This Is MS Multiple Sclerosis Knowledge & Support Community

Everyone, thanks for the warmth. Cece, he has had one check-up with Dr. Dake six months after the surgery. He should have another, but we have been unable to afford the cost. He will begin receiving Medicare benefits as of July this year, so I'm hoping that will help us afford another check-up (hope...

My husband Steve's surgery at Stanford was 18 months ago as of the end of this March. This is significant, because he has SPMS. Since the surgery, he has experienced some progression, but it seems to have stopped. Actually, he's doing quite well now. I attribute this to the passage of the 18 months,...

Thanks guys! Fortunately, Steve's MS was very slow in progression till he was middle-aged...and he didn't know he had MS until 2005...didn't know why he had urinary urgency, ED, chronic clumsiness, chronic constipation, why he was sleepy all the time, why he had increasing balance problems, nervous ...

Within a few days of my last comment, Steve began to improve and has stayed consistently in better shape---stronger, more energy, and clearer head. Yesterday, he mowed a small yard with a push-type power mower while I was at work (against my strong discouragement). He would not have been able to do ...

Hope is indispensable in surviving the daily grind of MS...whether it's reasonable hope or false hope. Hoping any at all may seem foolish to those on the outside, but to the outsiders I offer this argument: 1. Medical discoveries and advances are happening every day. 2. MS is not excluded from the i...

Wow! I missed all the nastiness---thanks for the clean-up dear moderator! Thanks for your concern, but we are both very well supplemented. Our respective regimes are based on doctor's recommendations, years of research, and years of trial and error. And yes, it costs an arm and a leg! Steve is doing...

Michele, Mutley, et al, This is something for you to stick in the back of your minds. Since Steve's CCSVI treatment at the end of September, he and I have been through round after round of respiratory infections. The effect on Steve has been that he would be done with the acute respiratory symptoms ...

My sister recently sent me an e-mail about Ampyra at the urging of her gentleman friend. This was my reply: "Hi _____, Thanks for sending this. Yes, I've known about it and have considered it for special occasion use. Before Ampyra, 4-ampyridine (a potassium channel blocker) was a drug availabl...

Ella, You have a great host of MSers and MSer lovers pulling for you, but relax. It's possible to make yourself so tense with expectation that you could miss the little signs. If you've ever done yoga, go there in your mind and chill out. What will come will come.

Dear Friend,
Thinking of Ella, you, and your guys. I'll keep watching and praying, even harder now. Peace be with you and yours.

Hey Sammy Jo, How's that placebo effect working for you?

The coverage and your interview are terrific exposure for CCSVI treatment, but I couldn't help snickering about the "placebo effect" comment.

Thanks for this and all your efforts through the years.

Kudos for Dr. Dake! Hmmm...I'd love to be a fly on the walls of the neurology department.

Hi Alexandra, Wow! Pregnant at last! I know you've wanted this for a very long time. Congratulations!!! Since Steve had his 3 stents and 1 angioplasty at the end of September, he's had one infection after another. As soon as he recovers from each infection, he begins to improve (even his balance), a...

Hi John: Since Steve and I are a couple of old moldy, crusty slices of white bread, we're still listening to our 70's music. He's still stuck on Seals & Crofts, and I like my Pink Floyd, War, Alan Parsons Project, and Joanie Mitchell. Also, he likes Andrea Bocelli, and I like Luciano Pavarotti. ...

A lovely Christmas blessing for you two. With MS, the smallest of improvements is cause for joy. May you both have the merriest and most blessed Christmas!