Search found 6 matches
- Sat May 21, 2022 9:07 am
- Forum: Undiagnosed
- Topic: late onset (LOMS) with clean MRIs?
- Replies: 1
- Views: 1019
late onset (LOMS) with clean MRIs?
There seems to be some debate about whether all LOMS are actually late diagnosis MS. A US specialist told me last week that " when I diagnose MS late (in 50s or 60s), when I look at imaging I see that patients must have had the disease for decades. " "you can tell from the amount of l...
- Mon Apr 11, 2022 1:45 am
- Forum: Undiagnosed
- Topic: Where can I buy DMTs without prescription, at my own risk?
- Replies: 6
- Views: 6828
Re: Where can I buy DMTs without prescription, at my own risk?
Many thanks both Scott1 and NHE; appreciate very much you both taking the time for your thoughtful replies. This an interesting blog today by a leading UK MS academic on how some of his patients are biohacking with off-label meds; https://gavingiovannoni.substack.com/p/ms-biohackers-beware?s=r Best ...
- Sun Apr 10, 2022 9:07 am
- Forum: Undiagnosed
- Topic: Many syptoms, + oligoclonal bands, - MRI
- Replies: 11
- Views: 1771
Re: Many syptoms, + oligoclonal bands, - MRI
I'd suggest 1. do a self-pay visual evoked potential (no referral needed I found); results will help the diagnosis. 2. start DMTs if you can get hold of some somehow; big benefit of starting early if you have MS, low side effect risk, can just stop later if it's not MS. https://www.thisisms.com/foru...
- Sun Apr 10, 2022 9:04 am
- Forum: Undiagnosed
- Topic: Where can I buy DMTs without prescription, at my own risk?
- Replies: 6
- Views: 6828
Where can I buy DMTs without prescription, at my own risk?
Research is showing that early use of DMTs can materially change the long-term development curve of MS. e.g. " The time of treatment is critically important in limiting the progression of the multifaceted pathways of this disease. " https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6277889 Also...
- Sun Apr 10, 2022 8:57 am
- Forum: Undiagnosed
- Topic: Confused on what’s going on -clear mri
- Replies: 12
- Views: 2696
Re: Confused on what’s going on -clear mri
Hi Abi12345 what happened? hope all ok
- Sun Apr 10, 2022 8:54 am
- Forum: Undiagnosed
- Topic: Ongoing neurological issues have me concerned about PPMS
- Replies: 4
- Views: 2410
Re: Ongoing neurological issues have me concerned about PPMS
Hi , how have things developed? best wishes