Sure sounds like the stuff to fix the damage from MS
Thanks for sharing.
Search found 9 matches
- Mon Nov 15, 2021 3:41 pm
- Forum: General Discussion
- Topic: Spinal cord repair breakthrough
- Replies: 2
- Views: 1534
- Thu Jul 23, 2020 4:43 am
- Forum: Ocrevus (Ocrelizumab)
- Topic: Does anyone have an experience with Ocrevus that worsens progression?
- Replies: 4
- Views: 2291
Re: Does anyone have an experience with Ocrevus that worsens progression?
About two days after my last infusion I kinda crashed and burned for about a week or so. Seem to be back where I use to be now. Last one was five full doses. I feel some what stable on it with maybe some very minor improvements which is better than the slow steady progression I was in before it
- Sun Mar 08, 2020 5:34 pm
- Forum: General Discussion
- Topic: Sleep?
- Replies: 3
- Views: 1637
Re: Sleep?
Ment to say “not” quality sleep
- Sun Mar 08, 2020 5:32 pm
- Forum: General Discussion
- Topic: Sleep?
- Replies: 3
- Views: 1637
Re: Sleep?
Yes I am fatigued all day and seem to get a second wind at bedtime. If it were not for starting work early in the morning I would switch my schedule. I have been taking a prescription sleeping pill every night for four or five years now. I don’t think sleeping under the influence of a drug is qualit...
- Tue Jan 14, 2020 6:01 am
- Forum: General Discussion
- Topic: Myelin Switch
- Replies: 4
- Views: 961
Re: Myelin Switch
Hopefully they are on to something that actually repairs our disease damage
- Mon Jul 08, 2019 4:14 pm
- Forum: Ocrevus (Ocrelizumab)
- Topic: Why Ocrevus is a new favorite drug by doctors?
- Replies: 9
- Views: 6837
Re: Why Ocrevus is a new favorite drug by doctors?
I think that chart reflects a 25% reduction in progression compared to no treatment. It’s not much but I guess 25% is better than nothing. I might be wrong
- Sat Mar 16, 2019 5:49 pm
- Forum: Ocrevus (Ocrelizumab)
- Topic: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
- Replies: 7
- Views: 5035
Re: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
Yes it’s unfair to anyone reading , for me to jump to too many collusion’s here but I’m happy I was at long last prescribed a DMT and now have more feeling better days than feeling worse ones. It’s been a slow steady decline over a lot of years to get here. And suspect a claw back would be over arou...
- Fri Mar 08, 2019 6:53 pm
- Forum: General Discussion
- Topic: MS review: The division of MS in "types" was made up just to approve interferons
- Replies: 4
- Views: 1508
Re: MS review: The division of MS in "types" was made up just to approve interferons
My initial PPMS diagnosis was just exactly that. Slow steady decline with no remittances. I think different immune systems just fight MS differently but the disease is all the same one. Compassionate Drs knew that there was no medically proven treatment for PPMS so hesitated to label a patient unles...
- Sun Mar 03, 2019 6:37 pm
- Forum: Ocrevus (Ocrelizumab)
- Topic: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
- Replies: 7
- Views: 5035
Re: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
Hello I was diagnosed in 2005 PPMS Started Ocrevus June 2018 I’m two full doses in. No more fatigue than before. Chronic migraines have all but disappeared. Can stand for longer and easier. The jury is still out on my balance. Still bladder urgency. Overall I feel better. Am 59 years old. Had a bad ...