Search found 80 matches
- Fri Jan 08, 2016 11:50 am
- Forum: General Discussion
- Topic: If I Could Do it Over
- Replies: 6
- Views: 1477
If I Could Do it Over
If I Could Do it Over First, I would make it an assignment, a duty, to go outside and walk. Every day. I lived in Southern California! I had a favorite spot to walk...but I had issues. But to just WalK. Because if you want to hold onto something, you keep doing it. And SwimminG. I went to a weekly M...
- Sun Oct 11, 2015 1:41 pm
- Forum: Biotin (Qizenday, Cerenday, MD1003)
- Topic: Biotene - diahrea?
- Replies: 10
- Views: 6701
Re: Biotene - diahrea?
I did two days of 100 mg 3x/day.
The third day, I woke up and as soon
as I opened my eyes, it was coming out.
Good morning!
I have since gone down to 100 mg/day
and will slowly ramp back up.
I am positive that it was the Biotin.
The third day, I woke up and as soon
as I opened my eyes, it was coming out.
Good morning!
I have since gone down to 100 mg/day
and will slowly ramp back up.
I am positive that it was the Biotin.
- Sun Oct 11, 2015 10:14 am
- Forum: General Discussion
- Topic: Autologous stem cell therapy (adult fat-derived stem cells)
- Replies: 13
- Views: 3349
Re: Autologous stem cell therapy (adult fat-derived stem cel
Hello I've talked to the people at stemgenex They do not use chemotherapy in their treatment. I feel like it is only a moneymaking venture. They say The body fat is superior to bone marrow and that the method of taking cells from bone marrow is "prehistoric". That the body fat contains hun...
- Thu Aug 27, 2015 12:29 pm
- Forum: Daily Life
- Topic: Using a catheter
- Replies: 2
- Views: 4147
Re: Using a catheter
Hello
I used a intermittent catheter for a while, now I have a supra pubic catheter.
I love it. It gives me a lot of freedom.
I used a intermittent catheter for a while, now I have a supra pubic catheter.
I love it. It gives me a lot of freedom.
- Sun Dec 21, 2014 12:13 pm
- Forum: Drug Pipeline
- Topic: Seroquel, to remyelinate?
- Replies: 2
- Views: 2246
Seroquel, to remyelinate?
http://mssociety.ca/en/help/msupdates/m ... 131118.htm
The Drug Seroquel is being tested for remyelination, in mice with EAE.
I am taking this drug...a web search for Seroquel multiple sclerosis turned this up.
The Drug Seroquel is being tested for remyelination, in mice with EAE.
I am taking this drug...a web search for Seroquel multiple sclerosis turned this up.
- Thu Sep 25, 2014 9:38 pm
- Forum: Low Dose Naltrexone
- Topic: Why did LDN make me so much worse?
- Replies: 11
- Views: 19228
Re: Why did LDN make me so much worse?
I started Ldn 4.5 recently, and my spasticity is much, much worse...since Starting the ldn. I thoghnt that maybe it was the compression stockings I need to wear now or stress caused by the decision as to whether to get the baclofen pump or not . I have been wheel chair bound for the past two years. ...
- Mon Apr 28, 2014 9:52 pm
- Forum: Aimspro
- Topic: Coming to America... ?
- Replies: 1
- Views: 7399
Coming to America... ?
"Data from a centralised retrospective analysis of clinical outcomes from patients with progressive multiple sclerosis were presented at the Consortium of Multiple Sclerosis Centers (CMSC) and Cooperative Meeting with Americas Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS)...
- Fri Mar 07, 2014 10:34 am
- Forum: General Discussion
- Topic: Contraceptive pill may increase Multiple Sclerosis risk
- Replies: 3
- Views: 1388
Re: Contraceptive pill may increase Multiple Sclerosis risk
I've known for years that, for me, there is a hormonal component as, every month, like clockwork, I feel Grrreat the day before my period starts. Not sure what exactly is happening with my hormones here...but I wish that I knew. Maybe estrogen drops, but testosterone does not. I went on a bcp (at th...
- Thu Jan 23, 2014 1:48 pm
- Forum: Aubagio (Teriflunomide)
- Topic: Aubagio
- Replies: 51
- Views: 53177
Re: Aubagio
Aubagio The dr says that the mri shows no new legions Afte 1 year on aubagio. However, my condition continues to worsen at what I feel is a rapid rate. Another drug I started about the same time was Norethindrone (I wanted to see if progesterone made a positive change. I gave it a hole year... It ...
- Sat Oct 19, 2013 8:41 pm
- Forum: Betaseron
- Topic: Scared - any advice?
- Replies: 7
- Views: 8332
Re: Scared - any advice?
My advice...if you decide to quit, titrate DOWN.
- Sat Oct 19, 2013 8:15 pm
- Forum: Regimens
- Topic: B vitamins
- Replies: 9
- Views: 4841
Re: B vitamins
My physiotherapy(?) dr. Told me last
visit that insufficient B vitamins leads
To nerve damage!
visit that insufficient B vitamins leads
To nerve damage!
- Fri Oct 18, 2013 10:06 pm
- Forum: Medical Marijuana
- Topic: Cannabis
- Replies: 13
- Views: 10888
Re: Cannabis
Here I am a year later. My ms is much worse since april of 2012. But that I blame on moving to a humid city And quitting my ms drug (betaseron) abruptly When i moved. I now wonder if cannabis makes my ms worse as I had a big flare (untreated!) in '09 after returning Home from an unhealthy (read: lot...
- Wed Sep 11, 2013 5:05 pm
- Forum: Drug Pipeline
- Topic: Myelin peptide transdermal patch
- Replies: 3
- Views: 3618
Re: Myelin peptide transdermal patch
This is very exciting.
- Tue Sep 10, 2013 9:27 pm
- Forum: General Discussion
- Topic: Researchers find possible link between sleep and MS
- Replies: 4
- Views: 1941
Re: Researchers find possible link between sleep and MS
Just when I am wondering if my recent 12-hour slumbers may be boosting my immune system and contributing to my disease progression.
If ms is truly n autoimmune disease, anyway.
If ms is truly n autoimmune disease, anyway.
- Sat Aug 31, 2013 7:43 pm
- Forum: Daily Life
- Topic: Facebook?
- Replies: 15
- Views: 12209
Re: Facebook?
And there is NO cancelling an account.