Search found 13 matches

by Nessabear
Thu May 08, 2008 10:28 pm
Forum: General Discussion
Topic: rr vs spms and ppms
Replies: 87
Views: 14650

I've always thought that one of the main reasons the drug companies focus on treatments for RRMS is that it is the only phase of the disease in which they have any chance at all of making their outrageously expensive treatments look successful. By focusing solely on RRMS, they are dealing with peopl...
by Nessabear
Thu May 08, 2008 12:11 am
Forum: Suggestions
Topic: Is there a central place for each user's ms history?
Replies: 0
Views: 5199

Is there a central place for each user's ms history?

Hi there, I haven't been on the site for a while but am back researching Tysabri and after reading some of the forums, I felt it would be helpful to me to be able to look up each user's ms history. As we all know, ms varies dramatically from person to person, so every comment is relative to the indi...
by Nessabear
Wed Jun 07, 2006 2:32 am
Forum: Humor
Topic: Tracksuits
Replies: 1
Views: 2477

Maybe they could have widened the appeal by copying those stupid tourist t-shirts, something along the lines of "I was diagnosed with MS and all I got was this lousy tracksuit"?!?
by Nessabear
Mon Jun 05, 2006 2:04 pm
Forum: General Discussion
Topic: Bladder dysfunction - any suggestions for improving?
Replies: 13
Views: 3711

Hi JFH,

Thanks for the link to the article by Dr Fowler. I found it reassuring to know that my urologist did all the right things (measuring my post void resudual volume etc) and also good to know that there is more research going on.

Vanessa
by Nessabear
Sun Jun 04, 2006 8:05 pm
Forum: General Discussion
Topic: Bladder dysfunction - any suggestions for improving?
Replies: 13
Views: 3711

Hi Babs, I totally relate to what you are saying! I think I read a snippet about neurotransmitters somewhere (can't remember where) but nothing substantial. Certainly sounds like a great option for people in our situation. I too will do some further research and ask my urologist about it next time I...
by Nessabear
Tue May 30, 2006 12:49 pm
Forum: General Discussion
Topic: Bladder dysfunction - any suggestions for improving?
Replies: 13
Views: 3711

Hi all, Ian: thanks for the links. I will look at them later today when my little boy is at preschool and I get some uninterrupted reading time! Matt: thanks for sharing your experience. I agree that the intermittent catherisation is not as painful as it looks and it certainly gives you much more fr...
by Nessabear
Mon May 29, 2006 3:03 pm
Forum: General Discussion
Topic: Bladder dysfunction - any suggestions for improving?
Replies: 13
Views: 3711

Hi Jimmy,

Thanks for that information. I will up my magnesium and potassium and see if that helps at all. I don't drink coffee or cola and I only drink decaf tea. As I said, I am managing with the Ditropan and catheter at the moment, but it would be nice not to have to use it every time!

Vanessa
by Nessabear
Mon May 29, 2006 2:05 pm
Forum: General Discussion
Topic: Bladder dysfunction - any suggestions for improving?
Replies: 13
Views: 3711

Hi Lyndacarol,

Thanks for sharing your experience. I know it's not an easy thing to talk about, but you are right about everyone here being supportive and helpful. I will keep the Detrol in mind in case I need to change my current medication.

Thanks,

Vanessa
by Nessabear
Mon May 29, 2006 12:59 pm
Forum: General Discussion
Topic: Bladder dysfunction - any suggestions for improving?
Replies: 13
Views: 3711

Bladder dysfunction - any suggestions for improving?

Hi there, I was just wondering if anyone has any suggestions for improving bladder dysfunction in MS? I've done a search in the forums but have only found passing references. I know it's not really something anyone likes to talk about, but it's certainly a problem for me, so I guess others are deali...
by Nessabear
Sun May 28, 2006 12:26 am
Forum: Antibiotics
Topic: Antibiotics for treating ms in Australia -- New Member
Replies: 98
Views: 20828

Thanks for the newbie assistance Sarah! I will have to get up to speed with the particulars of the site.

Have a great day.

Vanessa
by Nessabear
Sat May 27, 2006 11:53 pm
Forum: Antibiotics
Topic: Antibiotics for treating ms in Australia -- New Member
Replies: 98
Views: 20828

Hi Phil,

I sent you a pm to thank you for the support, but from my end it looks like I sent the pm to myself. Did you get it? I am new to this site and not sure how everything works! It seems you are online now, so I hope you see this if not the pm!

Vanessa :o)
by Nessabear
Sat May 27, 2006 3:11 pm
Forum: Antibiotics
Topic: Antibiotics for treating ms in Australia -- New Member
Replies: 98
Views: 20828

Hi Sarah,

Thanks for your prompt response. I already have David's pdf file printed and ready to take to the GP and neuro. I will have a better look around at both sites and start a journal soon and I will definitely contact CureOrBust should I need some local support!

Vanessa
by Nessabear
Sat May 27, 2006 1:43 pm
Forum: Antibiotics
Topic: Antibiotics for treating ms in Australia -- New Member
Replies: 98
Views: 20828

Antibiotics for treating ms in Australia -- New Member

Hi all, First, a big thank you to everyone who contributes to thisisms and CPn Help. I am currently gathering information to convince my GP and neurologist to prescribe Dr David Wheldon's antibiotic program to treat my secondary progressive ms. Second, an extra thank you to David Wheldon and Sarah -...

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