This Is MS Multiple Sclerosis Knowledge & Support Community

So once again, someone asked me for my info and I followed my links to check in. Last time I posted was a year ago - and while I'm crazy busy and can't post often (actually don't have anything MSish to report or post!) I thought I'd pop in and say I am still symptom and deficiency free, also abx fre...

Hello (waving)... A friend asked me for info about my treatment choices and I followed the links I sent to her and ended up reading here again. I'm one of the ones that followed the Wheldon CAP and still take LDN, and I disappeared from this Forum. I stopped CAP awhile ago... 18 months or more. This...

Well, it wasn't going away like I thought! It just changed location and moved farther down my arm. Kept moving slowly down (about a 4" patch) until it "escaped" out the tip of my thumb! Was SO odd... like a creature was in my arm deadening the feeling as it slithered down. It lasted a...

Well, I'm pulsing again - and the left shoulder/arm/hand thing is over. It lasted a long time though... 8-10 weeks? It started in my left shoulder, and slowly moved down my arm until it reached the tip of my thumb and stayed there for several weeks.... it was so odd. It was never my whole arm - just...

Hey guess what...
I think the numbness is going away


Yahoo!!


Since I have no experience with exacerbations... my eyes were out for a month, and the tingling was bad for a year or more..... can an exacerbation only be a few days??

Hi Gd, Well, it certainly sounds neurological... and I'm jealous of your clear brain scan :) I would get a 2nd opinion neuro consult if I were you... just so it isn't something you later found out could have been helped with early treatment. I also wanted to say that I have a definite MS diagnosis (...

Thanks Sarah!

Thank you both. I guess I should stop focusing on being "done" and just focus on remembering to take my vitamins and schedule pulses. I, too, am unsure if I would recognize a gradual decline as I am so busy each day, with kids, animals and a job to juggle - there is no such thing as "...

Mac- I did read your thread and, well - sorry about the mutual nausea... mine also was a breathe-and-don't-move day yesterday. Not a good day. And I have a sick little one home yesterday and today, so I can't just stay down. The thing that is worrying me - os that this symptom didn't START with the ...

I wrote the above post in Oct, then did a pulse in November.... then got busy and was feeling so great, that I didn't pulse again, and pretty much stopped taking vitamins.... Saw my Neuro 2 weeks ago and was proclaimed "boring" and no issues. Then all of a sudden this week had a return of ...

The odd "numbness" is still there - it's almost like a stripe across the top of my shoulder - neck to arm, about 3 inches wide. Very weird and not pleasant. I started to panic this morning as my arm felt very weak while I was typing... and the feet and leg tingling are coming and going. Ye...

Thank you for responding Sarah - and the posts you quoted were the ones I read this morning and put my mind a little at ease. I ordered more Vit D and B12 sublingual as I was out of the D and low on B12... and dutifully took my vitamins this morning. I also rested in bed for a bit and the tingling i...

Lori and Mac~ Thank you for the quick replies. I'm 10 hours into the Flagyl pulse with 2 pills taken. I'm starting to maybe feel fatigued... but not sure if it is the kids' cold I've been holding at bay or Flagyl. The left arm is definitely not right. I'm wondering if this pulse will be easy or hard...

OK... I'm trying to remain calm. I've been slacking. I admit. And now I guess I'm paying for it and need to get back on track ASAP. Any help appreciated. For the past 18 months, I've had no symptoms - occasional tingling in the feet and lower legs during a flagyl pulse - but felt great with no issue...

Wiggy! That's wonderful!! My MRI also showed no new lesions and no progression - amazing. As my Dr. told me - Keep doing what you are doing!