Search found 802 matches

by notasperfectasyou
Tue May 08, 2018 6:59 pm
Forum: General Discussion
Topic: Cheap Provigil alternative?
Replies: 3
Views: 1496

Re: Cheap Provigil alternative?

For some reason that isnt entirely clear, Kim's Blue Cross BLue Shield CareFirst health plan, doesn't want to cover Modafinil anymore. Is there a less expensive way to get it in Canada or is there a less expensive drug that MS patients are taking now?
by notasperfectasyou
Sun Dec 17, 2017 8:45 pm
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 70433

Re: In Pursuit of ABX - May I have coffee with my milkshake?

Ken, I have only just seen all this, because I have been unable to get on to the site for months. Now I will make sure that I keep checking! Happy Christmas to all four of you! Sarah .... and a very Merry Christmas to you and David too! It has been a very long road and we are still traveling. Big P...
by notasperfectasyou
Fri Dec 15, 2017 8:41 am
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 70433

Re: In Pursuit of ABX - May I have coffee with my milkshake?

Ken sorry for the late reply. I'm rarely on TIMS. I am so glad to hear that Dr S was so supportive. Love him! I would love to talk with Kim. I think I still have her cell number and will give her a call! Btw-you are an awesome husband! And I'm sure Kim knows it! Lori Happy Christmas Lori! Kim would...
by notasperfectasyou
Tue Aug 08, 2017 2:37 pm
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 70433

Re: In Pursuit of ABX - May I have coffee with my milkshake?

Loriyas wrote:Hi Ken,
Any updates?
Lori
Hi Lori, I've been updating the post a few above this one. I think I am up to over 30 edits to it. I have fallen behind, but will try to get it all caught up soon. How are you doing? We pursued stem cells with Sriram's encouragement. Ken
by notasperfectasyou
Wed Jul 19, 2017 8:14 pm
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 70433

Re: In Pursuit of ABX - May I have coffee with my milkshake?

Lori,
Kim and I appreciate your kind thoughts. I don't have to tell you how hard this road is, but we are doing what we need to do because we can. I'll likely have a daily/or so addition. Stay in touch, Ken
by notasperfectasyou
Sun Jul 16, 2017 8:08 pm
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 70433

Clinica Ruiz in Monterrey Mexico

From the moment we arrived at the airport, the Clinica Ruiz staff has been attending to our needs and making sure we are cared for. Ulices picked us up at the airport, late Saturday night. We were hours late due to weather. Our home away from home is a very nice two bedroom/bath apartment that the c...
by notasperfectasyou
Wed Apr 26, 2017 7:19 pm
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 70433

Re: In Pursuit of ABX - May I have coffee with my milkshake?

I'm going to start a new post in this thread because ........ KIM HAS GOTTEN INTO CLINICA RUIZ IN MEXICO!!!!! I'll have a lot to say as we go thought this, but I want to respond to the question about why I'm posting here and not in the Stem Cell forum - I think this Stem Cell and Chemotherapy proced...
by notasperfectasyou
Wed Apr 05, 2017 7:43 pm
Forum: Stem Cells
Topic: I will go for MSCT in China
Replies: 40
Views: 9385

Re: I will go for MSCT in China

Have you looked at Celltex? It might cost less and they are based in Texas.
by notasperfectasyou
Wed Mar 29, 2017 4:45 am
Forum: Stem Cells
Topic: Non-myeloablative HSCT in Israel (CTCI clinic)
Replies: 6
Views: 6330

Re: Non-myeloablative HSCT in Israel (CTCI clinic)

Is this clinic still in operation? I'm trying to find a working website or email address for them. Thanks, Ken
by notasperfectasyou
Sun Feb 19, 2017 8:13 pm
Forum: Stem Cells
Topic: Stem Cell Therapy Roll Call - Have you had Stem Cell Therapy
Replies: 13
Views: 3240

Re: Stem Cell Therapy Roll Call - Have you had Stem Cell The

Well I have more of a question than an answer. My wife found some literature regarding stem cell treatments for a variety of problems including MS at a clinic near my house. So I went to a seminar at the clinic tonight. The doctor seemed well informed. He explained how the treatment is done. The st...
by notasperfectasyou
Sun Feb 19, 2017 8:06 pm
Forum: Stem Cells
Topic: 3 year (1/2) HSCT checkup.
Replies: 7
Views: 2484

Re: 3 year (1/2) HSCT checkup.

Congratulations ReallyReally. Was this with Dr. Burt? What was your EDSS before and what is it now? What was their screening process like to get in? Thanks for posting, Ken
by notasperfectasyou
Wed Feb 08, 2017 3:06 pm
Forum: Antibiotics
Topic: Why don't links I make to CPn Help work?
Replies: 1
Views: 2064

Why don't links I make to CPn Help work?

my old posts include links and they don't work. I'd like to include in new post. Please help. Thanks, Ken
by notasperfectasyou
Wed Feb 08, 2017 8:12 am
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 70433

Re: In Pursuit of ABX - May I have coffee with my milkshake?

Hi Ken Hi Lori, How have you been. I took a quick look at your log, but didn't look updated. We just saw the doc in November (timed the appt with the Keith Urban concert :-D ). He had little that was new and Kim's been sliding. He suggested we might look at stem cells, has one other patient who has...
by notasperfectasyou
Thu Feb 02, 2017 3:03 pm
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 70433

HSCT Stem Cell Therapy articles

I have a bunch of articles about Hematopoietic Stem Cell Transplantation (HSCT). I'll keep adding them to this post. Most of the articles revolve around SPMS since that is what Kim has. Burt, Richard et al. 2012 Autologous hematopoietic stem cell transplantation for multiple sclerosis – if confused ...
by notasperfectasyou
Thu Jan 12, 2017 8:29 pm
Forum: Stem Cells
Topic: Stem Cell Therapy Roll Call - Have you had Stem Cell Therapy
Replies: 13
Views: 3240

Re: Stem Cell Therapy Roll Call - Have you had Stem Cell The

Hi HUD, thanks for posting. How did you find the center in Israel and do you know of other places on the internet that are good for finding folks who have had stem cell for MS? I was wondering if your HSCT procedure involved chemo. Elliott, I hear you, but here's the thing ... MS is believed to be a...