Search found 216 matches
- Fri Apr 29, 2011 12:13 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Steve M - 18 months have passed
- Replies: 9
- Views: 3881
Everyone, thanks for the warmth. Cece, he has had one check-up with Dr. Dake six months after the surgery. He should have another, but we have been unable to afford the cost. He will begin receiving Medicare benefits as of July this year, so I'm hoping that will help us afford another check-up (hope...
- Wed Apr 20, 2011 1:29 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Steve M - 18 months have passed
- Replies: 9
- Views: 3881
Steve M - 18 months have passed
My husband Steve's surgery at Stanford was 18 months ago as of the end of this March. This is significant, because he has SPMS. Since the surgery, he has experienced some progression, but it seems to have stopped. Actually, he's doing quite well now. I attribute this to the passage of the 18 months,...
- Tue Mar 30, 2010 7:32 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: A CCSVI Patient Log: All About Steve
- Replies: 145
- Views: 37380
Thanks guys! Fortunately, Steve's MS was very slow in progression till he was middle-aged...and he didn't know he had MS until 2005...didn't know why he had urinary urgency, ED, chronic clumsiness, chronic constipation, why he was sleepy all the time, why he had increasing balance problems, nervous ...
- Thu Mar 25, 2010 6:57 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: A CCSVI Patient Log: All About Steve
- Replies: 145
- Views: 37380
Within a few days of my last comment, Steve began to improve and has stayed consistently in better shape---stronger, more energy, and clearer head. Yesterday, he mowed a small yard with a push-type power mower while I was at work (against my strong discouragement). He would not have been able to do ...
- Thu Mar 04, 2010 7:05 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: The dangers of false hope ?
- Replies: 40
- Views: 9573
Hope is indispensable in surviving the daily grind of MS...whether it's reasonable hope or false hope. Hoping any at all may seem foolish to those on the outside, but to the outsiders I offer this argument: 1. Medical discoveries and advances are happening every day. 2. MS is not excluded from the i...
- Wed Mar 03, 2010 2:44 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: A CCSVI Patient Log: All About Steve
- Replies: 145
- Views: 37380
Wow! I missed all the nastiness---thanks for the clean-up dear moderator! Thanks for your concern, but we are both very well supplemented. Our respective regimes are based on doctor's recommendations, years of research, and years of trial and error. And yes, it costs an arm and a leg! Steve is doing...
- Tue Feb 23, 2010 8:53 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: A CCSVI Patient Log: All About Steve
- Replies: 145
- Views: 37380
Michele, Mutley, et al, This is something for you to stick in the back of your minds. Since Steve's CCSVI treatment at the end of September, he and I have been through round after round of respiratory infections. The effect on Steve has been that he would be done with the acute respiratory symptoms ...
- Tue Feb 23, 2010 8:23 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Bird Poison okay...but we need to be cautious with CCSVI???
- Replies: 19
- Views: 5565
- Fri Feb 19, 2010 1:42 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Ella's adventures in Katowice
- Replies: 117
- Views: 26717
- Mon Feb 15, 2010 8:59 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Ella's adventures in Katowice
- Replies: 117
- Views: 26717
- Thu Feb 11, 2010 9:34 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: US Media Coverage...Begins Now :-)
- Replies: 32
- Views: 7581
- Mon Jan 25, 2010 12:38 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr. Dake - a new title
- Replies: 11
- Views: 3707
- Tue Jan 12, 2010 1:06 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Gibbledygook's Stents
- Replies: 227
- Views: 42927
Hi Alexandra, Wow! Pregnant at last! I know you've wanted this for a very long time. Congratulations!!! Since Steve had his 3 stents and 1 angioplasty at the end of September, he's had one infection after another. As soon as he recovers from each infection, he begins to improve (even his balance), a...
- Wed Dec 30, 2009 6:57 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: The wait is killing me.....so lets kill some time
- Replies: 7
- Views: 2797
- Thu Dec 24, 2009 6:56 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Update on my husband
- Replies: 19
- Views: 6816