie, For me, just wanting to go xmas shopping would be a positive improvement! Now, after about a month of ax, I am starting to have enough energy to care about my appearance enough to go beyond just a daily shower, etc. I actually feel like styling my hair and stuff. I look forward to a day of xm...

Great news again, Gibble!! An increase from 10 up to 15 mins on the X-trainer is noteworthy. This is very motivating for you, no doubt, and for all is as well. Keep it up.
And Marie, thank you for your wonderfully positive attitude. It is contagious, you know. I hope to 'catch' it!

Hi Chris! Your situation brought back memories for me as well. I got my diagnosis 4 yrs ago just a couple days before xmas. **cue:the sweet sound of violins** I recall I could not work, and so money was tight--however, I was determined to buy gifts for my three young sons. So, I secretly scavenged a...

Roy, no hot flushes or fevers, per se, but Marie...I feel the same as you do [wierd sore throats, sniffly, sneezy feeling, burning eyes etc] Funny how much is sounds like allergies, or a cytokine response really, I suppose. I have noticed my sinuses feel the clearest in years! I feel things "mo...

haha Rica!

How about a "Frankenstein" rating---1-10[kind of like an EDSS.]

1, being a smooth easy gait, all the way up to 10, meaning push the smaller furniture out of the way, I'm coming through!

Hah! **tongue in cheek**

The stork test idea sounds like a keeper, though.

Ahhh...Marie...the errands, the dinner, the beach---fills me with blissful exhilaration!! Thanks for sharing.
KK2

Hahaha!... Melody, It's just that there are some people that I don't want knowing about my occasional incontinence, etc. Things like that, which are really nobody's business. Imagine how you would feel-it gets personal. I guess with losing control of my bodily function, I have attempted to maintain ...

Suzie, I am glad that you asked this question. However, all I can think of are the things not to do. For those interested parties, my don'ts: 1.Don't get a pained look on your face as you survey my, now crippled, body. [No matter that in the good old days we used to play 4 sets of tennis with ease]....

Hey Katman!! I just want to add my congratulations to the mounting pile! I am happier for you than you could ever imagine!~ Two reasons for this: 1. Your quality of life is continuing to go up, and 2. that maybe there is some hope for the rest of us! I really mean that. It's only been about a month ...

Thanks Katman! Filled with hope again, as usual. Input from you, and everyone, is priceless! Worth more than it's weight in gold.
-KK2

Thanks, gibble, whyrwehere, Melody, and Sarah, My sentiments as well! Still early on in the prot. for me, so I have not lost heart-am in it for the long haul. :lol: I have so far resisted steroids--never touch the stuff--do not want to start now-might mess things up. I am looking for a new neuro, bu...