Search found 9 matches

by HarbourBoy
Mon Nov 15, 2021 3:41 pm
Forum: General Discussion
Topic: Spinal cord repair breakthrough
Replies: 2
Views: 1534

Re: Spinal cord repair breakthrough

Sure sounds like the stuff to fix the damage from MS
Thanks for sharing.
by HarbourBoy
Thu Jul 23, 2020 4:43 am
Forum: Ocrevus (Ocrelizumab)
Topic: Does anyone have an experience with Ocrevus that worsens progression?
Replies: 4
Views: 2291

Re: Does anyone have an experience with Ocrevus that worsens progression?

About two days after my last infusion I kinda crashed and burned for about a week or so. Seem to be back where I use to be now. Last one was five full doses. I feel some what stable on it with maybe some very minor improvements which is better than the slow steady progression I was in before it
by HarbourBoy
Sun Mar 08, 2020 5:34 pm
Forum: General Discussion
Topic: Sleep?
Replies: 3
Views: 1637

Re: Sleep?

Ment to say “not” quality sleep
by HarbourBoy
Sun Mar 08, 2020 5:32 pm
Forum: General Discussion
Topic: Sleep?
Replies: 3
Views: 1637

Re: Sleep?

Yes I am fatigued all day and seem to get a second wind at bedtime. If it were not for starting work early in the morning I would switch my schedule. I have been taking a prescription sleeping pill every night for four or five years now. I don’t think sleeping under the influence of a drug is qualit...
by HarbourBoy
Tue Jan 14, 2020 6:01 am
Forum: General Discussion
Topic: Myelin Switch
Replies: 4
Views: 961

Re: Myelin Switch

Hopefully they are on to something that actually repairs our disease damage
by HarbourBoy
Mon Jul 08, 2019 4:14 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Why Ocrevus is a new favorite drug by doctors?
Replies: 9
Views: 6837

Re: Why Ocrevus is a new favorite drug by doctors?

I think that chart reflects a 25% reduction in progression compared to no treatment. It’s not much but I guess 25% is better than nothing. I might be wrong
by HarbourBoy
Sat Mar 16, 2019 5:49 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
Replies: 7
Views: 5035

Re: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS

Yes it’s unfair to anyone reading , for me to jump to too many collusion’s here but I’m happy I was at long last prescribed a DMT and now have more feeling better days than feeling worse ones. It’s been a slow steady decline over a lot of years to get here. And suspect a claw back would be over arou...
by HarbourBoy
Fri Mar 08, 2019 6:53 pm
Forum: General Discussion
Topic: MS review: The division of MS in "types" was made up just to approve interferons
Replies: 4
Views: 1508

Re: MS review: The division of MS in "types" was made up just to approve interferons

My initial PPMS diagnosis was just exactly that. Slow steady decline with no remittances. I think different immune systems just fight MS differently but the disease is all the same one. Compassionate Drs knew that there was no medically proven treatment for PPMS so hesitated to label a patient unles...
by HarbourBoy
Sun Mar 03, 2019 6:37 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS
Replies: 7
Views: 5035

Re: Seeking feedback on Ocrevus for PPMS, esp. from those 10-30 years POST DIAGNOSIS

Hello I was diagnosed in 2005 PPMS Started Ocrevus June 2018 I’m two full doses in. No more fatigue than before. Chronic migraines have all but disappeared. Can stand for longer and easier. The jury is still out on my balance. Still bladder urgency. Overall I feel better. Am 59 years old. Had a bad ...

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