Search found 5 matches

by jab54
Thu Mar 19, 2020 9:47 am
Forum: Ocrevus (Ocrelizumab)
Topic: Why Ocrevus is a new favorite drug by doctors?
Replies: 9
Views: 6923

Re: Why Ocrevus is a new favorite drug by doctors?

I am concerned with evaluating the risks versus benefits of my next ocrevus infusion, esp. when there is a coronavirus pandemic. 1. If I skip my next ocrevus infusion will my MS progression rate be worse than before? 2. Is there evidence, prior cases, that reflect how primary progressive patients re...
by jab54
Fri Mar 15, 2019 2:06 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
Replies: 7
Views: 5152

Re: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS

Thank you HarbourBoy. That is exactly the sort of informative feedback I was hoping for. Our progression is very similar in years since diagnosis. I'm glad it has been worth it for you so far. Will be rooting for you. Some of my allergies appear to have become less sensitive. Fatigue I'm unsure of. ...
by jab54
Mon Feb 25, 2019 12:53 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
Replies: 7
Views: 5152

Re: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS

Thank you, ElliotB. It is unfortunate, for me, but I think that is exactly correct. I do wish you, and everybody else here well. I'll post again further on about my decisions and future outcomes.
by jab54
Thu Feb 21, 2019 1:41 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
Replies: 7
Views: 5152

Re: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS

Okay, there have been a bunch of views but no replies, which I'm guessing is because I mentioned how long I've had MS. I am also interested in the experiences of other individuals with PPMS using Ocrevus. Any thoughts on these questions: Has it been worthwhile? How has your fatigue been? Do fatigue ...
by jab54
Wed Feb 20, 2019 2:15 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
Replies: 7
Views: 5152

Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS

Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS but others too Hello, interested in hearing everybody's feedback on their Ocrevus experiences. I am 54 and have had MS for over 30 years, and like all of you I am trying to halt further progression. What have your expe...

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