This Is MS Multiple Sclerosis Knowledge & Support Community

6 month check up with neuro last month. I saw the PA, not the main doctor and she has been the 1st mainstream doctor to even acknowledge I may have lyme. Scheduled for another MRI within the next 6 months. Still undiagnosed and holding steady I guess- joint pain in hands and feet is pretty painful; ...

Just posting an update. Morning stiffness in my hands is horrible right now, so I left a message for the second neuro- that, plus tingling up and down spine, and maybe an increased l'hermitte's has really got me scared right now. I start my extra supplements at the end of this week - everything the ...

I will take another look at reservatrol! Thank you!

As for things to help with the l'hermitte's- I've so far tried yoga, and have a massage booked in a few weekends. I'm not opposed to accupuncture or reiki or thai yoga.

Japanese knotweed contains reservatrol...when I went to the autoimmune class in November...it was advised that MS patients do not take reservatorol (?) I just checked the handout again to make sure I read that right. I went to the chiropractor this past week, and I feel really good for a few hours a...

i will read that article- thank you Elliot! My LLMD wants me to do Banderol and Samento protocol. I haven't ordered it just yet, but am planning on next week.

Jimmylegs and NHE and everyone...I have been spending hours each day reading books and articles, seeing doctors.nutrionists/health specialists on avereg every 3 weeks or so since I began having trouble five (yes, 5!) months ago (it doensn't seem that long...and seems scary that I am still having iss...

Hi jimmylegs, thank you so much for responding back to me and I'll tell you my daily regimen! (i wasn't implying that I was going away- so sorry if my post read like that!) morning: cortef 5mg omega 3 4000 mg turmeric 1000mg B12 4000mg vitamin c 1000 mg probiotics (saccromyces boulardi and vsl#30 no...

NHE and jimmylegs- thank you for both responding! It helps me feel less alone. My followup neuro appt is in May, and I fear that I won't know anything else until they order another set of MRIs. Was this an isolated incident with the MS? Will I have more lesions? Will the two small ones I have still ...

hmm...went to look at September labs and my B6 plasma was 17 ug/L. (weird)

i was also positive igg for mycoplasma pneumonia - but doc said not to worry, a lot of people are

I received my most recent labs (done right around Christmas) and met with the LLMD today. of note: My vitamin B6 was very high- 58.6 ug/L. vitamin B12 was 927 pg?ml folate more than 20 ng/mL vitamin D, 25 hydroxy was 36.9 ng.mL Chlamydia pn was negative EBV showed antibodies to past infections (it w...

It's me again! I am meeting with the Lyme doctor this week to review the labs done right before Christmas. In the meantime, the LLMD's office called me and told me that I was being called in (to my local pharmacy) 5 mg of Cortef to take b/c my morning salvary cortisol is very low -I am to start that...

no zinc or copper testing from April

I checked the paperwork (I had the lab make me a copy this time) and serum manganese is not listed...under the nutrition section the only ones checked off are: Vitamin B6 Plasma, Vitamin B12 and Folate, and Vitamin D 25-Hydroxy. I did have magnesium tested in April of this year and it was 2.0 mg/dL....

Well, it's holiday season and I am still kind of in limbo. I had a ton of bloodwork done this morning, will be re-doing the lyme test and also testing for co-infections. I my naturopathic doctor last week just to review everything than has been going on (my former PCP, the one my insurance kicked of...

thank you jimmylegs and Elliot B.

On another note - have you heard of NeuroRepair at a health institute in New Mexico?