Search found 87 matches

by sojourner
Fri Mar 12, 2010 5:23 pm
Forum: General Discussion
Topic: Minocycline use for RRMS
Replies: 10
Views: 3596

Think my husband always took about 2000 mgs, but one study says 500mgs 2 X per day.
by sojourner
Fri Mar 12, 2010 12:36 pm
Forum: General Discussion
Topic: Minocycline use for RRMS
Replies: 10
Views: 3596

Brock, Do you supplement with Vitamin C? There is evidence (lots of research if you do a search )that this can help with the hyperpigmentation issues with Mino. Whenever my husband uses mino his dr. always tells him to also take C---in faily large amounts. Otherwise, I am glad to hear you are doing ...
by sojourner
Tue Feb 09, 2010 11:33 am
Forum: General Discussion
Topic: Veterans
Replies: 6
Views: 2691

I don't want to get anyone off track here, but I felt compelled to add this. My husband spent 11 yrs in the Marines, and was dx'd with MS about eight yrs after seperation. He has found out about a number of Marine Corps colleagues who have also been dx'd with MS or ALS. As it turns out, we think he ...
by sojourner
Wed Aug 26, 2009 7:10 pm
Forum: General Discussion
Topic: interesting article on the appendix, Lyon please read!
Replies: 7
Views: 2433

No not recently, when I was 8 (I was very ill indeed). So far so good for me except for persistently swollen lymph nodes of unexplained origin.

MS skipped me, went to my sister and my husband, and they both have their appendix(es).
by sojourner
Tue Aug 25, 2009 5:33 pm
Forum: General Discussion
Topic: interesting article on the appendix, Lyon please read!
Replies: 7
Views: 2433

Well, mine ruptured--what's in store for me??
by sojourner
Sat Aug 22, 2009 9:26 am
Forum: General Discussion
Topic: SIGNIFICANCE(?) OF THE FAROE ISLANDS
Replies: 38
Views: 8826

Another take on the Faroes' MS Epidemic. I guess it's all in one's perspective. Researcher Markus Fritzsche offers his opinion here: The arrows on Fig. 6 represent the migratory routes of seabirds, if a number of species such as puffins and seagulls are taken together. To avoid very cold and hot weat...
by sojourner
Fri Aug 21, 2009 5:12 am
Forum: General Discussion
Topic: have you seen this movie?
Replies: 5
Views: 2098

I have the DVD, and it is revealing. If you all lived closer, I'd invite you over for popcorn.

You can buy it here (disclaimer: I have NOTHING to do with this movie, just passing on info)

http://www.underourskin.com/store_home.html
by sojourner
Mon Jun 29, 2009 8:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Geographic distribution, MS and CCSVI
Replies: 43
Views: 11342

Ha! Anyone dealing with this maddening disease is bound to become a mad hatter themselves! I have heard an interestingly similar theory about gravitational pull/magnetic field gradient, and the natural disposition of nation states. Whose to say what is mad......when we know so little about anything....
by sojourner
Sun Jun 28, 2009 5:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Geographic distribution, MS and CCSVI
Replies: 43
Views: 11342

Geographic distribution, MS and CCSVI

Hi Guys, First, a shout out to all of you guys who are forging ahead........Thanks to all you brave ones! One of the more accepted aspects of MS is its geographic distribution. How does one marry the CCSVI theory with this? Here is my quandry--- if we were only talking genetics, inheritance could be...
by sojourner
Thu Mar 19, 2009 8:00 am
Forum: General Discussion
Topic: 10 sec's of our ms poster boy
Replies: 26
Views: 4806

His relationship (PAID relationship!) with the Pharmaceutical Research and Manufacturers of America (PhRMA) is disturbing to me. He is a paid spokesman for big pharma. The same big pharma that plans to spend millions in an ad campaign to make sure citizens are aware of the importance of "free m...
by sojourner
Wed Mar 18, 2009 5:54 pm
Forum: General Discussion
Topic: Bartonella induced MS
Replies: 1
Views: 2231

Bartonella induced MS

http://www.uvaldeleadernews.com/articles/2008/11/17/news/news1.txt Our 17 yr old is thought to have been infected with two strains of this bug....which in her case caused a lot of psychiatric symptoms. Luckily her mri's were normal, but they did show "enlarged perivascular spaces" and trea...
by sojourner
Sat Mar 14, 2009 2:50 pm
Forum: General Discussion
Topic: My MS Mis-Diagnosis please read!!!
Replies: 59
Views: 18966

So what, people post on multiple forums all the time. I post here, MS world, CPn Help and lymenet (I don't do multiple posts--it's just not my thing), and I see many people who post the same questions and such. Heck, I know some people here who do that. I think Andrew using the same name in his mult...
by sojourner
Sat Mar 14, 2009 1:44 pm
Forum: General Discussion
Topic: My MS Mis-Diagnosis please read!!!
Replies: 59
Views: 18966

Well, good thing you aren't king around here, Peta. Tell us, what did you find out about Andrew???? I googled him too and found nothing. I also googled myself and found many interesting things about ME!-It was fun!! The trailer to the movie is actually a link to a pretty good documentary---won a Tri...
by sojourner
Sat Mar 14, 2009 8:30 am
Forum: General Discussion
Topic: My MS Mis-Diagnosis please read!!!
Replies: 59
Views: 18966

[/quote] There are many Lyme forums on the internet.[quote] I know, but I like it here, Peta. The fact is there may be a lyme(bacterial/MS) link and my husband is and always will be MS diagnosed.......so I do feel I belong. I am glad you received comprehensive treatment for lyme, and that you have r...
by sojourner
Sat Mar 14, 2009 7:48 am
Forum: General Discussion
Topic: My MS Mis-Diagnosis please read!!!
Replies: 59
Views: 18966

Oh no, I'm not going off on Robbie!!!! If it seems that way, I am sorry......I am not. I am just trying to get some info out that never sees the light of day, however, that doesn't mean the data doesn't exist. I don't care how, when, where one had a lyme test; whether it was on blood, spinal fluid, ...

Go to advanced search